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Old 04-04-2007, 04:26 PM #7
glenntaj glenntaj is offline
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Join Date: Aug 2006
Location: Queens, NY
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glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
Default OK--I checked on the web address for that Latov paper--

--and this should get your there:

http://www.questdiagnostics.com/hcp/...eralNeurop.htm

You certainly won't get any arguments from people on this board about needing to be one's own best health advocate. Too many of us started out trusting doctors who were uninformed or underinformed about the possible causes of our symptoms, and wound up having to do the research ourselves, and drive our own testing protocols. It makes many of us rather cantankerous.

In truth, most of us here, from doing the research and sharing notes, are far more informed about neuropathic conditions than most physicians, even most specialists. It makes for interesting doctor-patient relationships. Some physicians are rather scared by the loss of control that such Internet-informed patients can cause them--I don't see such physicians any more. I will not see a physician now who is not affiliated with a major teaching/hospital and/or is involved in research in his/her field of specialty him/herself. As I've posted before, most other physicians simply do not have the time or inclination to keep up on the latest knowledge, whereas we do--we are personally affected.

It does sound like your work-up has been very limited. It may well behoove you to be referred to a specialty center (though I realize that is very difficult if one does not live near a major city or university--and/or if one has lousy health insurance--that's a topic for another rant some other time).
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