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Old 10-15-2012, 04:33 PM #1
khakis khakis is offline
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Join Date: Mar 2012
Posts: 46
10 yr Member
khakis khakis is offline
Junior Member
 
Join Date: Mar 2012
Posts: 46
10 yr Member
Frown still looking for answers

9 months of burning pain and still no diagnosis. Brief history: I'm 41,thin, exercise (it helps)... have had Hashimotos' hypothyroid for 15 yrs, on med for that. In January, I changed birth control from one I'd been on 12 yrs to one with lower estrogen (in case that's relevant--it was my only change--no accidents, injuries, etc)
So in January--the pain started as carpal tunnel, but got severe and progressed to my arm and shoulder.
Normal sed rate, neg ANA, neg RH factor, normal glucose (fasting), norm A1c, normal CBC... neg for lyme and a ton of other things like that.
B12 was "high (>1000)", folate high at 17. Only abnormal was my TSH had gotten way high (9.75), we increased meds, it began to fall--normal limits now.

EMG done on carp tun area only--showed CT. I started PT in March and after 7 weeks, no improvement in shoulder pain. P/T did a "rib mobilization"-that night pain had spread all over chest area. The pain is a burning--lit on fire, not tightness. It feels superficial, skin-not deep. The area is usually (not always) warm to my touch while burning.

Neurologist--said a type of paresthesia--a "sensory neuropathy".
He said all that is left is an MRI of my thoracic area. The pain does NOT wrap around--it is primarily most intense across my upper chest down to breast area.

It does stay constant nearly all day--mornings are usually most tolerable.

I really do eat very healthy (though if anything too low fat, but take fish oil). I have tried the various supplements rec here (currently just taking a multi, fish oil, extra B1--the beno...that Mrs D talks about). Was taking a ton of dif things and nothing was helping so I simplified.

Also take metformin, birth control and thyroid meds.

Have been presc. neurontin by Internist and Cymbalta by neurol.--have not tried either yet.

Sorry this is so long-thanks for any advice and for reading
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