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ATX_Man 12-11-2014 03:56 PM

Quote:

Originally Posted by Albertakewl (Post 1112424)
But wouldn't the tjngling still cause us to be paralyzed over time?

No.

If it's small fiber neuropathy it might cause a loss of sensation.

There are different types of nerves in your body.

Trust me I was in your shoes over a year ago.

My wife and I live in a 3 story home and I was thinking we might have to move because at some point I might be in a wheelchair. I was also terrified of being a burden to my wife.

Obviously that is not the case... I can still run and walk long distances.

Take a deep breath... I know the hell you are in. It's the unknown and the things that might happen next.

It's terrifying.

You will either get better and resolve or you will adjust to your issues and over time your worry about them crippling you will fade.

Quote:

Originally Posted by Albertakewl (Post 1112422)
I really wondering.. I'm going to seek help so I don't end up paralyzed over this. But am waiting for public health to contact me. I no if u search the vaccine and gbs. It's pretty popular. And are u stuck with tingling to?

Don't cherry pick things when you read them.

GBS is not a common diagnosis... 1 in 1,000,000 per year.

Also GBS is rapidly progressive... It's not something you have a mild case of and it waxes and wanes.

Unless you are stumbling over your own feet when walking or can't grasp a pen or your keys you probably don't have it.

Albertakewl 12-11-2014 04:54 PM

Quote:

Originally Posted by ATX_Man (Post 1112439)
No.

If it's small fiber neuropathy it might cause a loss of sensation.

There are different types of nerves in your body.

Trust me I was in your shoes over a year ago.

My wife and I live in a 3 story home and I was thinking we might have to move because at some point I might be in a wheelchair. I was also terrified of being a burden to my wife.

Obviously that is not the case... I can still run and walk long distances.

Take a deep breath... I know the hell you are in. It's the unknown and the things that might happen next.

It's terrifying.

You will either get better and resolve or you will adjust to your issues and over time your worry about them crippling you will fade.



Don't cherry pick things when you read them.

GBS is not a common diagnosis... 1 in 1,000,000 per year.

Also GBS is rapidly progressive... It's not something you have a mild case of and it waxes and wanes.

Unless you are stumbling over your own feet when walking or can't grasp a pen or your keys you probably don't have it.

Oh but isn't tingling all over body bad and cause paralyzation ? And have u talked with anyone that had this for a few years?

I went to the eye drs and they said my eyes are burning cause they are dry.

mrsD 12-11-2014 05:25 PM

Dry eyes may be a sign of Sjogren's syndrome. This affects women more than men, and is autoimmune triggered. It causes neuropathy also.
http://www.mayoclinic.org/diseases-c...n/con-20020275

Tingling is a sensory symptom. When people become paralyzed, it is an attack on the motor neurons which cause movement.
These are two different nerve systems. The motor neurons have insulation on the long axons that carry signals, and this is called myelin. The myelin is not present on all sensory fibers.

Here is a link explaining the types of fibers of nerves that send impulses from the periphery to the brain (sensory):
http://faculty.washington.edu/chudler/cv.html

The majority of sensory fibers do not have myelin (if they do it is less than a motor neuron has). But some have a little. Myelin is shown in yellow in the link chart.
Autoimmune antibodies attack myelin and interfere with signals in those nerves.

There are also special clusters of nerves in a ganglion along the spine just outside the spinal cord. This ganglion is called the dorsal roots. Antibodies and toxins can attack there also damaging signals from the body to the brain.

This explains dorsal roots:
https://faculty.washington.edu/chudler/spinal.html

Most people can repair damages to both areas of neurons. But some genetically lack the enzymes to do this. Research in this area is ongoing now, on how to help those who cannot repair their damages when they happen. Those that can repair do take some time to do so.

Albertakewl 12-11-2014 06:24 PM

Quote:

Originally Posted by mrsD (Post 1112455)
Dry eyes may be a sign of Sjogren's syndrome. This affects women more than men, and is autoimmune triggered. It causes neuropathy also.
http://www.mayoclinic.org/diseases-c...n/con-20020275

Tingling is a sensory symptom. When people become paralyzed, it is an attack on the motor neurons which cause movement.
These are two different nerve systems. The motor neurons have insulation on the long axons that carry signals, and this is called myelin. The myelin is not present on all sensory fibers.

Here is a link explaining the types of fibers of nerves that send impulses from the periphery to the brain (sensory):
http://faculty.washington.edu/chudler/cv.html

The majority of sensory fibers do not have myelin (if they do it is less than a motor neuron has). But some have a little. Myelin is shown in yellow in the link chart.
Autoimmune antibodies attack myelin and interfere with signals in those nerves.

There are also special clusters of nerves in a ganglion along the spine just outside the spinal cord. This ganglion is called the dorsal roots. Antibodies and toxins can attack there also damaging signals from the body to the brain.

This explains dorsal roots:
https://faculty.washington.edu/chudler/spinal.html

Most people can repair damages to both areas of neurons. But some genetically lack the enzymes to do this. Research in this area is ongoing now, on how to help those who cannot repair their damages when they happen. Those that can repair do take some time to do so.


So if I have tingling on all my body. And I didn't have sharp stambing pain in the joins down now that is only in the hips and hands and lower arms. Would that cause paralyzed?

mrsD 12-11-2014 06:32 PM

Weakness and numbness are more drastic symptoms.

Being paralyzed is a dramatic situation. The muscles lose their
ability to work and that is a consequence of paralysis.

Tingling and other sensory symptoms may precede a GBS, but it typically moves quickly to paralysis of muscles. It is not common.
You would have it already if you were to have it all.

Albertakewl 12-11-2014 10:14 PM

Quote:

Originally Posted by mrsD (Post 1112463)
Weakness and numbness are more drastic symptoms.

Being paralyzed is a dramatic situation. The muscles lose their
ability to work and that is a consequence of paralysis.

Tingling and other sensory symptoms may precede a GBS, but it typically moves quickly to paralysis of muscles. It is not common.
You would have it already if you were to have it all.

Ok so my chances of having paralysis is slim. ? Usually happens with gbs?

glenntaj 12-12-2014 08:29 AM

Take a look at:
 
http://neuromuscular.wustl.edu/antibody/gbs.htm

There are differing presentations of Guillain Barre syndrome, and a number can start out with sensory symptoms and then progress to motor ones. There are also vary degrees of severity in a Guillain Barre "attack"--some do not progress to paralysis.

Moreover, as Chronic Inflammatory Demyelinating Polyenuropathy (CIDP) is often considered the slower onset version of Guillain Barre, sometimes with a more subacute onset the two may be hard to distinguish:

http://neuromuscular.wustl.edu/antib...html#cidpacute

There is also a variation: "acute small fiber neuropathy" that confines itself to sensory symptoms--even rarer than "classic" Guillain Barre" (it has been speculated this is what I may have experienced:

http://neuromuscular.wustl.edu/senso...html#sfpnacute

Albertakewl 12-12-2014 10:30 AM

[QUOTE=glenntaj;1112569]http://neuromuscular.wustl.edu/antibody/gbs.htm

There are differing presentations of Guillain Barre syndrome, and a number can start out with sensory symptoms and then progress to motor ones. There are also vary degrees of severity in a Guillain Barre "attack"--some do not progress to paralysis.

Moreover, as Chronic Inflammatory Demyelinating Polyenuropathy (CIDP) is often considered the slower onset version of Guillain Barre, sometimes with a more subacute onset the two may be hard to distinguish:

http://neuromuscular.wustl.edu/antib...html#cidpacute

There is also a variation: "acute small fiber neuropathy" that confines itself to sensory symptoms--even rarer than "classic" Guillain Barre" (it has been speculated this is what I may have experienced:

http://neuromuscular.wustl.edu/senso...html#sfpnacute[/QUOTE


Wow so it can still happen. It's just
Very slow at doing so. Least I no you can get help for it. I'm going to ask to get tested for it because I do have some of the symptoms of it. And it doesn't hurt .. I'm just thankful healthcare is covered here but now it's time to find a dr that will help me..
Glentaj re u still experiencing all the issue that many years ago?

mrsD 12-12-2014 10:55 AM

Alberta, you need to understand something. Most PNs are chronic and long lasting. I've had mine since I was 30 and I am now 68. At my age now my arthritis is far more disabling than the PN. Much of my PN was due to hypothyroidism initially.

Not many people progress dramatically. The hereditary ones (Charcot Marie Tooth) are the worst IMO.

Testing for GBS is not very accurate and may include a spinal tap. In the end it is a doctor's opinion whether you have it or not, based on your symptom presentation.

When people get stressed and anxious, there can be changes in the acid/base content of the blood. This is the pH changes.
The body buffers acids and bases to keep them in a 7 neutral range, but hyperventilating or consuming lots of bicarbonate can cause changes in the blood and this results in paresthesias.,
like the tingling you experience. These may come and go and depend on your blood chemistries at various times. These paresthesias may not be real PN but just mimic it.

Keeping calm, avoiding hyperventilating during anxiety, therefore is very important to stabilizing things. Knowledge is power and learning about how your nerves work, and how your body heals is what I try to share with posters here so they can learn and reduce fear and anxiety and therefore become more
in control.

So make sure you read the links I share here. You may have to read them more than once. Do a little bit each day. Doctors will never help you this way...they keep their secrets as a power thing. You will learn that many times doctors will do more grief than you started with. So it is important to do the learning curve so you can choose whether to do a specific invasive test or treatment or not.

Albertakewl 12-12-2014 11:51 AM

Quote:

Originally Posted by mrsD (Post 1112601)
Alberta, you need to understand something. Most PNs are chronic and long lasting. I've had mine since I was 30 and I am now 68. At my age now my arthritis is far more disabling than the PN. Much of my PN was due to hypothyroidism initially.

Not many people progress dramatically. The hereditary ones (Charcot Marie Tooth) are the worst IMO.

Testing for GBS is not very accurate and may include a spinal tap. In the end it is a doctor's opinion whether you have it or not, based on your symptom presentation.

When people get stressed and anxious, there can be changes in the acid/base content of the blood. This is the pH changes.
The body buffers acids and bases to keep them in a 7 neutral range, but hyperventilating or consuming lots of bicarbonate can cause changes in the blood and this results in paresthesias.,
like the tingling you experience. These may come and go and depend on your blood chemistries at various times. These paresthesias may not be real PN but just mimic it.

Keeping calm, avoiding hyperventilating during anxiety, therefore is very important to stabilizing things. Knowledge is power and learning about how your nerves work, and how your body heals is what I try to share with posters here so they can learn and reduce fear and anxiety and therefore become more
in control.

So make sure you read the links I share here. You may have to read them more than once. Do a little bit each day. Doctors will never help you this way...they keep their secrets as a power thing. You will learn that many times doctors will do more grief than you started with. So it is important to do the learning curve so you can choose whether to do a specific invasive test or treatment or not.

I'm trying to learn as much as possible and I thank you guys so much for help me with this.. Because drs hasn't. They are investigating. I just wanna no that I'll be okay.. And learn no more about this problem.. Iam having a hard time
Understanding ..


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