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Old 07-06-2012, 11:59 PM #1
Liftyourhands7 Liftyourhands7 is offline
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Hi CammyJo,
I certainly can relate to how you are feeling, In my case I have full body Small Fiber Neuropathy, it is absolutely miserable and because people cannot SEE my condition they really do not sympathize with me at all, I tell them I am in pain but they simply cannot relate. That's one of the reasons I come to this forum, the people here do understand, it's so nice to know there are people who know exactly how you feel. You are not alone, ask all the questions you need to ask, knowledge really is power. We are all here to help each other. Blessings, Jan
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Old 07-07-2012, 07:44 AM #2
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Leesa Leesa is offline
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Hi Cammy -- Does your doctor have you on any medications for the neuropathy? There are some that can relieve the nerve pain. I have neuropathy due to spinal problems, and my doctor has me on Topamax, 400mg per day (200mg AM and 200mg PM) and it does work well for me.

I'm just wondering if you too are taking anything for it. Most doctors seem to put their patients on Gabapentin (Neurontin) -- that made me retain alot of water and gain a lot of weight. So my doc switched me to the Topamax, and I lost the water & weight.

Anyway, I hope something can be done for your pain. I know how awful it is. God bless. & take care. Hugs, Lee
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recovering alcoholic, sober since 7-29-93;severe depression; 2 open spinal surgeries; severe sciatica since 1986; epidurals; trigger points; myelograms; Rhizotomy; Racz procedure; spinal cord stimulator implant (and later removal); morphine pump trial (didn't work);now inoperable; lumpectomy; radiation; breast cancer survivor; heart attack; fibromyalgia; on disability.



Often the test of courage is not to die, but to live..
.................................................. ...............Orestes
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