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Old 12-11-2014, 04:54 PM #1
Albertakewl Albertakewl is offline
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Quote:
Originally Posted by ATX_Man View Post
No.

If it's small fiber neuropathy it might cause a loss of sensation.

There are different types of nerves in your body.

Trust me I was in your shoes over a year ago.

My wife and I live in a 3 story home and I was thinking we might have to move because at some point I might be in a wheelchair. I was also terrified of being a burden to my wife.

Obviously that is not the case... I can still run and walk long distances.

Take a deep breath... I know the hell you are in. It's the unknown and the things that might happen next.

It's terrifying.

You will either get better and resolve or you will adjust to your issues and over time your worry about them crippling you will fade.



Don't cherry pick things when you read them.

GBS is not a common diagnosis... 1 in 1,000,000 per year.

Also GBS is rapidly progressive... It's not something you have a mild case of and it waxes and wanes.

Unless you are stumbling over your own feet when walking or can't grasp a pen or your keys you probably don't have it.
Oh but isn't tingling all over body bad and cause paralyzation ? And have u talked with anyone that had this for a few years?

I went to the eye drs and they said my eyes are burning cause they are dry.
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Old 12-11-2014, 05:25 PM #2
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Lightbulb

Dry eyes may be a sign of Sjogren's syndrome. This affects women more than men, and is autoimmune triggered. It causes neuropathy also.
http://www.mayoclinic.org/diseases-c...n/con-20020275

Tingling is a sensory symptom. When people become paralyzed, it is an attack on the motor neurons which cause movement.
These are two different nerve systems. The motor neurons have insulation on the long axons that carry signals, and this is called myelin. The myelin is not present on all sensory fibers.

Here is a link explaining the types of fibers of nerves that send impulses from the periphery to the brain (sensory):
http://faculty.washington.edu/chudler/cv.html

The majority of sensory fibers do not have myelin (if they do it is less than a motor neuron has). But some have a little. Myelin is shown in yellow in the link chart.
Autoimmune antibodies attack myelin and interfere with signals in those nerves.

There are also special clusters of nerves in a ganglion along the spine just outside the spinal cord. This ganglion is called the dorsal roots. Antibodies and toxins can attack there also damaging signals from the body to the brain.

This explains dorsal roots:
https://faculty.washington.edu/chudler/spinal.html

Most people can repair damages to both areas of neurons. But some genetically lack the enzymes to do this. Research in this area is ongoing now, on how to help those who cannot repair their damages when they happen. Those that can repair do take some time to do so.
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Old 12-11-2014, 06:24 PM #3
Albertakewl Albertakewl is offline
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Quote:
Originally Posted by mrsD View Post
Dry eyes may be a sign of Sjogren's syndrome. This affects women more than men, and is autoimmune triggered. It causes neuropathy also.
http://www.mayoclinic.org/diseases-c...n/con-20020275

Tingling is a sensory symptom. When people become paralyzed, it is an attack on the motor neurons which cause movement.
These are two different nerve systems. The motor neurons have insulation on the long axons that carry signals, and this is called myelin. The myelin is not present on all sensory fibers.

Here is a link explaining the types of fibers of nerves that send impulses from the periphery to the brain (sensory):
http://faculty.washington.edu/chudler/cv.html

The majority of sensory fibers do not have myelin (if they do it is less than a motor neuron has). But some have a little. Myelin is shown in yellow in the link chart.
Autoimmune antibodies attack myelin and interfere with signals in those nerves.

There are also special clusters of nerves in a ganglion along the spine just outside the spinal cord. This ganglion is called the dorsal roots. Antibodies and toxins can attack there also damaging signals from the body to the brain.

This explains dorsal roots:
https://faculty.washington.edu/chudler/spinal.html

Most people can repair damages to both areas of neurons. But some genetically lack the enzymes to do this. Research in this area is ongoing now, on how to help those who cannot repair their damages when they happen. Those that can repair do take some time to do so.

So if I have tingling on all my body. And I didn't have sharp stambing pain in the joins down now that is only in the hips and hands and lower arms. Would that cause paralyzed?
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Old 12-11-2014, 06:32 PM #4
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Lightbulb

Weakness and numbness are more drastic symptoms.

Being paralyzed is a dramatic situation. The muscles lose their
ability to work and that is a consequence of paralysis.

Tingling and other sensory symptoms may precede a GBS, but it typically moves quickly to paralysis of muscles. It is not common.
You would have it already if you were to have it all.
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Old 12-11-2014, 10:14 PM #5
Albertakewl Albertakewl is offline
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Originally Posted by mrsD View Post
Weakness and numbness are more drastic symptoms.

Being paralyzed is a dramatic situation. The muscles lose their
ability to work and that is a consequence of paralysis.

Tingling and other sensory symptoms may precede a GBS, but it typically moves quickly to paralysis of muscles. It is not common.
You would have it already if you were to have it all.
Ok so my chances of having paralysis is slim. ? Usually happens with gbs?
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Old 12-12-2014, 08:29 AM #6
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Default Take a look at:

http://neuromuscular.wustl.edu/antibody/gbs.htm

There are differing presentations of Guillain Barre syndrome, and a number can start out with sensory symptoms and then progress to motor ones. There are also vary degrees of severity in a Guillain Barre "attack"--some do not progress to paralysis.

Moreover, as Chronic Inflammatory Demyelinating Polyenuropathy (CIDP) is often considered the slower onset version of Guillain Barre, sometimes with a more subacute onset the two may be hard to distinguish:

http://neuromuscular.wustl.edu/antib...html#cidpacute

There is also a variation: "acute small fiber neuropathy" that confines itself to sensory symptoms--even rarer than "classic" Guillain Barre" (it has been speculated this is what I may have experienced:

http://neuromuscular.wustl.edu/senso...html#sfpnacute
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Old 12-12-2014, 10:30 AM #7
Albertakewl Albertakewl is offline
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[QUOTE=glenntaj;1112569]http://neuromuscular.wustl.edu/antibody/gbs.htm

There are differing presentations of Guillain Barre syndrome, and a number can start out with sensory symptoms and then progress to motor ones. There are also vary degrees of severity in a Guillain Barre "attack"--some do not progress to paralysis.

Moreover, as Chronic Inflammatory Demyelinating Polyenuropathy (CIDP) is often considered the slower onset version of Guillain Barre, sometimes with a more subacute onset the two may be hard to distinguish:

http://neuromuscular.wustl.edu/antib...html#cidpacute

There is also a variation: "acute small fiber neuropathy" that confines itself to sensory symptoms--even rarer than "classic" Guillain Barre" (it has been speculated this is what I may have experienced:

http://neuromuscular.wustl.edu/senso...html#sfpnacute[/QUOTE


Wow so it can still happen. It's just
Very slow at doing so. Least I no you can get help for it. I'm going to ask to get tested for it because I do have some of the symptoms of it. And it doesn't hurt .. I'm just thankful healthcare is covered here but now it's time to find a dr that will help me..
Glentaj re u still experiencing all the issue that many years ago?
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