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12-23-2012, 02:05 AM | #31 | ||
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Junior Member
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I am so glad to read this thread (but also sad any of us deal with this)!
My feet are ultra sensitive and constantly feel like they are thawing out and waking up. Shoes and socks are excruciating. I spend my life in flip flops if I need shoes and shorts or crops so that nothing touches the top of my foot. Even taking a shower can be brutal as the water hits them! I was curious about the effect of carbs. I will definitely be more vigilant about controlling them! How do you all handle shoes and the workplace? For the first time in almost 10 years I will be working outside the home for non-family members. I'm so anxious about shoes, socks, the dress code, etc. |
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12-23-2012, 06:31 AM | #32 | |||
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Wisest Elder Ever
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Welcome to NeuroTalk.
We have a "Shoes" thread in the subforum: http://neurotalk.psychcentral.com/sh...ighlight=shoes You can also search "shoes" in our search function at the top right of the first page of the PN forum. This topic comes up often and is scattered over the past 6 years. I find 25 posts mentioning shoes this morning. I cannot put a search result up as a link, as our software here does not support that, so you have to do the search yourself. I find Arcopedico shoes with the elastic uppers tolerable and they will pass for "dress" conditions if you get the black. http://www.arcopedicoshoes.com/classic/index.html 2nd one down.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | Reddhairedgirl (12-24-2012) |
12-23-2012, 07:03 AM | #33 | ||
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Junior Member
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Quote:
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12-23-2012, 08:30 AM | #34 | ||
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Senior Member
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Redhairedgirl, it sounds like you are further along than me in that you are way more sensitive than I am. Im so sorry.
I do not work outside of my home this time of year, I am only forced to work outside during the spring to july months, and this is all new to me, so I am not sure what is in store for me, if it will get worse or not. Right now I can still wear shoes but I almost ALWAYS wear shoes that are slip on and I can remove them quickly. How long have you had it and what is the cause of your pn? Mine is from hypothyroid. Welcome to the board! I find much help and comfort reading here. |
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12-23-2012, 09:52 AM | #35 | ||
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Junior Member
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I like this post and wish I could sent it to my doctor who listens to me like I am a lunatic when I try to describe my heat/cold sensations.
My PN came from taking a statin drug. When I go to bed my feet feel very cold. I put an electric blanket over my feet until they feel like they're warm and then remove the electric blanket. During the night I will wake if the sensation of burning feet and need to slip them out from underneath the covers. Once cold again I can tuck them back under the covers. I play the hot-cold game most every night. I also cannot stand the weight of blankets on my feet. I made a simple frame from 1/2" pvc that holds the bed covers just off my feet. I believe the nerves in my feet overreact to conditions sending extreme signals when the condition is actually mild. Real or not the pain and discomfort seems as real as it can get. |
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"Thanks for this!" says: |
12-23-2012, 10:59 AM | #36 | |||
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Wisest Elder Ever
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Many of us do the covers at night, on and off. I've done this since I can remember, in fact! But now it is automatic and I don't remember much at night, unless I wake up shivering or something. I keep the bedroom pretty cool in winter, too.
I don't use a top sheet...I find it very confining. I have a thin cotton quilt I use instead.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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12-23-2012, 12:03 PM | #37 | ||
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Senior Member
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OMG Donsabi!!!! So funny, I could have written your post except that I have not made a device to hold the blankets up off my feet yet, ROTFLMBO!! Thats so funny and desperate and smart, lol. I just bunch the blankets up over my feet to make a tent, lol.
MrsD is right, I think we all play the footsie/blanket game. Thats what I meant when i said I wish for once I could just go to bed, with my feet under the covers, and go to sleep. It's a game every night, the question is, how long will it last. Some nights I give up and go to the couch. What is it about my bed that makes EVERYTHING WORSE. I think this post is mostly a comisserating post. (however you spell that word, lol) Sometimes, it just feels good to say it, even though its all been said before, it feels good to say it, and say it to other people who know EXACTLY what I am talking about. I swear my husband would like to roll his eyes and say here we go again..when I start talking. |
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12-23-2012, 04:27 PM | #38 | ||
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Grand Magnate
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Quote:
Also, the last post of mine referring to no treatment/cure for CMT at this time was there because the board would not let me add it to my previous post concerning CMT. I tried the "edit" function many times and it just would not let me do it. So that is why that post appeared by itself. Thanks.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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12-23-2012, 05:32 PM | #39 | ||
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Grand Magnate
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Your frame is great. You also can buy one if you cannot make one. I also have to get my feet out from under the bedding when they seem hot and painful. It is the nerves for me. Then when that's over with under they go again. Can't stand an electric blanket at all. Nor can I wear socks. Drives my feet up a wall. Nerve thing again.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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12-23-2012, 06:58 PM | #40 | ||
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Senior Member
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Yes, it is being treated, but I believe it went untreated for a very long time..years.
I am on desicated NatureThroid perscription. When I started my TSH was a 10.9 and when I drew blood last month it is now a 2.8 so it is getting better, along with T3 and T4, all are in "acceptable" ranges. However I believe it needs to get lower yet and I am going to have to face my doctor in 2 months and hope I can persuade him to up my dosage, and perscribe according to symptoms instead of those stupid ranges. It may be a struggle, I have a feeling he is going to say all is fine. My feet are OUTSIDE blankets more often than not. My husband will come in and say are you crazy it's freezing in here! I find that if my feet are hot I tend to throw off blankets on my body too. weird. |
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"Thanks for this!" says: | Kitt (12-23-2012) |
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