I don't think ANY diagnosis can be made just from the 2 test results you've listed. Several possible diagnosis that MAY be related to these findings, still need additional tests to confirm.

At this point, you should not be thinking of 'whether you can deal with this diagnosis, or the other' because you're not even close to that stage yet. You need MORE tests to narrow down the possibilities. Dehydration is a very common reason for the increased protein, so it might not even be a problem. MGUS requires several more tests, like 24 hour urine, addition blood tests, skeletal survey (if everything else is positive), etc. Same for WM and sarcoidosis...more testing needed.

The first step should be to contact the doctor that ordered these tests and get his assessment of the results and how he will proceed with further testing. Next step...which may be harder...relax. Looking into or researching the possible problems associated with abnormal labs is one thing, but you need to stay objective and try not to speculate until you have more information.

Keep us posted.

Hi Echoes,
Is ACE the only test to determine sarcoidosis? If one had ANA comprehensive Panel Test, Antinuclear Antibodies Test, RA Factor, Sedementation Rate-Westergren, is sarcoidosis covered under these tests?

Thank you.

IPN

Sarcoid is difficult to diagnose:

Here is a very comprehensive explanation:

http://emedicine.medscape.com/article/1147324-workup
This link is to the work up in general.

But if you go back to the beginning there is a very detailed
description of neuro-sarcoidosis.

It is not common, however.

Thank you for this link Mrs. D!

Hi
mrsD- the urine results were the elevated protein levels that l stated on my first post of this thread. I should have stated 24 hour Urine test, which was 186.

I rung my doctor today and asked him if me being on day 5 of my menstrual cycle could have increased this level in my urine, and he said l don't need to do a re-test, it should be fine. Was maybe thinking that there may have been some blood from my menses.

Its funny,since moving to a sunnier climate, l have actually felt worse. My Vit D, levels would have increased naturally as l am more in the sun now. WHich from what l have read is bad for sarcoidosis.

Am having more tests done, shortly. Its a waiting game now.
They will probably do some x-rays etc, etc. I may have some kind of a kidney disease or condition, which is setting all this off.

Cheers Sue

By the way, l have had all kinds of other bloods tests to do with automimmune diseases, all came back normal. These were the only 2 test which came back abnormal.

Sue

sorry, here l am again, l was just looking at Lyme disease rash pictures, it looks nothing like mine at all.

My itchy spots, are red in the middle with white surrounds, and they are tiny.
Mainly on my legs. They are little read lumps and when l itch them they break and the middle weeps either bright red blood or clear liquid.

I noticed my little girl had some as well, but she had only a few of them.

Sue

My thought was any kind of flora/fauna (bug bite, contact) that may have been overlooked or unknown, whether related to the rash or not.

E.G.: In the Western US, there's a disease known as Valley Fever (Coccidioidomycosis, which is probably why they call it Valley Fever! ) (This has nothing to do with PN or rashes - I'm just using it as an example), that's well-known by all the doctors in that part of the country. It's caused by a fungus in the ground. It's usually not too serious for humans (but can be), but it can be devastating to dogs, especially those that rout around in the soil.

But most doctors in the Eastern US have never heard of it (by its colloquial name, anyway) since it's not endemic in the East. People who visit the west for a period of time may contract it, but when they get home, and symptoms manifest, their doctors may be stumped, not knowing to look for it.

You said you moved recently? Does the timeline fit with the onset of your symptoms? Is your new location geographically removed enough that something environmental could be at work (you mentioned a friend who presented similar symptoms)?

I'm jes' spitballin' here....

Doc

Yes l moved a year ago, to a more humid and warmer climate.
My backyard is a rainforest and there are many bugs around, but mainly mosquitos. We live about 5 minutes drive to the beach.

The only main thing that has really changed is l have been getting a lot more sun here. My Vit d levels weren't overly high when l had them checked 5 months ago, so if l do have Sarc, maybe the symptoms have become more pronounced since moving here.
I did have this unwell feeling, when l was back home in a cooler climate. But that was straight after having Restylane Vital facial injections.

Really it all spiralled from there.
Yes my friend has Sarc. They initially thought she had hodginkons.

She has lived here for 8 years. But the lady she trains, also has Sarc, and another person, l know has it as well. They all live with 40km from where l live here now.

Sue

Just wanted to clarify. I had abnormal protein levels in my 24 urine test, not in my blood test. My ACE was slightly elevated in the blood test.

Sue