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Old 07-11-2012, 10:22 AM #11
happyisme09 happyisme09 is offline
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Thank you SO VERY MUCH pabb and glenntaj (always MrsD!!)

I have watched my gorgeous life loving and vibrant dd slowly morph into a tired, overweight, unhealthy, fed up and sometimes NOT EVEN THERE person I don't know.

All beginning with the removal of her left lobe of her thyroid because the nodules MIGHT be cancer...negative. This was at 19 yo - 8 years ago.

Along with the Hashimotos, hypothyroid, pcos, ebv, anemia, adrenal gland fatigue, estrogen dominance, food sensitivities, extreme fatigue, brain fog, mood swings - we are adding severely sore/swollen fingers in the morning!! (That pesky Round 1 of Gardasil given during undxd mono! REALLY haunts me...)

Where do I begin? There is a test result with the above referenced bloods for ALLERGEN (IGG) IMMUNOCAP GLUTEN GLUTEN IGG* results: 17.8 H This test has not been cleared or approved by the FDA.

tsmitty, what tests were ordered for YOU? Are you considering a biopsy *be sure they take MANY SAMPLES ALL OVER!! - for you will need to eat gluten. Actually, you DON'T NEED gluten, so say goodbye to it - forever. Look at all the issues surrounding it as well as RYE and BARLEY *and I feel corn and peanuts too! Oh, and alcoholic beverages.

But that is just my opinion. I am not sensitive or allergic - as for my endoscopy results six years ago, but I am GF today. Just because I like me.
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Old 07-11-2012, 10:31 AM #12
happyisme09 happyisme09 is offline
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Default GENOVA DIAGNOSTICS Celiac & Gluten Sensitivity

tsmitty - is this the testing you had? For I found the LAST page of my dd's testing and it reads: Total IgA 336 and is sufficient
Anti-Tissue Transglutaminase IgA (tTG IgA) at 1.6 and is Negative
Anti-Deamidated Giladin IgA (DGP IgA) at 8 and is Negative
Anti-Giladin IgA (AGA IgA) result at 4 - Negative
Anti-Giladin IgG (AGA IgG) is at 14 and Negative

"Patient results are Normal."

Would like to know which blood tests were run, on you, if you want to share. The tests above found her to have antibodies to several random foods that she needs to "rotate."

Do you have any issues with thyroid? Her tests were ALWAYS normal and within range. It was her swollen neck that caused the doc to order an ultra sound and found the nodules.
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Old 07-11-2012, 05:43 PM #13
tsmitty70 tsmitty70 is offline
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I believe it was the gliaden antibodies test. I will not know for about a week.
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Old 07-12-2012, 07:48 AM #14
glenntaj glenntaj is offline
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glenntaj glenntaj is offline
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Default There is evidence--

--which JCC has accumulated in The Gluten File (easily Googled, and also linkable through our own Gluten Sensitivity/Celiac forum here) that doctors should not necessarily be dismissing an isolated anti-gliadin IgG elevation.

While this is the least specific celiac test, it is the most sensitive, and according to the work of Dr. Hadjivassiliou in Europe, it is often associated with neurological manifestations of gluten sensitivity, such as neuropathy and gluten ataxia, and it may be more associated with another genetic subtype--HLA-DQ1--than gastrointestianl manifestations of gluten sensitivity, which is more closely associated with genetic subtypes HLA-DQ2 and HLA-DQ8.

Take a look at:

https://sites.google.com/site/jccglu...ationsofgluten
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"Thanks for this!" says:
mrsD (07-12-2012)
Old 07-14-2012, 07:35 PM #15
pabb pabb is offline
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Quote:
Originally Posted by happyisme09 View Post
tsmitty - is this the testing you had? For I found the LAST page of my dd's testing and it reads: Total IgA 336 and is sufficient
Anti-Tissue Transglutaminase IgA (tTG IgA) at 1.6 and is Negative
Anti-Deamidated Giladin IgA (DGP IgA) at 8 and is Negative
Anti-Giladin IgA (AGA IgA) result at 4 - Negative
Anti-Giladin IgG (AGA IgG) is at 14 and Negative

"Patient results are Normal."

Would like to know which blood tests were run, on you, if you want to share. The tests above found her to have antibodies to several random foods that she needs to "rotate."

Do you have any issues with thyroid? Her tests were ALWAYS normal and within range. It was her swollen neck that caused the doc to order an ultra sound and found the nodules.
good heavens, you can't win for losing. they should have done the deaminated IgG, not IgA.
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