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Old 04-28-2020, 04:28 AM #1
LakynBerringer90 LakynBerringer90 is offline
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Batbite24 when the people you knew had GBS did their legs feel very heavy? I woke up at 330 with my husband and I had to get up at 430 so I just stayed awake. I felt fine when I woke up laying in bed no tingling no pins and needles but then idk I thought what is going on and I've been having a panic attack I think. It's now 530am.... idk I'm trying to be positive but its wearing off I'm thinking about getting the 3rd vaccine and stopping. This is absolutely terrible. I dont want to die....
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Old 04-28-2020, 09:07 AM #2
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No, it wasn't a matter of "heaviness" in the legs. It was very rapid total paralysis spreading from the feet to the head. Both literally fell down on their faces unable to stand and were brought to the ER just in time to be intubated. I don't think anyone on this forum had GBS as a complication from the rabies vaccine. One of the cases, my husband's cousin, had received the Swine Flu vaccine back in the day, the other was a young lady from our church about five years ago, and I have no idea whether her case was vaccine related or not. Pray, keep in touch with your doctor for making decisions, and let us know how you are doing please.

Re-reading your last post reminds me of some of my journal entries when I was going through it. Deep in the wee hours of the morning, sitting at the dining room table writing because I just didn't know what else to do. Insomnia and anxiety were definitely experienced by many of us.

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Old 04-28-2020, 10:19 AM #3
LakynBerringer90 LakynBerringer90 is offline
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At the PCP now they are going to decide what to doom very scared. My legs feel so heavy I can barely walk I'm trying to tell my mind to just move and it's getting hard
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Old 04-28-2020, 11:29 AM #4
LakynBerringer90 LakynBerringer90 is offline
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How long after the vaccine did the GBS cause paralysis? I just sat with them they think I am having a reaction. They want me to get the 3rd one and if I have more of a reaction then I can not get the 4th. She said if GBS is going to set in then it will be within 4 weeks from the first vaccine. She also said they typically see more GBS with infection weather it be viral or bacterial. They want to keep monitoring me. I told them I have a terrible ringing in my ears too. I don't know if it's just from the stress or what. I feel so stressed it's not even funny. My body just feels so drained because of my thoughts.... when I di the call on Friday if everything is the same or worse what should I tell them? I have never been three this before.... idk... when i held the coyote pup it didnt scratch me it kinda just hung out there I had 2 thorn scratches and a few small ones on my hand the pup laid against them but I just looked at the picture that was taken by my friend and it doesnt even look like the pup touched them.... I'm putting myself threw hell and in the picture it doesnt even look like the pup touched any of the scratches..... idk I'm having a very hard time with all of this..... I included a picture im.so stupid truly am....
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Old 04-28-2020, 01:14 PM #5
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Hi, I've been through a similar path very recently and I think our anxiety does play a role is making things worse. True, our symptoms are scary, but be assured that nothing adverse will happen to you. It may be a long road to normalcy but I believe, we'll be normal in due time. Fight your fear. Indulge yourself in your family so much that you won't be reminded of anything related to the vaccine and its notorious behavior. I too had heaviness in my limbs at times. Not sure if it was weakness though. Whenever u are in doubt, stand on your toes. Even if you can for a moment you are fine. Pins and needles came and went for me. I was sacred, very much, at each and every turn. Now, I began trying to get through my day as normally as I can and I started to believe I'll be alright. I give my regards to Batbite for the support she gives to everyone here.
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Old 04-28-2020, 01:38 PM #6
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Hi Lakynerringer90. I am one of the many on this site who have had the vaccine and one of the unlucky ones who also had an adverse reaction. I had my series of shots back in November 2019 and while I didn't have the side effects you and Batbite have experienced ( I had muscle spasms/aches both legs and dizziness) after each shot. My exposure was a friendly fluffy white cat with big blue eyes, and in reaching out my hand to direct her to a food bowl (believed she may have been a lost stray kitty) felt a quick scratch to the back of my hand. I did wash it off/ f/u with my PCP and she didn't feel I needed the vaccine as it was (a scratch and therefore 'low risk'.. The more I thought about it, I got so scared, since I hadn't actually seen the strike, what if it had been her fangs? So I decided to get the vaccine. Fast forward, within 2 wks after shots were done my side effects worsened ...diarrhea, muscle aches legs and arms, sharp stabbing nerve pains from head to toe at intermittent times as well as ice pick head pains. The worst part is the anxiety and depression. Now 5 months out I've noticed lessening of symptoms. As Batbite said, everyone who goes through this has a different timeline on how long it lasts. You are very young and I pray and hope that once all the shots are done, you will recover quickly. And the biggest thing here is to stop blaming yourself, going over and over what you should or shouldn't have done. Believe me, in the beginning I did that many times. Keep us posted on your recovery.
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Old 04-28-2020, 02:49 PM #7
Batbite24 Batbite24 is offline
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Cute coyote pup! I can see why you wanted to help the little guy out! Don't blame or come down on yourself. Hindsight is 20/20 as they say. We have an American Indian Dog and people often ask, "part coyote?" Definitely not, all domesticated Pre Columbian domesticated dog lines from a Sioux breeder. Back on topic, as you can see you have found a supportive community. We can comfort and encourage, but we all know there is only one way....forward, one foot in front of the other one day at a time. I think we've all found that the more time passes, the anxiety slowly ebbs too. Hang in there and we'll be watching for your updates. If you and your doctors decide to cut the course short, ask if they think doing an antibody titer at some point will tell if you have mounted enough of an immune response. That may go a long way to peace of mind.
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Old 04-28-2020, 04:02 PM #8
LakynBerringer90 LakynBerringer90 is offline
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I'm going to the ER a bigger one. I cant take this anymore I feel I'm having a mental breakdown. The base of my skull hurts so bad my neck hurts I'm having terrible muscle spasms the ringing in my ears is worse than before I'm terrified.... I really am....
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Old 04-28-2020, 04:19 PM #9
Batbite24 Batbite24 is offline
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Prayers. Hope to hear from you soon. Did you get immune globulin along with the rabies vaccine?
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Old 04-29-2020, 06:26 AM #10
LakynBerringer90 LakynBerringer90 is offline
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It's just seems like everything I do is taking more concentration.... I've never felt like this before in my life. The ringing in my ears I dont like..... its scares me..... I feel like something bad is going to happen I know I keep saying that but I'm scared..... I was told by the er doctor to keep drinking 1 gallon of water a day as by my PCP. The er doctor listened to me yesterday he said he knew I wasnt crazy he said I need to get the 3rd injection. And then titters and not get the 4th at all. He said there is a .1 percent chance of people ending up with neurological problems and he said I happened to get them.... but he said I'm alive right now so he doesnt feel I'm going to die or become paralyzed.... he said vaccines are not dangerous in the sense that they can save people he said on this hand rabies is 100 percent fatal. I'm not sleeping to well even with the concoction they put in my IV I did come home... if after the 3rd vaccine I feel like this again I will go back and say I want testing done.... well feel like this still or worse.... I just hate my life at this point I dont want to live like this .....
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