Recently diagnosed w/ Small Fiber Neuropathy -- now what?

Susanne C. · 07-04-2012, 06:00 PM

Quote:

Originally Posted by dangoch

Susanne C: I've been on Crestor and Lovesa for triglycerides and cholesterol for years. Crestor brought my LDLs down some and my HDLs were ok but my triglycerides were extremely high. So I got Rx for Lovesa. Next blood test showed all readings to be great. LDL low HDL high and Triglycerides normal. All good stuff. But I have never heard about balance issues associated with these drugs. I can walk ok but I hope the cops never pull me over and do a "walk the line" test. I'd flunk and be in the drunk tank in no time. When I walk down the hall in my house, I use my hands to keep from bumping into the walls. I have trip over the smallest imperfections in a sidewalk. I fear walking at night in a poorly lite area because I can't see the walk or my feet. So my question is, what are the alternatives? I am finally in good shape lipids wise after 40 years of bad triglycerides. But I may be getting osteoporosis (probably from some other drug I'm taking) and tripping and breaking something is now my worst fear.

For me I went off the Tricor immediately. My triglycerides were 512 when my doctor freaked out and put me on it. The Tricor brought it down to 360. Losing some weight, watching white flour and sugar, and walking along with taking fish oil have kept it in the low 300's, without the Tricor. My CMT is the only health problem I care about, so I don't really worry about the numbers. There is something called hereditary high triglycerides which is benign, so I assume it is that as my blood pressure is excellent and I have no heart risk markers.
Only you can decide whether it is worth going off of it to see if your balance improves and whether you are willing or able to put serious effort into lifestyle changes, if they are even warranted in your case. You may already be doing all you can in that area.
I can only say again that my balance improved a lot when I went off them. It isn't great now, but I have been going downhill the last little while. It s still much better than while I was on the Tricor.

mrsD · 07-04-2012, 06:01 PM

If you take statins, what you can for yourself is next to useless.

Statins, including Crestor (the most potent and toxic) damage nerves and muscles. You will not fix or correct that as long as you take it or another statin. And if you have been on a statin long term, there may be damage that does not respond to any supplements or anything you can do to reverse it.

That is between you and your doctor, however. But the tide is turning daily against statins. We provide information your doctor does not give you so you can make a more informed choice.

http://neurotalk.psychcentral.com/post665830-5.html

And new information has come to light that statins, actually cause and promote diabetes:

http://www.nytimes.com/2012/03/05/op...tin-users.html

and other effects:
http://neurotalk.psychcentral.com/post677460-8.html

Kitt · 07-04-2012, 06:24 PM

Statins have an uncertain or minor risk for someone with CMT.

http://www.cmtausa.org/index.php?opt...d=68&Itemid=42

Susanne C. · 07-04-2012, 07:39 PM

Quote:

Originally Posted by Kitt

Statins have an uncertain or minor risk for someone with CMT.

http://www.cmtausa.org/index.php?opt...d=68&Itemid=42

I think that they are generally contraindicated for neuropathy, not sure whether worse if you have CMT, but it was my neurologist who suggested I stop taking them.

Kitt · 07-04-2012, 08:08 PM

Statins can cause weakness and muscle pain to name a few side effects even with the general population. I personally know at least two people (general population) that this has happened to.

It would seem that the side effects are worse for someone with CMT as we already are weaker, have muscle pain, etc.

judiesva · 07-05-2012, 09:54 AM

Dear APJH,

I to am new to this forum (several months) and have found a HUGE amount of information regarding PN. Mrs.D suggestion about the B12 should be further investigated. A book I found interesting on this subject is "Could it Be B12?" by Pacholok and Stuart. This book shows many examples of how low B12 can effect many parts/systems of the human body.

Sincerely,

Judie

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