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#1 | ||
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Member
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Yes, I am interested to know the support group in my area. You dont know how much reassuring your email was. You are are right, I am experiencing anxieties but it is hard to avoid it. I am really trying so very hard not to be afraid but it keeps on creeping especially when the pain is on and breathing is hard. Anyway, one day at a time. I dont want to ask this question because I am scared of the answer but I have to face this head-on. Is fibronodular the same as intertitial lung disease? It seems my result says that I have an ongoing inflammation. I dont know where my imflammation is coming from. Thank you very very much, echoes. |
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"Thanks for this!" says: | DanP (06-24-2012) |
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#2 | ||
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Member
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Idiopathic PN, I feel like I may be responsible for much of your anxiety with respect to your medications. Please note how many people take these meds with no problems, the chances of your developing issues are likely very small.
People in my family are very sensitive to all kinds of drugs, we all struggle. I've had many/most of the side effects that are listed "If you experience any of the following call your doctor immediately" for a long time and my doctor just basically ignored them. I see other people who have been taken off the medication or changed to something different, I was not. I told him a year ago that I felt I might have to start Neurontin and he made a face and looked out the window..not a lot of help! I may be wrong about some of the things because I'm not a doctor and have tried to figure it out myself. I have never seen a neurologist and really have no idea what is going on. judi |
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#3 | ||
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I am taking now Symbicort, even with much hesitation at first, but yes I am taking it. It is something that I need to do. I am hoping that it will work for me. My concern now is the fibronodular densities in my lungs. |
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#4 | |||
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Senior Member
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did you say that you had tuberculosis in the past? fibronodular densities can be from bacterial infections such as TB as well if you breathed in a foreign object or had other infections since. i will pm you with the PN support group information.
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#5 | ||
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It says in the ct scan result that there may be "inflammation in process", I may have Sjorgren's. That is my only suspicion because of dry eyes. Lately, I am experiencing dry mouth. I dont know if my dry mouth, though, is caused by any of my medications or supplements. |
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#6 | |||
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Wisest Elder Ever
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I have to wonder about sarcoidosis.... Did you have an ACE test when you had your blood work?
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#7 | |||
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Senior Member
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Are you using the Symbicort daily, not just when you have a problem? Is it helping yet? You should notice improvement fairly soon.
I feel certain the pulmonologist will look into both sarcoidosis and Sjogren's when you see him next month. Until that time, maybe the symbicort will help reduce your symptoms |
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#8 | ||
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#9 | ||
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Member
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In one of your links about neurosarcoidosis, it says that one of the workups is Serum protein immune electrophoresis. My questions are: 1. Is this test the same as Serum protein electrophoresis? http://emedicine.medscape.com/article/1147324-workup 2. Is ACE the first protocol for Sarcoidosis diagnosis? I was just wondering if, assuming, Serum protein immune electrophoresis and serum protein electrophoresis are the same, and it was mentioned that it is one of the diagnosis for sarcoid, is it safe to assume Mrs.D that a normal serum protein electrophorisis could mean without sarcoid? Thank you so much Mrs.D ![]() |
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