Originally Posted by angel04

Thank you so much for all the really helpful replies yes I had chemo and radiotherapy and all went well, I have seen my oncologist several times, he arranged an ultra sound and the results showed that was a fibrous mass and the wound had knitted back too tightly but there was nothing else that could be done. He thought I was an unusual case but offered no other advice, oh he did suggest that I go to a pain clinic and learn how to manage the pain. I am terrified of having reconstruction and would never opt for any operation again even if my life depended on it. I had a good night and slept until 4.30 so I thank god for that much. I just wish I could get the motivation to get dressed and go out for a walk but my head is afraid of my body and something going wrong again. Any suggestions ?

Originally Posted by angel04

In need of advice please, I had a mastectomy which went wrong and now have PN, part of my condition is worrying me, when I go for walks I suffer for the next 2 days and cannot do anything. I feel pressure on my throat and back of neck and the pain in my back is much worse. I am travelling home to Ireland on 13 June for 2 weeks with my Mum and I know that with the luggage and the long walk in both airports that I am going to be out of commission for 2 days afterwards. Does anybody have any tips or advice on how I can reduce the impact of this ? or indeed are these symptoms normal for PN sufferers? Does anybody else have them? Very worried and praying for replies.