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Old 09-11-2012, 04:42 PM #11
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The WalMart by me charges $9.99 for SlowMag brand. I don't think that is a very high price today. It used to be 19.99, when it first came out, then $15.99 and now it is almost as affordable as the generic Mag64.

The Vit D on Rx from doctors is D2, and now we know it doesn't work. You seem to be doing better on the D3, so keep up with that.

The lotion available now ( I am still using my CVS product that was discontinued), is Epsom-It. It has the same formula it appears. YOu will want the body lotion version, which does not have fragrance added. Also there is a cream called Magnesium Sulfate cream by Kirkman. It tends to be more expensive for a smaller amount. Both are online if you Google them.
I really do like the lotion form. I use it on my wrists and inner arms at night. The skin is thinnest on the wrists and inner arms. I also use it on my left foot and ankle when it swells up. It helps me sleep, lowers my blood pressure, and in general keeps muscle cramps at bay.

Quote:
Originally Posted by judiesva View Post
Thanks Mrs D-I read a post of yours several weeks ago (?) that suggested using SlowMag. Purchased some at Walmart and take daily (was surpised at the $$-another other brand to recommend-even through mail?). Also started taking B12 from Jarrrow several months ago. Back maybe 4/5 years ago, had vit D tested and came back with <10. Started taking the 50,000 units 1/wk for a month but never had any followup (kaiser). Continued testing by new rhemo showed it up to about 15. Given another month treatment. Year latter still in 20's. Figured out that need to take daily. I take 10,000 units D3 daily. Am followed by my hormone Dr. every 6 months. Was still low in dec and had it upped to 15k. Went back to 10k during summer. Last results were in the 60's (and I get the D3 at Walmart-5k units-I remember someone asking about quality of Walmart supplements and this one does work and for a really good price). Have not been able to find Magnesium lotion anywhere! Would diluting epsom salts in regular lotion have the same effect? Just reaching for anything that would help....

Thanks for the replies everyone!

J
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Old 09-11-2012, 09:46 PM #12
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The Walmarts near me (I've checked 4 of them) are out of Slow Mag--I wonder if they're in the process of discontinuing it?? However, Walgreens and CVS carry it and it is $15.99 both places. I noticed it now is a combination Calcium-Magnesium tablet--didn't it used to just be magnesium only--and it was called Slo Mag?

My granddaughter has severe cramps every month, and I thought this might help her--that's the reason I was trying all the Walmarts but after checking the internet, I found out who was carrying it.
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Old 09-12-2012, 06:57 AM #13
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This is the generic:
http://www.amazon.com/Generic-Magnes...keywords=mag64
free shipping from this seller.

If you live near a Costco, they will order it for you. My Costco normally carries several bottles behind the counter. Their price is around $5.00 or so, for a bottle of 60.

As far as I recall, there has always been some calcium in it.

SlowMag is listed on WalMart's online page. You could ask your WalMart to order it for you. They will do that.
http://www.walmart.com/search/search...straint=976760

Some doctors will order it on RX. I believe if you get that done, the generic at WalMart is part of their $4.00 generic program.
At least it was at one time.
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Old 09-12-2012, 07:58 AM #14
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Quote:
Originally Posted by judiesva View Post
I was dx with Fibro years ago. Always have moderate to extreme fatigue. This past spring/summer had the nerve conduction study done. Results: "Abnormal nerve conduction studies of the lower extremities and left upper extremity (three extremities) with electodiagnostic evidence of a severe sensorimotor polyneuropathy with mixed axonal and demyelinating featuers with more prominent findings in the lower extremities." I have no "jerk" reaction in knees or ankles. Kaiser did for CMT testing which came back neg. Had followup last Fri and neuro said that he is pretty sure that my PN is "hereditary." Starting gabapentin this week when I can get to pharmacy. The problem with being able to keep flexion and press on gas pedal/brake just started a couple of weeks ago. Replied on another thread today regarding the "vise" like grip I have had on both feet for years. It's such a PAIN. I always have the sensation that my ankles/feet are very tight and extremely stiff. I can flex my ankles for only for a short time. I can not point my toes without immediately having calves clamp up with sevre cramping. Also, when I bend my toes, which feels very tight, they too cramp and then wont straighten out! OUCH!! Any advice, thoughts is greatly appreciated.

Judie
Hi Judie!
As Kitt said, we aren't saying you have CMT, but honestly your symptoms sound exactly like mine. They are also not able to test for all variants, and the tests themselves carry a margin of error. I only had the test for HNPP done and the results said there was a 15% margin of error. I refused further testing, with my neuros' blessing, as there was ample evidence of what this was, and no treatment.
The wisest course of action seems to be following Mrs. D's advice as far as supplements, etc. and try to take the best care of yourself possible. Do everything that you can to heal that which is possible. If pain is keeping you from doing more of the things that you want to do, find a doctor willing to work with you for pain management. Pain can cause or exacerbate fatigue. Living with decreased muscle mass causes fatigue and pain as well. This is no picnic, but there are things that you can do to help yourself. Hereditary neuropathies also cover a huge spectrum of symptoms, onset, and disability, so don't be overly alarmed at anything your research turns up. No one can say with certainty where you will be five, ten years from now.
I am 50. Did you mention how old you are and I missed it? Also, I did not mean to sound so negative about driving and hand controls. I learned to drive late in life (37) so I have never been a great "instinctive" driver. It has always required extra concentration, which contributes to my difficulties.
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Old 09-14-2012, 03:26 AM #15
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Quote:
Originally Posted by judiesva View Post
New problem in the last few weeks. Diagnosed with PN this summer. Symptoms ongoing for last 5 years. Numbess to knees and elbows. Extreme loss of what Dr referred to as "small muscles" in feet. Now I am having trouble holding/keeping pressure with my left foot on the gas peddle/brake. I feel that my ankle has no flexion at all-but when I try and bend my foot up it does flex upward. The issue is over the top part of my ankle, just dont have the strenth to keep my foot bent up at the angle to use gas/brake peddle. Starting gabapentin this week. Any ideas of cause or suggestions on what I can do to help this situation?

What is CMT? I am having trouble the same as you but no diagnosis yet..
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Old 09-14-2012, 05:31 AM #16
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CMT is Charot Marie Tooth disease. It is inherited, and is genetic.

We have a thread about it here:
http://neurotalk.psychcentral.com/thread121564.html
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"Thanks for this!" says:
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Old 09-14-2012, 09:39 AM #17
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Quote:
Originally Posted by ShannEL View Post
What is CMT? I am having trouble the same as you but no diagnosis yet..
I read your post on another forum. I hope you do find an answer. I am doubting that you have CMT from what you said at the other forum. I hope you find an answer.
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Old 09-14-2012, 09:56 AM #18
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Hello Kitt, Suzanne and Mrs D.-

Kaiser actually does use Athena for the CMT testing. I had the form to take to the lab and all variants of CMT were checked off to test for. Thanks for the info that there is some margin of error in the testing-that was never mentioned by the neuro (although since he still thinks it is "hereditary" maybe he does realize margin of error!). I have had symptoms for over 5 years-since 2007 when Kaiser neuro said I just had tarsal tunnel syndrome. Wrong and I knew it but gave up back then on Kaiser. In an older thread I discussed that I was adopted but did know both birth parents for the last 20 years. Neither one exhibited symptoms and both died last year. Have only one half brother but have not heard back from him regarding any symptoms he or his kids might be having. I was reading another thread that Mrs D commented on regarding Lymes. Although I have been tested in numerous occasions, it has always been negative. I will check which labs Kaiser uses but I think it will be Quest. So many symptoms I have fall in line with Lymes. I have had Rocky Mountain Spotted fever 20 years ago, and that’s when my health took a turn downward (I was 30 at the time and now 51). RMSS almost killed me. Spent a week in the infectious disease floor at Fairfax Hospital (northern VA) and was very thankful that when I first went in I was given doxycycline, which is the first line treatment for RMSS. My older daughter (26) has had both RMSS and Lymes (we live on a 10 acre horse farm). I never thought about the connection between tick bourne illness and PN. Not sure though whatever the cause, from what I understand, that PN can really be successfully reversed. I am hoping that as least I can arrest the progression as much as possible.

Thanks everyone for your input-

Judie
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