EEG came back normal.

Continued updates
 

Even though this thread seems to be quite inactive, I'll keep posting for awhile yet. Truly, my experience would have been far worse without this forum. We took the dog for her annual vet check yesterday, and had some interesting conversation with the veterinarian. She and her entire staff do take the pre-exposure prophylaxis rabies vaccine. She has known people who have had serious adverse reactions to the post exposure prophylaxis. When I asked how they fared in the long run, she said they all got better, but that it took a long, long time. As for my situation, I'm very glad my EEG was normal. The severity of the sleep siezure activity has lessened over the last week, although not completely gone. I've been trying to be more careful with my sleep routine...no TV or computer after supper, and about an hour of quiet time in a dimly lit room before bed. Don't know if that's what's helping, or if it's just simply the waxing and waning of the post vaccination symptoms. Over all I'm feeling physically, psychologically and emotionally stronger. It's good not to be in the grips of the fear, anxiety, depression, insomnia, fatigue, pain, and brain fog that characterized the first few months of this saga. (Now 6 1/2 months out from bite, about 5 1/2 months out from completing vaccine series.)

Still having muscle jerks and body vibrating as I fall asleep, maybe every 10 days or so. It's really awful. Today a bit more concerned because after last night I have a slight headache and a low grade temp. of 99.4 F, and again I'm anxious over this (terrified actually) but then I do tend to be an easily upset, sensitive person. I know ATXman's last generous post was 2.5 years out from his vaccination, but it would sure be good to hear from him again regarding how he's doing and that he's still alive.

Post rabies vaccine reaction 3 months later
 

I too have suffered for over 3 months with post rabies reaction.

Welcome, Trippin2, (to what thankfully is a small exclusive group of people.) Hope that reading this forum has been helpful to you. The mild headache and fever turned out to be nothing, but after almost 7 months of bizarre post vaccination symptoms it is difficult not to be a bit paranoid and hyper aware of any little health glitch. The siezures seem to be lessening in duration and intensity. Every time something happens, I hope that it's some kind of healing crisis and that this nightmare will be over. Patience.....patience.

hi
 

7 months? 2 years and 2 EEGs later i still havent recovered..before this happened i was a 35 year old in the prime of my youth and i had never fallen sick for like 20 years...now i cant walk properly, i cant lift anything, my muscles twitch randomly all over my body (including face)....i have lost muscle tone on all 4 limbs...i slur at times...i make typing mistakes and man the tinnitus is unbearable

Help1980, so sorry to read that you are still having so much trouble. So, what do the doctors tell you about this mess? I didn't get any kind of commentary from the neurologist after the normal EEG, just a call from the office staff telling me the EEG was normal. The last thing the neurologist actually said to me was, "You really need to calm down, you will live." It seems at a certain point we've all been written off as over stressed. I've had 20 good days in a row as of today (I consider it a good day when all that happens is the muscle jerks as I fall asleep.) Still tire easily and don't have a lot of endurance. My gait has normalized, but there's still quite a bit of pain from the knees down with any kind of weight bearing.

Did you see where Alex had ALS ( Lou Gehrigs) from the vaccine?! I am scared to death this is what I have. I have numb tongue trouble swallowing weak muscles and pain help

Just returned from our daughter's wedding in another state. An emotion charged event (good emotion!) Didn't know how I would cope with travel, stress, physical taxation, etc. Managed through the rehearsal, rehearsal dinner, wedding ceremony (managed my duties with the unity candle without setting anything or anyone on fire) and danced the night away at the reception on my herky-jerky vaccine damaged knees and legs, determined to celebrate the good in life. Left the reception at 11:30 P.M., in bed by 1:00 A.M., 2:30 A.M. awakened by stiffening muscles and siezure activity. This problem does seem to be aggravated by stress and over exhertion. Not fun, but here I sit, O.K. for the moment, and I wouldn't give up a moment of the weekend for anything.

trippin2, have you been seen by a neurologist? All of us have different physiologies and therefore may be affected differently by the vaccine. The fear is truly awful. If I seem to bruise a bit easily I wonder if the vaccine has affected my bone marrow...might it be leukemia? If my legs seem a bit puffy from fluid retention I wonder if the vaccine has affected my kidneys. Fortunately I can look back on my most recent blood work and be somewhat reassured. Even though I've expressed some frustration with my neurologist, she did do blood work to rule out autoimmune disease and restless legs syndrome. Both came back negative. Even though we may be frustrated with the medical world at times, the hard evidence of such tests is valuable. Rabies is a neurological disease. Rabies vaccine is neurologically modulated, therefore we have neurological symptoms. It could be that many of our symptoms could be from random inflammation of various nerves. The report of ALS, and the report of symptoms making a dramatic return after 8 years are both very unsettling (and frightening) but each of us need to keep questioning and advocating and pressing for answers. Nobody on this forum can give medical advice, but ATXman's suggestions of good solid nutrition, extra vitamin D3, and adequate rest and careful exercise all bear merit. I also think B complex vitamins are very important. All of us will probably recover at different rates, and to different degrees. No doubt, this stinks, but it beats actually getting rabies. Hoping the best for you, and all of us.