I am very happy for you.
Last night it hit me hard again. I felt stiff and sharp pain around the bitten finger and palm area. I wish it is gone away from my life in no time!
Cheers to everyone

I suddenly started feeling like I am dying. This kind of thing has gone for awhile until i happened to get a few more weird pain at some part of my body. Just now, it happened at my lower back for a minute.
I never had sound sleep for a while now. I miss those old time.
I totally hate that it affects the mental health too!

honestly same. one minute I would be just positive and then anxiety starts kicking back in.

Guys, I haven’t posted or been on in several months as things have been quite positive for my wife’s symptoms.

To refresh memories for the newcomers, my wife had received the PostExposure and 2 rounds of rabies vaccine in OCT 2019 and within 24 hours had severe twitches, nerves pain and paresthesias ( pins and needles) they waxed and waned for about 3-4 months. We did all the tests with best neurologists in town (HOUSTON mind you so we have the best healthcare available) we did physical exams, EMG, deep panel bloodwork, MRI of brain and spine.

Ultimately everything was negative and no signs of Neuro issues according to the data or consensus from the doctors. Over the last 3 months or so, she really turned the corner physically due to primarily holistic methods. A strict schedule of natural whole food vitamins, mostly vegetarian diet, and activity 5 days a week, Pilates, strength, waking or running all benefiting her twitches and nerve pain drastically almost eliminating them down about 85-90% in comparison. With the symptoms dropping then the anxiety and stress levels also dissipated. When this began she had vivid acute pain and twitches about every 2-5 seconds and it decreased tremendously in volume and frequency to maybe every 5 minutes or longer to the point of her barely noticing anything at all.

All of a sudden on Monday 5/5/2020 a tad bit of regression. Her left calf and shin area tightened up drastically, exhibited some heightened muscle twitches and pain all over again. Unfortunately this has led to some physiological regression as well as we are having a level of defeat once again that this is more than the “ adverse reaction” doctors are telling us and possibly a neuro issue such as MMN or CIPD that has been discussed on this forum prior. We’ve made a follow up EMG appointment with neuro in a couple weeks as this has been a 9-10 month situation thus far.

I am holding our hope that it was just a flare up as her calf has seemed to calm down already since Monday but the anxiety and stress fallout is apparently. I’ve done a quick scan through this thread with some interesting questions below with the hope that you all can help me answer. I am simply trying to find a baseline of where we fall according to your data and results. Please help wherever possible, desperate for answers and info.


Thank you all!



Bacc posted leg twitches on 11-11-19...update? How long have the twitches been going on for?

Batbite post 3/25-found to be MTHFR compound heterozygous, mast cell activation syndrome..... have you considered genetic testing? Anything else you can tell us about your situation and data/tests?

Unbitten April 12-reported twitches-I would like to find out for how long and where your twitches are?

Lakyn-post 4/28-terrible muscle spasms 29 yo female after 2nd shot like me! What’s your story, what have you done to overcome this. What are your Doctors telling you?

Fee free to private message if you prefer.

All the best

ARose, thank you for the thorough and informative update. Glad your wife is doing better. With the MTHFR, it was discovered via genetic testing. It was specific to just the MTHFR, I have not had my entire genome tested. As to the mast cell activation, I highly recommend a book by Dr. Lawrence Afrin, "Never Bet Against Occam." Just before the COVID pandemic, I had received a referral to a doctor in our area who specializes in mast cell activation syndromes/disorders. No chance to follow up with that. I am currently doing very well. Your wife's experience with left leg issues sounds similar to what happened to me three months out from finishing the series. Sudden left leg pain and tightness and what I can only describe as a partial paralysis sensation from the left pelvis on down. I just could not move properly and without great pain. Completely resolved.

Welcome,
I hope you are doing a bit better now.
My finger and wrist has stopped hurting, but I still feel weird pain this and there over my body and in my head.
I sometimes also feel burning sensation on my arms, but it was quick one.
Some days, the fear that it would develop to serious case or I would be sent to hospital pop in my mind, but I try my best to calm down. i think that It has been over 1 month already, so it could not possible become an intensive and urgent situation.

I think copping with anxiety is more important, and those side effects will eventually disappear just give our body time.
I now engage meditation in my daily life. I have been doing 15 min meditation/day more than a week, and I feel a lot stronger.

Please try stay calm. You will go through it.

Hello everyone, hope you are faring better than I am. I don't seem to be getting better. Only new symptoms everyday. A racing heart that also slows down scaringly low in the nights. Muscles that don't ache. A low body temperature even when awake 97-. Water retention. An incident when I almost fainted due to hypotension... I hope that the list ends. And dealing all this alone is taking a huge toll on me. Finally going to see a neurologist tomorrow. Hoping for some answers.

Hi Unbitten...so sorry to hear of your story and unresolved post vaccine side effects. I think my side effects peaked at 3-4 months out. Initially just had mild muscle aches/dizziness but new symptoms started within weeks, nerve pains, ice pick headache pains, thick feeling throat. Of course, extreme Anxiety, panic and depression was part of this journey at the beginning, but has now died down. Had a major panic attack and went to the ER and they took my temp which was 96.7, they had no concern over this.

I did see a Neurologist at 2 months post vaccine. But I went in armed with information I had found on the computer about post vaccine problems. I also did a complete written 'TIMELINE' of the events, my side effects after each shot and ongoing issues. At my initial visit, I handed them a copy of everything so they had it for my record. If I hadn't of done that, I doubt my doc would have had any clue as to what was causing my issues. Physical exam and blood work were normal. Also keeping my composure and not showing any of my anxiety at the visit, he concurred that I most likely have irritation of nerves/muscles from the vaccine. That it could take time to resolve on it's own.

Anyway, best of luck with your Neuro exam...praying all comes out good for you. Don't like to give advise, so just letting you know how I handled my appt with my Neuro given there is so little medical information on our issues.

Keep us updated.

The neurologist ordered a nerve conduction test and it's results showed normal. He told me not to obsess over every small detail about my body and prescribed some anxiety meds. He told me to stop worrying and things will fall in place. I intend to do that for now and wait!