why don't people talk about. In other words why don't we hear people talking to us about it in social situations? Could it be, because people just get on with there lives and just tolerate it? With this assumption in mind, is it possible, this disease can be managed and therefore live a production and active life. If there was huge suffering as a result of PN, (and l know there is as l am suffering too,) then PN would get the attention it deserves.
After telling people that l have PN, most have never, ever heard of it.
Make me wonder how common it is?

I just don't get it.


Sue