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Old 10-29-2012, 08:10 AM #6
Idiopathic PN Idiopathic PN is offline
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Join Date: Jan 2012
Location: Jacksonville, FL
Posts: 793
10 yr Member
Idiopathic PN Idiopathic PN is offline
Member
 
Join Date: Jan 2012
Location: Jacksonville, FL
Posts: 793
10 yr Member
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Quote:
Originally Posted by mrsD View Post
My arm "event" was over 2 or 3 yrs ago. Just before my neck started to have arthritis too.

I attributed it to "sleeping on it funny". It didn't hurt or tingle either. Just couldn't move it.

Now I have this left ankle swelling now and then. Just got over a 2 day swelling event (this is very uncomfortable and somewhat painful). Doctor is stumped. I don't get it on vacation, and it takes a while being home before it returns. I think it is from climbing stairs (no stairs on vacation). (it is my old surgical foot that had the instep tumor removed 50 yrs ago! ) Rubbing on magnesium lotion seems to fix it too, so far.

I am going to be 66 next month. Some days it seems everything is falling apart.
Advance happy birthday Mrs.D!!!
Its funny you said about "...falling apart". That is exactly how my husband joke about our conditions - "we are falling apart - but dont worry, our two bodies can make one whole person".
On some days, we can laugh about it, but on most days (at least in my case), its a struggle.
On another topic, just a bit of information... I joined a forum on non-tuberculosis mycobacteria. Its a strangely good that inspite of the very strong dosage of antibiotics that we are all taking, I have not encountered anyone who has PN as a side effect of the antibiotics. Some are even taking more combinations and more toxic but no PN. Some of course have the optic neuropathy as a result of the ethambutol. But not the PN as same as in our league. isnt that strange?
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