Would you say you are getting better overall?

I wouldn't retest for MS unless your Dr thinks it is necessary because of the contrast/heavy metal.

From what I have read it's doubtful you have MS because it doesn't seem to follow what you are describing.

Unless your symptoms stay in one area or you are having visual or balance issues I would not worry about MS.

There are over 15 million Americans with some form of peripheral neuropathy... I am guessing that number is low because most folks just live with it.

The dr wanted to retest for ms again, but I think she is waiting for the lady that did the emg to send the letter to her . She didn't find any neuropathy when doing the emg. But i no that small fiber neuropathy doesn't usally show on an emg and somtimes it takes 3
Years or more to figure it all out from what I read about other people expeirance. The emg lady wants to do an mri on my neck but that only does the top half of the body. Not sure why not the rest of the back. My timgling is everywhere and that comes and goes at times

I find myself getting better somedayz but then other days. I'm back to square
One. The twitxhing and jerking is still around. Somdays I don't have many symtoms and feel good.

Do you notice your symtoms are the same or do you get new ones,? And do you still have the twitxhing and jerking?!

For me it travels all around. Any limb at any time. Right now my abs are twitching and there is slight weakness in my right tigh. But my weakness is just perceived. No keys dropping or trouble standing up or anything like that.
What I have noticed with my hands is that the big nerve (ulnar?) under the biceps hurts when I extend/strain the hand and put palm perpendicular to the arm (like Neo stopping the bullets if you know what I mean ). Also I had a few hour long pain inside my elbow. I think it must be connected to the nerve system but the EMG was perfectly fine according to the doctor.
Worst is that nobody takes me seriously any more. My GF says not to think about it, that I am hypochondriac, but it is kind of hard. But you know how it is....

Is that the nerve near the funny bone? When I had the nerve conduction test 2 months ago , I had a pinched nerve with a nerve by the funny bone. And then carpel tunnel on the right hand. Funny thing is. I wonder if this is all connected to these problems? Some of my fingers were sore when pilling back. And same with my left leg, for a long time. My toe and couple other toes, something hurt when stretched?

Just curious, did you guys have a nerve conduction test or the emg where they stick the needle in ur muscle?

Took a booster shot of anti-rabies (Rabipur 2 shots) after playing with a pet dog (the dog did not attack or bite me but there was a cut with some bleeding). Last shot was on 26th April.

Nine days later, on 5th May, just after midnight, I had a tonic-clonic convulsion just after falling asleep. I have no personal or family history of seizures (febrile or epileptic)
I had venous brain MRI done the next morning which was normal. In the evening I had a lot of bloodwork and an EEG done and both were normal. Neuro said that Rabipur could lead to ADEM but since MRI was clear that didn’t seem to be the case.
The very next day following the seizure, I started experiencing humming/buzzing sound and slight giddiness whenever I would get up. I also noticed that this would happen whenever I would get up after lying down any time of the day. After a week, the throbbing went away on its own but the humming has since become permanent.
I went to my ENT when the humming and giddiness started and he diagnosed it as Tinnitus. He also did an Audiometry test which showed mild hearing loss, especially in the right ear. The ENT said that Tinnitus + giddiness could be either because of an infection, or because of DAMAGE TO THE CRANIAL NERVE or idiopathic.

Around 8-10 days after the seizure (about 17-19 days after the vaccine), I started to have extreme back pain out of nowhere. The neuro asked me to get an X-ray of the dorsal spine which was normal. I did a 5 day course of tramadol when the back pain went away but it came back in full force after I finished the course. It too has become permanent (it varies in intensity from day to day).
A week after the seizure, I also started having pins and needles sensations in my legs. Initially, I would experience only this when I was sitting. I also started having muscle twitches randomly a few times a day. One fine day (not very sure when), I woke up to find my left hand fully asleep. Since then the tingling/pins and needles/numbness increased a lot. I also started getting A LOT muscle twitching all over my body.
In the last 1-2 weeks, the numbness/tingling in my hands and legs has increased a lot. I also get shooting pains in my hand/leg that come and go away. Whenever, I pick something up, my hands start to pain immediately. Climbing stairs (only 2-3 stories) leads to a lot of leg cramping, tingling, discomfort and shooting pain. The rigidity in my hands causes difficulty in typing (for example) and makes it very difficult for me to lift anything for an extended period of time. I have also rarely experienced tingling on the right side of my forehead. I also wake up with a lot of numbness in my hands everyday. In the last 2 days, I have noticed a lot of numbness in my right leg and it moves in an “irregular” fashion when I walk.

Since then, I have tried to find whether the vaccine had anything to do with the seizure and the symptoms that I have suddenly started experiencing. I scoured the VAERS database which records adverse events after vaccine use in the United States. These are reported by public health authorities and physicians. I found 63 cases of seizures in adults (25-44) who had no history of epilepsy or seizures and had their first seizure 0-20 days following RABIPUR. The number of first time convulsions after ALL Rabies vaccines was over 300. Some of those 63 cases also listed tingling in the arms and legs and muscle twitching as symptoms.



My Neuro agrees that I had some sort of autoimmune/hyper immune reaction to the vaccine. He also told me that muscle twitching is a common feature of motor neuron disease but he also clarified that it doesn’t mean that I have it and he wants me to wait and see what happens. However this has scared me a lot. I have also read that tingling, muscle weakness and muscle twitching can be due to CIDP. My family doctor feels I have developed peripheral neuropathy as part of the vaccine reaction and it will take a few months to a year to go away.


I havent done a NCS/EMG and lumbar puncture yet

Can anyone let me know what this sounds like?

Did the your neuro find signs of weakness during his physical exam? Or was it perceived weakness? When my SFN/sensory symptoms hit (and they hit hard), I felt like I had weakness in different parts of my body...but it was my perception of what what happening. I significantly twitched for months on end.

Your family doc seems great and well informed. If I were in your shoes, I'd hold off on a lumbar puncture and maybe schedule the NCS/EMG a few months out. If you start to feel better you can cancel it. I'm sorry that you are experiencing this. It does seem like people who have reactions to vaccines tend to get improvements over time.....or at least the the personal stories that I've read about do.

yup he says its perceived weakness...he too wants to hold off on the spinal tap...did you recover completely? Im scared ****...excuse my language...but its very difficult and strange to have all these symptoms out of nowhere

hello help. I had 3 imovax rabies vaccine, in between sept-oct 2014, I started off with sharp shooting pain (after the 2nd needle), then on to tingling after the 3rd. My back was sore in one spot and still is. I have tingling randomly thru my body. I also feel like I'm wearing something on my
Lower legs and lower arms, I twitch and jerk everywhere. Mostly when I'm
Sitting. I've had a couple good days where I felt. I notice my left side is "asleep" I think I no what u are
Talking about with the viberation . I had that in my lower back a few
Times after having the vaccines. I also notice if I try and fall asleep when I want to take a nap, I can't because and arm or something will jerk. I have seen a few doctors already. And I have had a nct done, which said my nerve were leg teenage nerves? Lol except for my left elbow where they said the nerve was pinched by the funny bone, and then said my right wrist had carpel tunnel. But I don't have the symptoms of that? My pinky a on both hands are
Numb? They first thought I had ms, I had a scan on my head, that come
Back clear. I am waiting for one on my cervical spine. I seen an internist that told me that he thinks it sensory cipd. But the nct said no. Funny thing is then didn't do th 2nd part of it. The dr also figured maybe transverse mylitis . Or a motor nueropathy .I'm finally seeing a neurologist. After a 9 month wait. So we wi see what he says.

Did you do an EMG with your NCS? pls keep me posted on what your doctor says

Yep same here.

Moves around and EMG was fine.

My wife was supportive but through that and the depression I know she got tired of hearing about it.

I ended up starting a body journal about what I did and ate, exercised plus documented any issues throughout the day.

It was somewhat therapeutic documenting what was going on, for finding patterns and helped with Dr Office visits.

Outside of my wife people knew I was unwell because I lost weight (depression) and withdrew from social interactions but I didn't share it with any friends and family.

I did see a counselor which helped talk through some of it.

Anyway you sound like you went through the same thing I did.

Keep your chin up, I am convinced you will get better.

No I got new ones in the first 4-6 months.

Literally was wondering what else was going to happen on a daily basis.

I again would recommend staying away from an MRI with contrast.

Wgphat I have learned through this is to stay away from pills, vaccines and Drs unless necessary.

From what you are saying you don't sound like MS at all.

I was worried about MS at the beginning too but my Neuro told me I don't have it when she did an EMG and physical exam. She said an MRI would be a waste at that point.

Even though she thought I was a hypochondriac which helped me dismiss what she was saying I am convinced she nailed that on the head.

My fear of MS has faded to almost nill the more I read about symptoms and how it presents itself.

Unilaterally, one area and normally with balance and/or vision issues on the first flare.

Hang in there! Remember what I said before... Measure your progress in years and months and not days.