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Back Again 😭
Well, after MANY MONTHS (8 exactly) of being symptom free and enjoying life, I have had a bad flare again
Muscle spasms, tingling, numbness in arms and tongue. All the old fears are coming back (MS, ALS) so rushing to neuro as fast as I can. Two things I noticed- flare came back after I stopped working out for two weeks AND after I flew on an airplane. Not sure if this is a coincidence! I will keep my head up and take care of business. Getting another MRI and also exam from my neuro I was bitten exactly a year ago March 31 2017, a terrible year. The one good thing that has come from all of this is it gave me the strength to get out of my abusive relationship I was in and make some good life changes Bat bite, I’m thinking of you. |
Thanks for the welcome!
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Thanks again for the support and I'm hoping we all get through this! |
trippin2, please let us know how you're doing. Hope the relapse/flare is mild and brief!
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16 months...
I seem to be on the same schedule as ATX_man...exactly 16 months out and I'm in agony from a flare up. Legs...So. Much. Pain. in the legs and they just don't want to move. Did 20 gentle minutes on the stationary bike, crying all the way, literally. So frustrated. I'm determined to get better or die trying. Thank goodness and the Good Lord it's only the legs and not the siezures et al. Thank goodness for all who have posted here.
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Better
The flare lasted about 10 days. Much better again and working back to a higher activity level.
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This is a fascinating thread. It proves that chemical poisoning (for whatever reasoning) can affect many people in a multitude of ways. I have always suspected that the allergy shots and prescription/over the counter drugs for over 40 years have contributed to my PN. But I know there will never be a way to prove it so it is what it is.
Batbite, your contribution here is essential and informative. Hang in there, keep fighting and get out an do as much physical activity as you can stand. So far that seems to really help me and my minor symptoms.:) |
Oh no!
It's 1:45 A.M. 7/6/2018 as I write this. Neurological symptoms are back. Anxiety, insomnia, tight muscles all through body, shaking, feeling like I could be having a mild siezure again. Hope to post again later with some better news. Three days ago I took my first walk outside in 15 months, all the way around one block, with no problems with the legs. Not much, but for me...huge. Now this. It's so scary. I'm trying to be logical and reason this out...very hot weather, more physical exhertion, maybe I've released more neurotoxin from the vaccine from my tissues into my bloodstream and system. And of course, there's the nagging thought of vaccine failure and the virus finally reaching your brain. You begin to wonder if you will ever truly be rid of the lurking fears.
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Sorry for "micro-posting" but
I'm an anxious mess again. I do tend to become anxious easily. Today I walked around the block again...made it, but the left leg was slightly problematic, not really bad. Tried to take a nap this afternoon, but the myoclonus is back too, and jerked me awake every time I began to drift off. Doing something I promised myself I wouldn't and looking up sites on rabies, rabies case studies, rabies incubation times.....on and on and on driving myself crazy. I keep coming back to the same conclusion; unless I develop a raging fever and encephalitis/meningitis symptoms, just keep plowing forward. If anything bad happens at this point, there's nothing to be done anyway...what a comforting thought that is! But at least it sets my psyche into "the only way is forward, don't let this paralyze you psychologically again" mode. This experience surely brings home the point of what a precious gift each day is. Today's date; 7/7/18. Again, so thankful for this forum.
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Hang In There!
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Thank you!
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