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Old 06-25-2012, 07:35 PM #21
Idiopathic PN Idiopathic PN is offline
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Join Date: Jan 2012
Location: Jacksonville, FL
Posts: 793
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Idiopathic PN Idiopathic PN is offline
Member
 
Join Date: Jan 2012
Location: Jacksonville, FL
Posts: 793
10 yr Member
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Hi echoes,

I extracted your post from another thread:

one of the reasons i had cat scans of the chest for 3 years in a row and now every other year is because i have numerous lung nodules. they are keeping an eye on them to see if they grow or more develop. they are also keeping an eye out for sarcoidosis being that i have the nodules. the group i am in has 10x the rate of sarcoidosis as would be expected from the same age groups in the general population.
im surprised they could diagnose you so quickly with sarcoidosis. for most of the people i worked with it took a while. have you had a lung biopsy?
because a person has sarcoidosis in one organ such as lungs, eyes, etc doesnt mean that the other organs are affected. so if you have it in your lungs doesnt mean that it is causing damage in your nerves.


I am sorry if I appear to be like "investigating" your condition, I dont mean any malice, I just want to get insights...
have you been diagnosed of sarcoidoisis or they just want to watch out for it? was your SOB sudden or gradual?
From the 1st scan to the 3rd, was there any new nodule?

In my case, there has been a progress from 2011 to 2012. Although, I was experiencing SOB on and off since 2008, but the pronounced SOB came about when my neurological symptoms came up. I am thinking that what triggers my PN might also be the same that triggers the growth of the fibronodular.

I have been trying to recall now, for several years, I remember that everytime I had a chest x-ray, that scars have been showing, but doctors would not pay attention because they all said its a scar from a previous infection...it sounded that I have nothing to worry. So, for many years the 2 little scars were the same, then why only now that it has progressed. There must be in the recent time that triggered it. I have been trying to think what could be, but unfortunately, I could think nothing.

Thank you.
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