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-   -   Another new treatment(my cousin is doing) (https://www.neurotalk.org/peripheral-neuropathy/175982-treatment-cousin-doing.html)

Stillfighting 09-14-2012 07:34 AM

I'll keep any information on this thread. I plan to call today. Good time since I am more symtomatic today. Yesterday I tried to balance on one foot and could not. It made me realize that even though i think I still have good co ordination it is off. I also notice when ever I stand up quick from my desk at work, I seem to bump into the wall when I start to walk. I also from time to time start to trip over my right foot because i don't realize I'm not picking it up enough. That has happened from the get go and because crocks are rubber they catch on a rug easier.

I have had an exceptional summer with virtually no pain and hardly any pain meds. Last week I strained my back and with the weather changing I feel all kinds of pains everywhere.

Stillfighting 09-19-2012 10:14 AM

Balance returned
 
September 25th at 9:00 is my first appointment with this new foot doctor. So wish me luck.
My balance is back. I realize now that when the ba:eek:rimetric pressure changed my fibro kicked in and caused me some virtigo. It was very strange to not have control. I also have experienced some stress and fatigue due to lifes obticles and I was told that fibro can be triggered by that.

mrsD 09-19-2012 10:28 AM

I hope this works for you. Please keep us in the loop.

I know for me that low barometric pressure brings out all my old aches and pains, and in general is very painful. After reading many of the posts on all these forums, most other chronic pain patients also state this connection too, not just us.

Stillfighting 09-25-2012 03:18 PM

First appointment
 
Well it was very interesting. This doctor looks a little like Harpo Marks. Very out spoken about his treatments and he doesn't care if other doctors think he is a quack. He said he sees results. So anyway. He looked at my old xray and took a new one. He did an examination and at first glance he suspects some raynauds disease because I'm more effected by cold, but I doubt this. He suggested a more complete nerve conduction type test that is not covered by insurrance. So I am going to do it for $300.00. after that test he is going to have his nurse wrap my right foot in some special way, and then if I can handle it keep it that way for a day and excersise on it. He was very positive and seemed to want to try some things out before even getting to that nerve block proceedure. He said I may not even need it. It was a long session and I wish I could relay more but it was too complicated. I told him I would be logging this on this site and he laughed and said,"so you're going to make me famous". We'll see. He believes in considering the whole body when treating people. (not in a new age sense) He also said he was involvled with a group of medical professionals who deal with pain management I'm not sure what he called them. Sorry this is so vague but as I continue and get more info I will post it. Nerve test is next week. Oh and he wants me to try to stop drinking coffee, BOOOOOOO!

dac122 09-25-2012 03:24 PM

Thanks for the update. I am interested to know what this nerve conduction type test is and how it differs from a normal nerve conduction study.

Stillfighting 09-25-2012 03:25 PM

Another interesting thing.
 
He eluded to the fact that Lyrica and Gapepentin was once used sparingly but now doctors give it out like candy rather than look for any real treatment. So I kind of liked where he was coming from.

Stillfighting 09-25-2012 03:32 PM

Quote:

Originally Posted by dac122 (Post 917394)
Thanks for the update. I am interested to know what this nerve conduction type test is and how it differs from a normal nerve conduction study.

He said that the ones that insurrance cover only take into account the feet. This one apparently is more complete and he said that I will be able to read the results as they are not a bunch of mysterious numbers but more of a curve. He also said it doesn't hurt like a normal one. I'll call and get the name of the test. Sorry again for being so vaugue. I will get as specific as I can.

Stillfighting 10-05-2012 02:47 PM

Second appointment
 
Yesterday I went in to get the "Nerve Sensory Test", not a nerve conduction. Basically testing for feeling by my response. A nurse did it so no results yet. He then wrapped my right foot and asked me to try it for 3 days. At first it felt good but now just irritating. However. A foot doctor is always first going to explore the mechanics of the foot. I found out that this doctor is a part of a very small group of doctors who formed a neuropathy group. Dr. Delon(Delon procedure) is involved. The nurse told me that the problem with that procedure is that when they open up the nerve channel and the nerves become more active, a persons pain my increase. My doctor does not perform foot surgeries any longer. There is only one doctor in town, a plastic surgeon who performs the Delon. The procedure I may have is non invasive. At least I hope so. The nurse said that it does not work for everyone but for most it does.

Stillfighting 10-12-2012 10:08 AM

1st treament
 
I had my first treament on the 4th at 4:00 pm. First 3 injections in each foot followed by at least 20 minutes of electro stimulation. When it was done the anesthesia had made my left foot totally numb, red and warm. My right wich is the worse was not totally numb and it was cool and sweaty. I was nervous about not feeling my left foot and can now sympathize with severe diabetes nueropathy. So I was limited in activity. I woke up at 2:00AM and the foot was still numb but there was itching that could not be treated because there was no feeling. I went into a panic attack as I thought I would be in this state permanantly. I took an ativan, put on a topical and fell asleep. At that point I thought I would stop the treatments. The numbness from the treatment was mostly gone by the morning. Today things are pretty much back to normal but my next treatment is this afternoon. I called my cousin and she said her first time was similar and she thought about quitting, but that her experience continued to be different each time and she claims improvment. So I'm going to bite the bullet and let them do it again. If there is no improvement after 4 treatments they will stop.

Stillfighting 10-20-2012 08:46 AM

2nd treatment
 
I've been hesitant to post because I'm not sure what is happening. After the second tx which was over a week ago because the doc is out of town, when the anesthesia wore off the bottoms of my feet remained very numb for awhile. As the week has gone by my feet became prickly and and sweaty, very irritating to wear socks and shoes and even in my flip flops I felt it.
Now the weather is also changing so that may also play a part, as some of my other pain issues have come up. However this new tingling is disturbing..
Everything I've heard is that this should either work or not work but not make things worse. My next treatment is Monday evening. After this week we are supposed to assess. If no possitive change is happening we stop.
Does anyone out there have any experience with this.


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