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Old 08-10-2017, 12:18 PM #1
trippin2 trippin2 is offline
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Originally Posted by Batbite24 View Post
trippin2, you say you are now about 3 months out. For me that was the worst time frame post vaccine. From about 2 1/2 months to 4 1/2 months out it was so bad I didn't know if I'd make it, and the possibility of living out whatever was left of my life under those conditions was unthinkable. Then, 4 1/2 to 5 months out I began to feel slow, small improvements. Hopefully this will happen for you, too. I know I'm not "out of the woods" yet, and things could relapse, but I'm far better than I was at 3 months.
I'm glad you're still online and active here on the forum, it's nice to have someone to talk to
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Old 08-10-2017, 04:59 PM #2
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Yes, the forum was (and is) huge for me. Family and friends try to be supportive, but as this drags on and on, you can tell they don't get why you are so fearful every time something happens. They don't get that you withdraw socially because you pretty much look fine, and the doctor said you would be fine. The 3 months that I had a terrible time walking, and was in sooooo much pain, they were concerned, that's very visible. But the rest...it's just as awful. The creepy thing is that a lot of the neurological stuff is the same as rabies symptoms. Understandable I think, that that would strike fear into your heart!
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Old 08-10-2017, 07:16 PM #3
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[QUOTE=Batbite24;1248804]Yes, the forum was (and is) huge for me. Family and friends try to be supportive, but as this drags on and on, you can tell they don't get why you are so fearful every time something happens. They don't get that you withdraw socially because you pretty much look fine, and the doctor said you would be fine. The 3 months that I had a terrible time walking, and was in sooooo much pain, they were concerned, that's very visible. But the rest...it's just as awful. The creepy thing is that a lot of the neurological stuff is the same as rabies symptoms. Understandable I think, that that would strike fear into your heart

I am having muscle twitches all over my body now for a week, now my eye is twitching uncontrollably. My mom and boyfriend have both completely written me off as a hypochondriac and the doctors think I'm nuts too. I'm starting to even doubt myself sometimes until I read these posts. I feel like I'm having a stroke a lot of times because I go numb and it's terrifying
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Old 08-10-2017, 07:19 PM #4
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I hope that people in the future can gain hope from all of these posts and also just doing research online from other vaccines that cause our symptoms. I have a neuro appt tomorrow and he better not tell me it's anxiety
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Old 08-11-2017, 07:51 AM #5
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trippin2, are you or have you considered journaling your experiences and symptoms? Due to what happened to me with the Cipro, I began documenting everything after the rabies vaccine. It helps to have a clear record when you talk to the doctors, and you can look back at a time line of what has happened. At one point the muscles on the front of my neck twitched strongly for weeks, you could see it. I had my husband watch it and his response was "mmmm-hmmmm." He's been pretty good about everything, but doesn't know what to make of it, and I think feels helpless too. Please let us know how your neuro appointment goes. Even if there's nothing to be done but wait this bugger out, it would be nice to be taken seriously. I would also err on the side of caution regarding any invasive testing.
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Old 08-12-2017, 01:01 PM #6
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Quote:
Originally Posted by Batbite24 View Post
trippin2, are you or have you considered journaling your experiences and symptoms? Due to what happened to me with the Cipro, I began documenting everything after the rabies vaccine. It helps to have a clear record when you talk to the doctors, and you can look back at a time line of what has happened. At one point the muscles on the front of my neck twitched strongly for weeks, you could see it. I had my husband watch it and his response was "mmmm-hmmmm." He's been pretty good about everything, but doesn't know what to make of it, and I think feels helpless too. Please let us know how your neuro appointment goes. Even if there's nothing to be done but wait this bugger out, it would be nice to be taken seriously. I would also err on the side of caution regarding any invasive testing.
Hi Batbite,
I ended up with a wonderful neuro yesterday! He listened to me and BELIEVED me about the vaccine! I was so happy I hugged him yesterday. (He also looks like a Kennedy so it's rather pleasant talking to him
He is researching all of my symptoms. He thinks inflammation like all of us and said that none of this is anxiety, post vaccine reactions can and do happen, we are the unlucky few.
It was very encouraging.
I have a couple of things I've noticed. I seem to do worse inside with my air conditioner cranked. (I live in Phoenix and it's the middle of August so it's hard not to have it on full blast) I am much dizzier and my fingers and numbness are worse then.
I have also read a lot of adverse reactions from young women who have had the gardasil shot series. THOUSANDS of girls were sick from this and I wish it was banned. I haven't heard of many girls getting the gardasil vaccine like they were in the 2006-2012 but hope parents don't use this vaccine, it has been proven to be a waste. I hope they have recovered fully as well, they are similar to us and had to go through a whole series, which is always worse
Hope everyone has a good weekend and if anyone wants to talk with me or Batbite please chime in!
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Old 08-12-2017, 01:06 PM #7
trippin2 trippin2 is offline
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Hi Batbite,
I ended up with a wonderful neuro yesterday! He listened to me and BELIEVED me about the vaccine! I was so happy I hugged him yesterday. (He also looks like a Kennedy so it's rather pleasant talking to him
He is researching all of my symptoms. He thinks inflammation like all of us and said that none of this is anxiety, post vaccine reactions can and do happen, we are the unlucky few.
It was very encouraging.
I have a couple of things I've noticed. I seem to do worse inside with my air conditioner cranked. (I live in Phoenix and it's the middle of August so it's hard not to have it on full blast) I am much dizzier and my fingers and numbness are worse then.
I have also read a lot of adverse reactions from young women who have had the gardasil shot series. THOUSANDS of girls were sick from this and I wish it was banned. I haven't heard of many girls getting the gardasil vaccine like they were in the 2006-2012 but hope parents don't use this vaccine, it has been proven to be a waste. I hope they have recovered fully as well, they are similar to us and had to go through a whole series, which is always worse
Hope everyone has a good weekend and if anyone wants to talk with me or Batbite please chime in!
Also Batbite, I am thankful for you. I was bitten by a bat too, so I feel a strong connection to you. I was in Sedona Arizona last weekend and a wild bobcat bit 7 tourists and was positive for rabies a while back so those people are undergoing the series now. I hope they are ok and recovering, I wondered how they were faring from the shots.
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