small fiber neuropathy
 

Hello,

I was wondering if anyone on here has had a similar experience to mine. I was overvaccinated for rabies, receiving a set when I worked for a vet and then more when I worked for a lab. I also was paranoid and though I exposed myself to the virus and got some more post exposure shots.

My first symptom was a numbness or dead feeling in my left foot, which was only really noticeable after activity. This was the only symptom I had for about 8 years along with urinary urgency and an occasional needle in the foot feeling. Exercise makes things worse. Now I have burning sensations over the body at times, fogginess in the head, and trouble swallowing. Exercise always makes symptoms worse. I was almost symptom free for about 4 months and then I had to shovel out from a storm and have been horrible since, developing this swallowing trouble.

I fear what the future brings, especially since I can't be active. Has anyone found anything to help symptoms? I am wondering if it is an autoimmune reaction if the parasites that help Crohns disease patients would help, but of course it is not approved here.

Any advice or updates on disease progress would be appreciated.

Please Help
 

I know this Thread has been dead for quite some time now but am looking for some hope. I am having the tingling and burning pain after the vaccine. Can you all provide an update to let me know how you are doing. Also I am 2 months into this and wondering when you started to see improvement.
Thank You

Are you still doing good?

I had my 4 shots completed 2 days back, since 2 days, obsolutely no sleep. Anyone has similar symptoms please post. Not sure when i will be able to sleep. Thinking of going to uc to get sleeping aid. Also i had random pins and needles all over body but that was a day after 3rd shot lasted a day. After 4th shot on my right hand, stiffness and cold feeling in hand all the way from injection site. Cold feeling went away but now weakness in right hand from elbow to fingers. Anyone please help

Its been a while that this thread been bumped, but did anybody had thier natural sleep taken away? I have problem falling asleep after 4th shot. Please help. I use to fall asleep naturally whether it be random nap in afternoon after heavy lunch or after too much driving. Thank you

Here goes:
 

First I'd like to thank all who have posted their experiences with rabies vaccine. Your candor has helped me a great deal. I have waited to post until some time passed after my bite and vaccinations. I was bitten on my right hand by a bat Dec. 24, 2016. Didn't catch the bat, so had to have the post exposure prophylaxis. I have allergies, multi chemical sensitivity actually. After the second rabies vaccine injection, I had an allergic reaction. I was able to complete the series by taking my antihistamine medication a half an hour before the last two injections. My treatment was human rabies immune globulin and Imovax. A few days after completing the series I was drifting off to sleep in the recliner when I noticed a needles & pins sensation in the bottom of my right foot, then the right foot began to flutter uncontrollably like a humming bird. Very upsetting. In the following days and weeks I developed muscle jerks as I drifted off to sleep, legs, shoulders, across upper back, urinary urgency, parasthesia (the "socks" syndrome: feet and half way up calves) insomnia, auditory hallucinations X2 ("heard" my cell phone ringing when I knew it was not) leg pain, shooting pains in my arms and hands, anxiety attacks, deep depression, brain fog, extremely painful flares of the osteoarthritis in my knees, extreme fatigue. I've also had a couple of days where it seemed I was producing more saliva than usual. My regular M.D. right away said all of this was out of her expertise and said I needed to consult an infectious disease doctor. He was thorough and reassuring, but when I told him of the auditory hallucinations, he sent me to a neurologist. I was anticipating the worst; invasive scans or the "It's all in your head, you're fine." thing. When I handed the neurologist my notes, she read them and said, "This is pretty much classic for a vaccine adverse reaction." She did the usual neuro check; reflexes, sensory sticking with a wooden stick on the extremities, push/pull strength test, fingertip to fingertip to nose, etc. and ordered some blood work which all came back fine. At the 6 week check up with her, the symptoms were still waxing and waning (no more auditory hallucinations, thank goodness.) She told me this all could remit and flare for a year or more, but I'd eventually be fine. This month I finally had about eleven extremely good days in a row, and then two nights ago as I was drifting off to sleep it all hit with a fury again...5 hours of muscle jerks, urinary urgency, whole body vibrating, heart racing and pounding. Very, very discouraging. Since that night I've been fine again, but for me the awful thought of vaccine failure and rabies scares the heck out of me. I know chances of that are slim to none, but in the throes of all those ugly symptoms...it's so hard. The insomnia, parasthesia and auditory hallucinations have not recurred since very early on in this fiasco. The arthritis flare is very, very slowly subsiding. My husband was sleeping in the same room when I got bit, so he had the vaccine series also. Thank goodness his only reactions were a temporary stiffness in his shoulders, and a period of increased fatigue. He's fine, thank goodness. What I've been through has taken a toll on both of us, we're senior citizens. I can't imagine trying to maintain a career with all of this going on.

Mwolf, if you are still checking in on this forum, I'd be interested to hear how you are faring. Your situation with multiple rounds of vaccine is unique. Very unsettling to hear that it all exploded on you 8 years later. Hope you have found some help and improvement.

O.K. I'm done with the infectious disease Doc. After I last posted about my 5 hours of seizure like activity, I then had 15 really good days again, and then two nights in a row of muscle jerks, urinary urgency, and progressively tightening muscles, and my body shaking, no, literally vibrating for 3 and 4 hours. I contacted the infectious disease Doc regarding this, and the answer was either Valium or Xanax to deal with my "anxiety". I don't feel anxious until all of this crap suddenly happens as I'm drifting off to sleep. (Have you ever wished your Doc could spend just one half hour in your body when it's going haywire?) I've got a call in to the neurologist, we'll see what she has to say. From my lay person's research this is seizure activity, (nocturnal siezures) not anxiety. The neurologist tested for restless legs syndrome and autoimmune disease...both negative. If the neurologist can only suggest that I gork myself with tranquilizers, I'll have no option but to take ATXman's advice and just keep my head down and soldier forward until this nightmare (hopefully) runs its course. Very frustrating.

On a positive note, after 3 months my "arthritis flare" disappeared as suddenly as it came on. That leaves me wondering if what I had was actually due to inflamed nerves and a partial paralysis of my legs. The pain is all but gone and my pelvis, hips and knees are moving freely, which they haven't done since mid March.

The neurologist called back. I'm scheduled for an EEG this afternoon.