...and I'm a little confused/puzzled.
Idiopathic : arising spontaneously or from an obscure or unknown cause
http://www.merriam-webster.com/medlineplus/idiopathic

The cause of sarcoidosis is unknown. [i.e. idiopathic]
http://en.wikipedia.org/wiki/Sarcoidosis

Doc

mrsD- l really hope you are wrong about this one.
If l start researching this, l think l will completely go mad.

You seem to think that this sounds like l have this. Isn't there other kinds of possible causes of this kind of results?

This bone marrow thing is not what l want to have at all.

I hope it isn't that.

I have had kind of a rash on my legs. More like red spot in the middle with white surrounds. It has gone now. I seemed to develop this rash when my burning feet and hands started. I have't noticed any shortness of breath. But last night l did cough a bit, and felt a bit weepy. But when go for a run, l don't have any shortness of breath at all. Actually if anything l have more breath.

So l don't know what to think of this.

Sarcoidosis l can deal with but not the bone marrow thing.
No Way.

Sue

Have you mentioned this rash before? I don't recall. Lyme Disease can cause PN, but it usually takes a while, and your rash description doesn't sound exactly the same. Makes me wonder about other exposures in your part of the world that we might not know/think about in this part of the world... ...but I would think neurologists there would know what local flora & fauna to consider/eliminate.

Doc

Please read my post carefully...

What I did say was some tests show out of range if you are dehydrated when they are done, during the fast.

Have the tests done again, and stay hydrated as best you can
and see what the results are. Also labs do make mistakes and retesting is common for that reason.

BUN is blood urea nitrogen, and is a separate test from Total Protein.
http://labtestsonline.org/understand...FZDrKgodx3Iz0w
This may be elevated because of kidney issue or dehydration.Some drugs cause elevations too.

Total protein(blood):
http://www.nlm.nih.gov/medlineplus/e...cle/003483.htm

I don't see a URINE test listed on this thread with results?
Proteins excreted in the urine often lead to LOW blood test results,
not higher or out of range high.

If you don't want to learn about these things, because the answers confuse or upset you, then you should not really ask the questions. The collective knowledge and experience here from all our posters is very large. You can take it or leave it as you desire.

If you believe you have sarcoidosis based on this one test, keep in mind it is not always mild in everyone. It can be devastating to some.
But you will need further testing to show if you really do have it.

one of the reasons i had cat scans of the chest for 3 years in a row and now every other year is because i have numerous lung nodules. they are keeping an eye on them to see if they grow or more develop. they are also keeping an eye out for sarcoidosis being that i have the nodules. the group i am in has 10x the rate of sarcoidosis as would be expected from the same age groups in the general population.
im surprised they could diagnose you so quickly with sarcoidosis. for most of the people i worked with it took a while. have you had a lung biopsy?
because a person has sarcoidosis in one organ such as lungs, eyes, etc doesnt mean that the other organs are affected. so if you have it in your lungs doesnt mean that it is causing damage in your nerves.

Hi Echoes,
Is ACE the only test to determine sarcoidosis? If one had ANA comprehensive Panel Test, Antinuclear Antibodies Test, RA Factor, Sedementation Rate-Westergren, is sarcoidosis covered under these tests?

Thank you.

IPN

Sarcoid is difficult to diagnose:

Here is a very comprehensive explanation:

http://emedicine.medscape.com/article/1147324-workup
This link is to the work up in general.

But if you go back to the beginning there is a very detailed
description of neuro-sarcoidosis.

It is not common, however.

Hi
mrsD- the urine results were the elevated protein levels that l stated on my first post of this thread. I should have stated 24 hour Urine test, which was 186.

I rung my doctor today and asked him if me being on day 5 of my menstrual cycle could have increased this level in my urine, and he said l don't need to do a re-test, it should be fine. Was maybe thinking that there may have been some blood from my menses.

Its funny,since moving to a sunnier climate, l have actually felt worse. My Vit D, levels would have increased naturally as l am more in the sun now. WHich from what l have read is bad for sarcoidosis.

Am having more tests done, shortly. Its a waiting game now.
They will probably do some x-rays etc, etc. I may have some kind of a kidney disease or condition, which is setting all this off.

Cheers Sue

By the way, l have had all kinds of other bloods tests to do with automimmune diseases, all came back normal. These were the only 2 test which came back abnormal.

Sue

sorry, here l am again, l was just looking at Lyme disease rash pictures, it looks nothing like mine at all.

My itchy spots, are red in the middle with white surrounds, and they are tiny.
Mainly on my legs. They are little read lumps and when l itch them they break and the middle weeps either bright red blood or clear liquid.

I noticed my little girl had some as well, but she had only a few of them.

Sue