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Old 01-12-2013, 06:52 PM #21
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I am not taking either of those, but from everything I have read I have never seen that mentioned.

I am on desicated thyroid meds and it does not affect my blood sugar.
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Idiopathic PN (01-16-2013)

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Old 01-12-2013, 06:58 PM #22
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Default Hi faith

Mrs. D is right. You have to take it easy. I do have PN in my left foot, ankle and calf. I also have a joint that was frozen and they wanted to fuse it. Well that didn't go over so good with me. I began gentle excersices that my son recommended. He is an OPTA. The pain was bad to start with but now has diminished to the point socks and the shoe doesn't hurt as much. I can also bend the joint. I go to a physiatrist, who also said this was helpful. If you can find some professional help, exercise can really help. ginnie
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Old 01-13-2013, 10:27 PM #23
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I have been on synthroid for 20 years now and I never have trouble with blood sugar levels. I do find however if I am not eating enough or properly my sugars can go really low.
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Old 01-13-2013, 10:31 PM #24
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Originally Posted by keepingfaith View Post
Okay so I have questions about exercising with PN. Obviously easier said than done! But I think exercise is beneficial for everyone regardless. Does anyone have any types of exercise they recommend? It's so painful for me to even stand up and walk around my house but I'm hoping if I start doing more regular exercise it will improve my PN. Quite possibly it will make it worse which is why I'm asking this question. Thanks!
I have not been exercising for a while now but I decided to try my exercise bike recently. I only do 15 minutes for now but at least it is something. I will build it up. I don't have problems when I'm walking. My legs feel so weak when I just stand still or when I come up stairs. I don't think exercise will improve my PN but you never know.
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Old 01-16-2013, 06:12 PM #25
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I know that PN makes exercising a challenge. I continue exercising e.g. walking outdoor or doing treadmill, it may not help improve the PN, but, can it further damage the nerves? I remember my first neurologist told me that there is nothing physical that I can do to worsen the nerves. But, then I read in one online article (maybe Mayo's site, not sure), that you shoudl avoid crossing your legs.
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Old 01-18-2013, 08:25 PM #26
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Originally Posted by Idiopathic PN View Post
I know that PN makes exercising a challenge. I continue exercising e.g. walking outdoor or doing treadmill, it may not help improve the PN, but, can it further damage the nerves? I remember my first neurologist told me that there is nothing physical that I can do to worsen the nerves. But, then I read in one online article (maybe Mayo's site, not sure), that you shoudl avoid crossing your legs.
I have also heard to avoid crossing your legs but I think that is more if you are sitting or sleeping maybe. Not many exercises would have you crossing your legs for any length of time. It could be bad due to nerve compression or circulation I suppose.
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Old 01-22-2013, 01:35 PM #27
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I have also heard to avoid crossing your legs but I think that is more if you are sitting or sleeping maybe. Not many exercises would have you crossing your legs for any length of time. It could be bad due to nerve compression or circulation I suppose.
Crossing your legs when sitting is what I referred to....

I mentioned in my posts, I walk almost everyday. However, lately, I notice that walking makes it really difficult for me. There are very painful parts of my legs and feet that comes and go. There is no pattern of areas affected or interval between the pain. It is very randomly. BUT, its painful. I could not even walk 15 mins because of the discomfort. Its hard to describe the pain.
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Old 01-22-2013, 02:01 PM #28
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Crossing your legs when sitting is what I referred to....

I mentioned in my posts, I walk almost everyday. However, lately, I notice that walking makes it really difficult for me. There are very painful parts of my legs and feet that comes and go. There is no pattern of areas affected or interval between the pain. It is very randomly. BUT, its painful. I could not even walk 15 mins because of the discomfort. Its hard to describe the pain.
Yeah I know what you mean I think. I have lots of discomfort walking or even standing for any amount of time. I just need to find out what's causing all this it's driving me crazy and making my life horrible. Well I hope you find some relief!
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Old 01-26-2013, 12:26 PM #29
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Till 2 weeks ago i did bench pressing,deadlifts,squats ..etc and that for almost 2 years now with small fiber neuropathy.
But half december I felt some numbnes in my finger tops except for the pink.
My neuro adviced me to stop for a while.
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Old 02-01-2013, 08:40 PM #30
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When my PN symptoms started, I did not realize that my pain then was just a "preview" of what to come. Anyway, there are other health issues that developed after the PN diagnosis that requires more frequent doctor's visits, more toxic medications, that I sort of grudgingly accepted the PN pain while shifting my focus to the other health condition. All this time, I continue to exercise not only for my nerves but more so for my lungs.

My question to those who regularly exercise inspite of the pain, if you can tolerate the "intolerable pain" and you continue to exercise (because for me, not exercising is not an option for my lungs), will I further damage my nerves?
My exercises are:

1. treadmill (incline of 7 and speed of 3) - when the pain is tolerable;
2. walking outdoor - when pain is moderate

Now that my feet and legs are REALLY hurting, I still want to do teh walking even slowly. I probably can still do it but I am concerned that my pain must be telling me to rest for a while or forcing to walk while the pain level is high might damage some nerves. Will recumbent bicycle be safe?

Swimming or water exercises (in a pool) is not for me. The splashes could create an "aerosolized water" that can potentially carry a bacteria which I can inhale. (My apologies for some who might think I am insensitive to those who love pools. I could not just take the risk of being exposed to bacteria or virus especially that my WBC and Neutrophils are too low.)

Will appreciate insights.
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