With all due respect to that list at the CMT site...

I think it is out of date... Just like the B12 info is still out of date and can be found out of date on many sites.

It takes a LONG time to move medical minds. Once made up it takes ANOTHER long time to move them from that first concept.

Regular non CMT people get PN from statins.
Here is the link again of a collection of statin research papers, most of which I think most doctors have never read:

Here is the list again:
http://www.greenmedinfo.com/toxic-in...drugs?ed=35335

Also today, more biochemistry is being done on cholesterol, especially cholesterol sulfate, Dr. Seneff being the main researcher:
http://people.csail.mit.edu/seneff/

This work is really compelling. There are also YouTubes with her.

Providing sulfate, therefore is helpful...and our epsom salts and magnesium lotions are prime sulfate sources.

This is just one link from her page:
http://people.csail.mit.edu/seneff/s...ink_twice.html

Are you posting about the medical list on the CMTA site? I doubt that what is on there is out of date as it's from a very informed site - the CMTA. The list is continually moderated and compiled by neurologists, etc. #6

http://www.cmtausa.org/index.php?opt...15&Itemid=50#5

So I am confused if that is what you are posting about. They do not mention PN on that site only the medicines to watch out for. That's what I meant by that site. I was posting about "muscle weakness", not PN, from statins and the fact that I know people in the general public who have muscle weakness from statins.

As far as B12 on that site they could be not up to date on that as many other sites are not up on it. But again, I was posting about "muscle weakness" and statins for CMTer's and for some of the general public as well. I see nitrous oxide and a B12 deficiency. I never brought up B12. Did someone else?

Statins do not appear to be good for anybody regardless if there is a possibility of muscle weakness or PN.

Thanks for your help in explaining this as I'm probably not reading your post right. I know I mis-stepped when I posted that there would be only muscle weakness and not PN concerning statins. Sorry for that.

In your wiki site it shows a foot with CMT. However, not everyone with CMT has high arches. A CMTer can have high arches, flat feet, normal feet or one high arch and one flat. It depends on what muscles are affected. Symptoms of CMT can become evident when you are young, old or in-between or symptoms may never be that evident. The same with the way a CMTers legs look for example. They can be normal looking even though they are weak. Symptoms depend on so very many things and also the type and subtype of CMT a person has. And symptoms of CMT vary greatly even within the same family. I know this for a fact. CMT can also be misdiagnosed even today.

I am no expert but I do live with CMT everyday and I have known and seen it since I was 5 years old (not in myself as I did not have symptoms for years and years). Other people can only read about it and lots of that information is not up to date or accurate either.

There is a question in the questions section, that says statins are okay for CMTers. Statins are not okay for others, so I would think the same would go for CMTers. But of course they are not going against "standard of care" which still includes statins. (much to the detriment of many many people today.). The "standard of care" that doctors decide upon, obviates any new information or warnings. It takes a mountain to move them once they decide on something, even in the face of evidence.
The Vit D information that was recently released by that national committee is a good example... still recommending 800IU for adults when evidence is strong for higher. It will be another decade before they come around on that one, and they will eventually.

If you go to the questions area it is around #10 or so in the list.

Statins are in the mild to moderate section of the 3 lists on the site at another file. I just get so frustrated as all the new information keeps showing up about the risks and less about the benefits. If you read Dr. Seneff she explains that statins work well only in the very early phases of treatment, and then the toxicity begins. She explains why this is.