[imaginegoodthings]

Hi everyone,
I'm a newbie who has been reading this discussion board for the last month or so.

I've been diagnosed with sensory ganglioneuropathy (or ganglionapathy) (though the problem could be in my nerve root system instead of the DRG).

I'm a female college professor in my early fifties. Two years ago I started having numbness in my hands 24/7, then in my feet as well. For the last year, I have experienced serious impacts on my fine motor skills (e.g., buttons, handwriting, unable to open lids or put on earrings easily, shakiness using a spoon or fork--you name it)--and on my gross motor skills (e.g., balance, climbing stairs). I have not driven a car for over a month, and I feel I am losing my independence.

From those of you (En Bloc? others?) who have lived with this condition for a longer period, what is life like? Can you still walk/work/write? In other words, as this condition progresses, how debilitating is it?

I am focused on staying positive and counting my blessings--two beautiful children (one young adult, one starting high school) and a 30-year marriage. But I am also trying to see where my life is going.

Other than this, I've been healthy; tested negative for other potential conditions and causes.

Your thoughts and insights appreciated.