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Old 06-25-2012, 08:01 PM #1
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Sorry to be slow in reply (I was unavailable yesterday)...and also vague with my response.

But there is really no easy answer to your question. Without having a diagnosis of the exact lung condition no one would be able to answer about treatment, it effectiveness, and/or stopping progression.

Asthma (even adult onset from AI disease) is treatable. Interstitial lung disease is different based upon BOTH severity and what is the underlining AI condition. Without more info, it's impossible to guess.

Let's reassess your question after you get more results.
I got a copy of the labworks requested by the pulmonologist:

Anca panel
Protein Electro
Sjorgren's Ab, Anti-SS-A/SS-B
Anti GBM IgA
Rheumatoid Arthritis Factor
Anti DsDNA Antibodies, Anti-Jo-1, Antinuclear Antibodies Direct, Immunoglobulin A, Qn
Alpha1 Antitrypsin

Everything is negative or within normal range.

I am back to square one.
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Old 06-25-2012, 09:01 PM #2
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Up to 40% of those with Sjogren's have negative blood work. If you have significant symptoms (dry eyes/mouth, fatigue, joint pain, etc) then maybe you should consider being worked up for Sjogren's with a Schirmer's test (to assess tear production) and lip biopsy...which is more invasive and should be considered if the Schrimer's is positive and they believe your lung issues are autoimmune related.

About your shortness of breath. Do you get SOB while sitting quietly, or more while exerting? Have they exhausted the cardiac angle?
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Old 06-26-2012, 04:41 AM #3
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Originally Posted by en bloc View Post
Up to 40% of those with Sjogren's have negative blood work. If you have significant symptoms (dry eyes/mouth, fatigue, joint pain, etc) then maybe you should consider being worked up for Sjogren's with a Schirmer's test (to assess tear production) and lip biopsy...which is more invasive and should be considered if the Schrimer's is positive and they believe your lung issues are autoimmune related.

About your shortness of breath. Do you get SOB while sitting quietly, or more while exerting? Have they exhausted the cardiac angle?
Thank you en bloc,

I have mitral valve prolapse since I was in my 20's. I had a stress test in Sept. 2010 and its same. I don't take medicine for it. My BP is okay. I have SOB both while at rest and in exertion but more while in exertion.

While I was actively treated for my lacrimal gland inflammation my schirmer's results were:

May/2011:

Right eye : 3 milli
Left eye. : 4 milli

Aug/2011:

Right eye : 5 mili
Left eye. : 6 milli

I read that anything below 5 is indicative of sjorgren's.
I will see my ophthalmologist next month.
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Old 06-26-2012, 05:16 AM #4
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Although those numbers are low enough to be considered related to Sjogren's, they were done during the inflammation of the lacrimal gland. It will be interesting to see what those numbers are now that this has resolved. If they are still low, you should consider the lip biopsy to confirm/deny Sjogren's.

Something is definitely going on with you that's causing the lung inflammation. I feel certain they will find the answers soon.
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Old 06-26-2012, 07:11 AM #5
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Originally Posted by en bloc View Post
Although those numbers are low enough to be considered related to Sjogren's, they were done during the inflammation of the lacrimal gland. It will be interesting to see what those numbers are now that this has resolved. If they are still low, you should consider the lip biopsy to confirm/deny Sjogren's.

Something is definitely going on with you that's causing the lung inflammation. I feel certain they will find the answers soon.
Thank you so much, en bloc!

I sincerely hope that we find resolutions in all our health problems.
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