advertisement
Reply
 
Thread Tools Display Modes
Old 07-15-2012, 07:15 AM #11
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Quote:
Originally Posted by duarte1985 View Post
So know I have severe neuropathy, plantar fachitis and now I have horrible phantom pain. I am looking for help but help is making me worse. My neurolgist has made no effort. to help me. My neuropathy is progressing which he agreed , he said if we don't do something fast I might be able to walk. There has to be a way to stop this pain its almost debilitating right now.
Have you had a B12 test? Do you know the numerical result?
I'd have this tested ASAP and make sure you are above 400 in US units.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote

advertisement
Old 07-15-2012, 10:16 AM #12
echoes long ago's Avatar
echoes long ago echoes long ago is offline
Senior Member
 
Join Date: May 2008
Location: new york
Posts: 1,581
15 yr Member
echoes long ago echoes long ago is offline
Senior Member
echoes long ago's Avatar
 
Join Date: May 2008
Location: new york
Posts: 1,581
15 yr Member
Default

way back in 2003 i was diagnosed via emg/ncs with peripheral neuropathy. the neurologist that did the test referred me to columbia presbyterian hospital in manhattan. the first thing that they wanted to do to look for a cause, before blood tests, glucose tolerance tests, a1c, spinal tap or anything else was a nerve biopsy on the sural nerve. I read up on it on the braintalk peripheral neuropathy forum which was the active one at the time with some of the same posters who are here still, and ran not walked to another neurologist who gave me a full testing workup without the sural nerve biopsy.
you must become fully involved in understanding and researching the testing, diagnosis and treatment of your medical issues, because it is you who will be the one who will be suffering or debilitated when unneeded or damaging procedures, surgeries or Rx's are done or presecribed to you.
echoes long ago is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
duarte1985 (07-16-2012), en bloc (07-15-2012), Kitt (07-15-2012), mrsD (07-15-2012)
Old 07-17-2012, 08:49 AM #13
billygee billygee is offline
Junior Member
 
Join Date: Apr 2012
Posts: 83
10 yr Member
billygee billygee is offline
Junior Member
 
Join Date: Apr 2012
Posts: 83
10 yr Member
Default

I have peripheral neuropathy & inflamatory muscle process in my legs and my left leg is worse.Iwent thru all the blood test and mri of the lumbar spine, left femur the test came back normal execpt my b-12 which was at 275.So the doc at my va recomended I had both nerve & muscle biopsy done which i'm glad i did becauce it showed a problem with the fibers and red blood cells ?? and it has taken us into a new direction of blood tests and i wont know till next month what the results are.The only pain i have in my leg from removing the nerve & muscle is when i cross my left leg.If your doc what to have the biospys done i'd say yes, go for it it my show something or it may not.
billygee is offline   Reply With QuoteReply With Quote
Old 07-17-2012, 10:03 AM #14
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

You need to start B12 NOW.... 5mg methylcobalamin daily on an empty stomach. It is better than injections and may help. Methyl B12 is the ACTIVE form and superior to cyanocobalamin. Some people cannot methylate cyano so it doesn't work for those with genetic failures in methylation.

iherb.com, Puritan's, Swanson's, amazon have it for about 10 cents or so a day. Get tested in 3 months, and you should be over 1000 for best results.

Did your doctor offer B12 to you? Anything below 400 is considered abnormal today according to new treatment protocols. Other countries have been treating these lows for many years now, but the US is really behind for some reason.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 07-17-2012, 10:22 AM #15
billygee billygee is offline
Junior Member
 
Join Date: Apr 2012
Posts: 83
10 yr Member
billygee billygee is offline
Junior Member
 
Join Date: Apr 2012
Posts: 83
10 yr Member
Default

Quote:
Originally Posted by mrsD View Post
You need to start B12 NOW.... 5mg methylcobalamin daily on an empty stomach. It is better than injections and may help. Methyl B12 is the ACTIVE form and superior to cyanocobalamin. Some people cannot methylate cyano so it doesn't work for those with genetic failures in methylation.

iherb.com, Puritan's, Swanson's, amazon have it for about 10 cents or so a day. Get tested in 3 months, and you should be over 1000 for best results.

Did your doctor offer B12 to you? Anything below 400 is considered abnormal today according to new treatment protocols. Other countries have been treating these lows for many years now, but the US is really behind for some reason.
275 is a low normal.They talked about b-12 shots.I'm taking 1000mcg B-12 tablet aday.For right now there trying to firgure out what started all this crap.All i can say i'm glad i went with the biopsy's.By the new round of blood test it sounds like my blood was exposed to something.

i looked at the wrong number. B-12 is 379 if i'm looking at lab results correctly.Sorry about that. Removal of left sural nerve and adjacent muscle for biopsy.
billygee is offline   Reply With QuoteReply With Quote
Old 07-17-2012, 10:35 AM #16
billygee billygee is offline
Junior Member
 
Join Date: Apr 2012
Posts: 83
10 yr Member
billygee billygee is offline
Junior Member
 
Join Date: Apr 2012
Posts: 83
10 yr Member
Default

Thanks Mrs.D I'll order Methyl B12 . Thanks for the info.
billygee is offline   Reply With QuoteReply With Quote
Old 07-17-2012, 10:54 AM #17
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Sural nerve biopsy can leave you with permanent pain. Did you read all the posts on this thread?

Skin punch biopsy is a better alternative.

Even at 379 you are below the acceptable low of 400 today.

People with neurological issues can need more B12 than others.

Please read this:
http://neurotalk.psychcentral.com/post698522-70.html

and
http://www.aafp.org/afp/2003/0301/p979.html

Injections are typically cyano form, which is not active. Some people lack the genetic ability to utilize it and so it does not work well. The active form is methyl and that works much fast and better.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 07-17-2012, 11:17 AM #18
billygee billygee is offline
Junior Member
 
Join Date: Apr 2012
Posts: 83
10 yr Member
billygee billygee is offline
Junior Member
 
Join Date: Apr 2012
Posts: 83
10 yr Member
Default

Quote:
Originally Posted by mrsD View Post
Sural nerve biopsy can leave you with permanent pain. Did you read all the posts on this thread?

Skin punch biopsy is a better alternative.

Even at 379 you are below the acceptable low of 400 today.

People with neurological issues can need more B12 than others.

Please read this:
http://neurotalk.psychcentral.com/post698522-70.html

and
http://www.aafp.org/afp/2003/0301/p979.html

Injections are typically cyano form, which is not active. Some people lack the genetic ability to utilize it and so it does not work well. The active form is methyl and that works much fast and better.
The only pain i have is when i cross my leg, i can live with that.The biopsy's they had to do and what there looking for i have no idea.
All i know is that the blood test are more specific & deeper. 3hr glocuse, cooper, either vit-c or hep-c, toxins & other test.I ask the nurse if this has anything to with agent orange, all she was yes & no.The base's i was station at were cleared by the epa. What labs there sending out the samples to there not saying.I'm just along for the ride. lol All i can say for me the nerve & muscle biopsy's was a must. Sorry to hijack duarte1985 post.
billygee is offline   Reply With QuoteReply With Quote
Old 07-17-2012, 04:38 PM #19
duarte1985 duarte1985 is offline
Junior Member
 
Join Date: Jun 2012
Posts: 23
10 yr Member
duarte1985 duarte1985 is offline
Junior Member
 
Join Date: Jun 2012
Posts: 23
10 yr Member
Default

Not a problem billygee! MrsD the VA tells me its been done multiple times looking for my B12 that is by I will get a release tommorow.
duarte1985 is offline   Reply With QuoteReply With Quote
Old 07-17-2012, 05:35 PM #20
billygee billygee is offline
Junior Member
 
Join Date: Apr 2012
Posts: 83
10 yr Member
billygee billygee is offline
Junior Member
 
Join Date: Apr 2012
Posts: 83
10 yr Member
Default

Quote:
Originally Posted by duarte1985 View Post
Not a problem billygee! MrsD the VA tells me its been done multiple times looking for my B12 that is by I will get a release tommorow.
I forgot what the office is called, you can get your medical records at the vamc.Everything is on computer now.

If you ever need you get your medical records when you where in the service www.NPRC.Vetrecs@nara.gov

Last edited by billygee; 07-17-2012 at 06:02 PM.
billygee is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
duarte1985 (07-18-2012)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Skyn Biopsy filipe Peripheral Neuropathy 34 04-12-2011 10:36 AM
muscle biopsy rumpled Myasthenia Gravis 18 10-19-2010 01:30 PM
Skin biopsy kpRN Peripheral Neuropathy 19 07-24-2010 09:10 PM
Negative Lip Biopsy??? Sleeeepy Autoimmune Diseases 0 04-01-2010 08:08 PM
Update about my mom's biopsy Jodylee The Stumble Inn 52 02-21-2008 01:22 PM


All times are GMT -5. The time now is 10:54 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.