Have you had a Autonomic Function Test? I am scheduled for one, but I do not know if it will zero in on anything.

I wish I had further insight for you but it is interesting your A1Cs are very good but your fasting glucose has bounced around. Interestingly, my A1Cs are at 5.5, but I have never done a fasting. I have read they are more sensitive than a normal A1C. How many fasting tests did you do to get those results?

I have had probably around 12-15 fasting tests or so over the last 4-5 years. Results usually range from 90s to the one hundred and teens.

I once had an autonomic function test done at Mayo at Florida and it was for the most part normal. However, I clearly have some autonomic neuropathy with these "flares" in that I have bladder issues, dry eyes, and sometimes some delayed gastric emptying. Basically, I have small fiber neuropathy with autonomic involvement and all of this has historically presented itsself in what I describe as flares. I just wish I could get these flares to lessen in their frequency and duration.

Are you on anything to help manage the pain?

Gabapentin...up to 1800 mg a day, but it doesn't seem to be working.

Had a period between April and mid-June where I wasn't taking it and I wasn't having pain issues. I thought my small fiber neuropathy was going away, i.e., the nerves were regenerating. Then, in July, BAM! So I started back on the gabapentin again.

Is there a family history of other congenital or hereditary disorders. Siblings, parents, etc. with things like Raynaud's, Arthritis, Club Feet, Spina Bifida, etc.?

My sister and mother have raynaud's. There is some family history of arthritis. But that's about it. No neuropathy issues that I know of.

davidl, I sent you a Private Message.

Hi, i have it, and yes, moments of peace then moments of sheer hell, what ever it is doing it is having no end of fun making my life hell. good luck