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10-17-2012, 01:01 PM | #1 | |||
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Wisest Elder Ever
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It is difficult to predict.
Fast onset PNs typically are blamed on viral infections. They can come on from poorly cooked chicken and other foods, because of a bacteria called Campylobacter. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC88896/ You really need conduction tests to see what is going on with you. Don't take the B12 for a few days before your tests. And get the Vit D test too. Might as well get those out of the way. Good luck at your doctor's appointment.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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10-17-2012, 02:27 PM | #2 | |||
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I am that fellow that MrsD referred to above. I am an alcoholic, albeit a sober one. I drank for about 20 years daily, now I am 440 days sober. I pretty much went from a healthy average sized person to a drunk in a wheelchair. If you follow the thread on that you will see that 3 things worked for me. One, I quit drinking and started eating. Two, I forced myself to exercise a little bit a day to keep the legs moving and three, I took MrsD advice and went on a vitamin regime of:
Centrum Men Under 50, Multivitamin, 200-Count Bottle Doctor's Best Benfotiamine (150 mg), Vegetable Capsules, 120-Count Jarrow Formulations Jarrow B-right Complex, 100 Capsules I am now walking without my cane most of the time, can work FT and I feel great. Now, I dont know what percentage of PN sufferers beat it, but in my case I pretty much did. I will most likely have many lingering effects over my lifetime, but where I am at today beats the hell out of where I was 1.5 years ago. Stay positive, force yourself outside and you have a chance! I am walking proof of that. Ice in VA |
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10-17-2012, 04:24 PM | #3 | |||
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Junior Member
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That's a good story, bro. I've got about 9 months off the bottle. At least my symptoms have stabilized and not spread, I can say that much, I've got the sensory PN in my feet and it hasn't affected my motor skills, but it's atropied my leg muscles and caused all kinds of unreal pain in my feet. I will say that the doc got me on a time-release 24 hour 200 mg neurontin pill and that's helped A LOT. Plus the gabapentin. Glad you're working full-time, I've had my worries about the same thing. |
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10-17-2012, 05:35 PM | #4 | |||
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Um, yep. Had to get a couple refills, but I think I started back in March...I get everything via Amazon...
I had the tingling feet, zero balance, couldnt stand or walk, numbness, but I had no pain...none at all. I also have a drink called 989 everyday...its full of good stuff and all natural. |
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10-17-2012, 06:37 PM | #5 | ||
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Junior Member
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Thanks, Icehouse.
Like you, my symptoms include tingling, numbness, lack of balance, inability to walk normally... same tingling/numbness in my hands, which is impacting my typing... and since I cannot feel my feet, I keep missing the brake pedal, so I'm not safe to drive ATM either... as a software engineer, I depend on being able to go to/from work, and type at a high rate, so this condition is really threatening my work - which is part of why I'm so anxious for some idea of whether I'll get over this or not. (warning: pontification coming) The reality is, instead of focusing on the future obsessively (which creates my anxiety), I am using cognative therapy to try to retrain my brain to focus on today. Whatever happens with the job is beyond my control at this point - and reminding myself of that helps me stay focused on today instead of tomorrow. I'll be asking my doctor to either test for, or produce from my records, levels for B1, B3, B6, B12, A, D, Thyroid, Pantothanic Acid, Biotin, and heavy metals. I'm also going to ask why we did not do an EMG, and suggest we should consider an EMG, conductive testing, and perhaps a nerve biopsy. In the mean time, I've made new friends here, which is also helpful, as I live a very independant and isolated life and have almost no support group. Thank you again, all. Peace and joy, /Bob |
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10-17-2012, 07:31 PM | #6 | |||
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Well, luckily you are in IT like I am, and telecommuting is an option I went from walking to a wheelchair overnight, then to a walker, then to a cane fulltime at Christmas ...now I use the cane sporatically. I find stairs with no railings a real challenge and I really cant walk more than 2 miles without being exhausted.
I really do hope you get better, I have been there and done that and its no fun. |
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10-24-2012, 01:13 PM | #7 | ||
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B12 was 234 in the hospital, we're getting new tests done on a much broader spectrum tomorrow. I was lastr in the hospital in August so who knows how much the value has changed since I've been on B12 therapy. Also a follow up visit with my neurologist, but I need to find a new one because this guy has one of the worst ratings I've seen (59/100).
Sensation still improving, albeit slowly - still cannot feel the bottom of my feet so I keep missing the cars brake pedal - will have a hand control installed. Typing still sucks. Will provide the updated numbers when they're available. Thank you again for all your support. Peace and joy, /Bob |
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11-09-2012, 05:20 PM | #8 | ||
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11-10-2012, 03:38 PM | #9 | ||
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Junior Member
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another interesting read regarding D2 vs D3. In this case, the doctor has prescribed the following:
Vitamin D (Ergocalcifero) 50,000 IU CAPS with a dosage of 1/week. I have ordered D3, as Ergocalcifero is D2 (Fat soluable), PP 5000 IU. I have a Dr appointment tuesday 11/13 and will discuss D2 vs D3, and whether we want to change this. Can a person take too much D (say I took both the D2 1/week and the D3 daily)? /Bob |
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11-10-2012, 03:54 PM | #10 | |||
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Wisest Elder Ever
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I predict your doctor won't know at all about the two versions.
If you take D3, you won't need the other at all. The only reason the doctors order it, is because it remains in their old outdated therapeutic references. You can go ahead and take it. But don't expect much from it. Quote:
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http://neurotalk.psychcentral.com/thread92116.html Now is the time before your next appointment. Things are changing rapidly about Vit D supplementation. It will be a while yet for doctors to understand it all. It is not unlike the poor interpretation of B12 levels, which continue now a decade later inspite of medical continuing education to the contrary about making 400pg/ml the new low for humans. This article on THAT from 2003, written for doctors: http://www.aafp.org/afp/2003/0301/p979.html There are still doctors who don't understand ORAL B12 treatments today. And BTW both forms are fat soluble. I can't see any reason for using D2 (ergocalciferol) today at all. D3 is even less expensive.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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