Originally Posted by oblivionrpg (Post 1137837)

Oh man, that is so like me. Right now, I am sitting in front of my pc and muscles in my right leg are twitching a bit and the leg is a tense a bit. Also my fingers are a bit clumsier and rigid I would say. It comes and goes. When I had the rabies shot it was so stressfull time. I was constantly thinking if I have rabies and if the shots will save me. I think that this kind of psychological trauma is more harmfull to the CNS and whole body than any kind of shot...

Originally Posted by oblivionrpg (Post 1137837)

Oh man, that is so like me. Right now, I am sitting in front of my pc and muscles in my right leg are twitching a bit and the leg is a tense a bit. Also my fingers are a bit clumsier and rigid I would say. It comes and goes. When I had the rabies shot it was so stressfull time. I was constantly thinking if I have rabies and if the shots will save me. I think that this kind of psychological trauma is more harmfull to the CNS and whole body than any kind of shot...

Originally Posted by Albertakewl (Post 1137951)

Hope you get a bit better soon, or dr might find out what's wrong first. I don't have much hope with the drs though, they think I'm crazy for blaming the vaccine. But I was fine before this..

Do you find your symtoms qorse at night or during the day ? I find when I relax so whenever I get a chance to or at bed time. It's
Worse for me.

Originally Posted by oblivionrpg (Post 1137972)

It really depends. But I would say it stays the same during the day. Just this nagging feeling.. And tonight I woke up again with tingling in my hand. At first I thout I just laid too long on it but when I shook it, my other hand and my leg started tingling too.. My body is doing what it wants it seems...

Originally Posted by Albertakewl (Post 1137664)

There are some that has gotten better. Some of my symtoms have seemed to disapeared but new ones have shown up and gotten better or come and go. I had an emg done on all limbs and everything come back clean for me except for pinched nerve in one arm and carpel tunnel in the other. The dr knows there is somthing wrong but not sure what. I've had aN mri of my head and it
Come back good. They want an mri of my neck now and not sure if they want to rescan my head again. To look for ms. I have my on my right shin. Almost like cramping a lot now. And maybe pain in the joint still in my thumb. It's very bothersome . But I've been dealing with this for 8 months now. I've
Stressed less about this now, then this first happened. I have scsred. Not so much now. I still notice my left side is more numb then my right and I noticed
I still twitch and jerk thru out the day too .. I also take viatmins . I don't think they help .

Originally Posted by ATX_Man (Post 1138048)

Would you say you are getting better overall?

I wouldn't retest for MS unless your Dr thinks it is necessary because of the contrast/heavy metal.

From what I have read it's doubtful you have MS because it doesn't seem to follow what you are describing.

Unless your symptoms stay in one area or you are having visual or balance issues I would not worry about MS.

There are over 15 million Americans with some form of peripheral neuropathy... I am guessing that number is low because most folks just live with it.

Originally Posted by oblivionrpg (Post 1138094)

For me it travels all around. Any limb at any time. Right now my abs are twitching and there is slight weakness in my right tigh. But my weakness is just perceived. No keys dropping or trouble standing up or anything like that.
What I have noticed with my hands is that the big nerve (ulnar?) under the biceps hurts when I extend/strain the hand and put palm perpendicular to the arm (like Neo stopping the bullets if you know what I mean :)). Also I had a few hour long pain inside my elbow. I think it must be connected to the nerve system but the EMG was perfectly fine according to the doctor.
Worst is that nobody takes me seriously any more. My GF says not to think about it, that I am hypochondriac, but it is kind of hard. But you know how it is....

Originally Posted by Albertakewl (Post 1138082)

The dr wanted to retest for ms again, but I think she is waiting for the lady that did the emg to send the letter to her . She didn't find any neuropathy when doing the emg. But i no that small fiber neuropathy doesn't usally show on an emg and somtimes it takes 3
Years or more to figure it all out from what I read about other people expeirance. The emg lady wants to do an mri on my neck but that only does the top half of the body. Not sure why not the rest of the back. My timgling is everywhere and that comes and goes at times

I find myself getting better somedayz but then other days. I'm back to square
One. The twitxhing and jerking is still around. Somdays I don't have many symtoms and feel good.

Do you notice your symtoms are the same or do you get new ones,? And do you still have the twitxhing and jerking?!

Originally Posted by ATX_Man (Post 1138106)

Yep same here.

Moves around and EMG was fine.

My wife was supportive but through that and the depression I know she got tired of hearing about it.

I ended up starting a body journal about what I did and ate, exercised plus documented any issues throughout the day.

It was somewhat therapeutic documenting what was going on, for finding patterns and helped with Dr Office visits.

Outside of my wife people knew I was unwell because I lost weight (depression) and withdrew from social interactions but I didn't share it with any friends and family.

I did see a counselor which helped talk through some of it.

Anyway you sound like you went through the same thing I did.

Keep your chin up, I am convinced you will get better. :)



No I got new ones in the first 4-6 months.

Literally was wondering what else was going to happen on a daily basis.

I again would recommend staying away from an MRI with contrast.

Wgphat I have learned through this is to stay away from pills, vaccines and Drs unless necessary.

From what you are saying you don't sound like MS at all.

I was worried about MS at the beginning too but my Neuro told me I don't have it when she did an EMG and physical exam. She said an MRI would be a waste at that point.

Even though she thought I was a hypochondriac which helped me dismiss what she was saying I am convinced she nailed that on the head.

My fear of MS has faded to almost nill the more I read about symptoms and how it presents itself.

Unilaterally, one area and normally with balance and/or vision issues on the first flare.

Hang in there! Remember what I said before... Measure your progress in years and months and not days.

Originally Posted by oblivionrpg (Post 1138094)

For me it travels all around. Any limb at any time. Right now my abs are twitching and there is slight weakness in my right tigh. But my weakness is just perceived. No keys dropping or trouble standing up or anything like that.
What I have noticed with my hands is that the big nerve (ulnar?) under the biceps hurts when I extend/strain the hand and put palm perpendicular to the arm (like Neo stopping the bullets if you know what I mean :)). Also I had a few hour long pain inside my elbow. I think it must be connected to the nerve system but the EMG was perfectly fine according to the doctor.
Worst is that nobody takes me seriously any more. My GF says not to think about it, that I am hypochondriac, but it is kind of hard. But you know how it is....