Hello Kitt, Suzanne and Mrs D.-

Kaiser actually does use Athena for the CMT testing. I had the form to take to the lab and all variants of CMT were checked off to test for. Thanks for the info that there is some margin of error in the testing-that was never mentioned by the neuro (although since he still thinks it is "hereditary" maybe he does realize margin of error!). I have had symptoms for over 5 years-since 2007 when Kaiser neuro said I just had tarsal tunnel syndrome. Wrong and I knew it but gave up back then on Kaiser. In an older thread I discussed that I was adopted but did know both birth parents for the last 20 years. Neither one exhibited symptoms and both died last year. Have only one half brother but have not heard back from him regarding any symptoms he or his kids might be having. I was reading another thread that Mrs D commented on regarding Lymes. Although I have been tested in numerous occasions, it has always been negative. I will check which labs Kaiser uses but I think it will be Quest. So many symptoms I have fall in line with Lymes. I have had Rocky Mountain Spotted fever 20 years ago, and that’s when my health took a turn downward (I was 30 at the time and now 51). RMSS almost killed me. Spent a week in the infectious disease floor at Fairfax Hospital (northern VA) and was very thankful that when I first went in I was given doxycycline, which is the first line treatment for RMSS. My older daughter (26) has had both RMSS and Lymes (we live on a 10 acre horse farm). I never thought about the connection between tick bourne illness and PN. Not sure though whatever the cause, from what I understand, that PN can really be successfully reversed. I am hoping that as least I can arrest the progression as much as possible.

Thanks everyone for your input-

Judie

I read your post on another forum. I hope you do find an answer. I am doubting that you have CMT from what you said at the other forum. I hope you find an answer.