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#11 | |||
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Wisest Elder Ever
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The WalMart by me charges $9.99 for SlowMag brand. I don't think that is a very high price today. It used to be 19.99, when it first came out, then $15.99 and now it is almost as affordable as the generic Mag64.
The Vit D on Rx from doctors is D2, and now we know it doesn't work. You seem to be doing better on the D3, so keep up with that. The lotion available now ( I am still using my CVS product that was discontinued), is Epsom-It. It has the same formula it appears. YOu will want the body lotion version, which does not have fragrance added. Also there is a cream called Magnesium Sulfate cream by Kirkman. It tends to be more expensive for a smaller amount. Both are online if you Google them. I really do like the lotion form. I use it on my wrists and inner arms at night. The skin is thinnest on the wrists and inner arms. I also use it on my left foot and ankle when it swells up. It helps me sleep, lowers my blood pressure, and in general keeps muscle cramps at bay. Quote:
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#12 | ||
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Member
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The Walmarts near me (I've checked 4 of them) are out of Slow Mag--I wonder if they're in the process of discontinuing it?? However, Walgreens and CVS carry it and it is $15.99 both places. I noticed it now is a combination Calcium-Magnesium tablet--didn't it used to just be magnesium only--and it was called Slo Mag?
My granddaughter has severe cramps every month, and I thought this might help her--that's the reason I was trying all the Walmarts but after checking the internet, I found out who was carrying it. |
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#13 | |||
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Wisest Elder Ever
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This is the generic:
http://www.amazon.com/Generic-Magnes...keywords=mag64 free shipping from this seller. If you live near a Costco, they will order it for you. My Costco normally carries several bottles behind the counter. Their price is around $5.00 or so, for a bottle of 60. As far as I recall, there has always been some calcium in it. SlowMag is listed on WalMart's online page. You could ask your WalMart to order it for you. They will do that. http://www.walmart.com/search/search...straint=976760 Some doctors will order it on RX. I believe if you get that done, the generic at WalMart is part of their $4.00 generic program. At least it was at one time.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#14 | ||
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Member
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Quote:
As Kitt said, we aren't saying you have CMT, but honestly your symptoms sound exactly like mine. They are also not able to test for all variants, and the tests themselves carry a margin of error. I only had the test for HNPP done and the results said there was a 15% margin of error. I refused further testing, with my neuros' blessing, as there was ample evidence of what this was, and no treatment. The wisest course of action seems to be following Mrs. D's advice as far as supplements, etc. and try to take the best care of yourself possible. Do everything that you can to heal that which is possible. If pain is keeping you from doing more of the things that you want to do, find a doctor willing to work with you for pain management. Pain can cause or exacerbate fatigue. Living with decreased muscle mass causes fatigue and pain as well. This is no picnic, but there are things that you can do to help yourself. Hereditary neuropathies also cover a huge spectrum of symptoms, onset, and disability, so don't be overly alarmed at anything your research turns up. No one can say with certainty where you will be five, ten years from now. I am 50. Did you mention how old you are and I missed it? Also, I did not mean to sound so negative about driving and hand controls. I learned to drive late in life (37) so I have never been a great "instinctive" driver. It has always required extra concentration, which contributes to my difficulties. |
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#15 | ||
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Junior Member
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Quote:
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#16 | |||
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Wisest Elder Ever
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CMT is Charot Marie Tooth disease. It is inherited, and is genetic.
We have a thread about it here: http://neurotalk.psychcentral.com/thread121564.html
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | Kitt (09-14-2012), Susanne C. (09-14-2012) |
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#17 | ||
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Grand Magnate
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I read your post on another forum. I hope you do find an answer. I am doubting that you have CMT from what you said at the other forum. I hope you find an answer.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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#18 | |||
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Junior Member
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Hello Kitt, Suzanne and Mrs D.-
Kaiser actually does use Athena for the CMT testing. I had the form to take to the lab and all variants of CMT were checked off to test for. Thanks for the info that there is some margin of error in the testing-that was never mentioned by the neuro (although since he still thinks it is "hereditary" maybe he does realize margin of error!). I have had symptoms for over 5 years-since 2007 when Kaiser neuro said I just had tarsal tunnel syndrome. Wrong and I knew it but gave up back then on Kaiser. In an older thread I discussed that I was adopted but did know both birth parents for the last 20 years. Neither one exhibited symptoms and both died last year. Have only one half brother but have not heard back from him regarding any symptoms he or his kids might be having. I was reading another thread that Mrs D commented on regarding Lymes. Although I have been tested in numerous occasions, it has always been negative. I will check which labs Kaiser uses but I think it will be Quest. So many symptoms I have fall in line with Lymes. I have had Rocky Mountain Spotted fever 20 years ago, and that’s when my health took a turn downward (I was 30 at the time and now 51). RMSS almost killed me. Spent a week in the infectious disease floor at Fairfax Hospital (northern VA) and was very thankful that when I first went in I was given doxycycline, which is the first line treatment for RMSS. My older daughter (26) has had both RMSS and Lymes (we live on a 10 acre horse farm). I never thought about the connection between tick bourne illness and PN. Not sure though whatever the cause, from what I understand, that PN can really be successfully reversed. I am hoping that as least I can arrest the progression as much as possible. Thanks everyone for your input- Judie |
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