I feel your pain. I havent even been diagnosed yet,.don't know if this permanent or a pinched nerve or what. But the way people have been treating me has been horrible. My dh actually called me lazy the other day. I about had a nervous break down. Last night I had to explain to him and my kids what is actually happening to me inside my body. Just because you do not see it doesnt mean it isnt happening. And Lord knows I dont want to live like this,.I would rather be doing more things. And even when you tell people if they havent gone through it themselves they cant even imagine.

I'm so sorry for your hurt and pain! I am praying for you today.

My deepest sympathies for what you are going through. I was also someone with absolutely no support behind me. I was able to vent on these boards and also to my GP. It may be worth looking into some counseling, meditation therapy, hypnosis , pain management etc.

Nobody should have to go through this alone.

As far as work is concerned, it's hard to concentrate on work when your in so much pain, but we all have to put bread on the table one way or another. You may consider asking your husband to get some paid work and if you can scaling back your hours?? I dont know if that's even possible.

If all else fails just vent and vent on the forum. Trust me I totally get you.
Yes it sucks big time!!

Hi Linda,

You're not alone. Though we -- all of us here -- may be separated by great distance, the internet has made it possible for us to be together for support.

There are a couple things "they" don't tell you (maybe because "they're" hoping they won't -- or don't -- always happen(?) I dunno. ).

First, Depression is part of the package. It comes with any kind of chronic illness, and the two feed on each other in what has been well-documented as the "vicious cycle". Google: chronic illness depression vicious cycle

Second, the stages of grief. Chronic illness is a life-changing event that affects not only our bodies but our minds. Google: stages of grief chronic illness

Knowing about these things won't make them go away. Learning about them will help you recognize what you're feeling, understand why, and hopefully how to better cope with them. I believe knowledge is power because I have seen and experienced it in/on my own journey. Knowing and recognizing is more than half of the battle in coping, living with it, and moving forward. It is not the end; there is still great joy and wonder ahead.

Venting is fine and healthy. Anger, frustration, depression... are understandable and forgivable. All of this is human. Forgive yourself first.

Doc