MSG in Chinese.... many things even when they say no MSG still have them. The noodles especially(LoMein)!

MSG is very difficult for PNers.

Hi Hopeful
Thanks for responding. I always ate healthy. Always ate high fiber food , fish, some meat , fruits and veggies, water and green tea. Never had a weight problem , exercised on TM, long walks and floor work with lite weights. . I thought I was doing everything right but I still got Neuropathy ,with no cause. Go figure.. I am considered "prediabetic" , (my a1c was 5.7 GTT 167 ). Im believe it was all the high fiber food that caused my predid, altho I thought I was eating "healthy". My Endo dosent think the pred caused the neuropathy. I have cut back on "good carbs" and have added more meat and nuts, cottage cheese and peanut butter for protein.
All this pain has me confused , angry and now depresssed. I know stress dosent help but I cant help feeling this way. I feel like my body has betrayed me!
Im Still trying to adjust to lyrica, the side effects are still strong only on 50 mgs day. ( 16 days now) Im not sure if the lyrica is making me more depressed or its just me. ( I always had problems with anxiety). Im also afraid that if the lyrica dosesnt help, I may have to stop it. I have read withdrawal form lyrica can be horrid, even slow dosing. Did you have a hard time getting off of lyrica? What do you take for your pain?
Thanks again..

Hi APJH
I was recently dx with idiopathic SFN too. . Was wondern if you have diabetes or if you saw a nutritionist just for the neuropathy. Still can not find a cause. I was dx with mild prediabetes, but my endo doc said the pred is not causing my neuropathy. I have been using splenda as a sweetener subsitute , since im supposed to watch sugar now. Not sure what to do now since your nutritionist said not to use artifical sweetner. How long have you had your sfn and what do you take for your pain. some days the pain is just unbearable..any comments or suggestions would be appreciated.Thanks!

Hi Marie. No, I am not diabetic or pre-diabetic. I just went to a nutritionist because I'm trying to investigate any possibility when it comes a cause for this neuropathy. I find it hard to believe a condition like this could be truly "idiopathic"--how could a painful condition just start out of nowhere?

As far as sugar substitutes go, there are some that are natural (unlike Splenda, which is artificial). I think Stevia and Truvia are both derived from natural sources. There's also one called Sweet Leaf that my nutritionist recommended.

I've had SFN for a couple of years (burning, numbness, tingling in both feet, plus some pain in my heels). I was only diagnosed 9 months ago when the pain started to increase. I tried a few different painkillers but I didn't like the side effects (plus, they only helped slightly). Now I go for acupuncture once a week, which takes the edge off the pain enough that it's tolerable.

Best,
APJH

Stacy,
Not all carbs are created equal; have you really been tested for gluten sensitivity?

Unfortunately, your doctor discounts what you put in your body as having anything to do with the results. Prediabetes is often the precursor or cause of PN. It is often caused by gluten sensitivity, which is worse than sugar for your condition. At the risk of sounding too redundant, Glenntaj is correct.
I recommend spending $15 on Dr. Davis' book at Amazon: Wheat Belly.

No, I have not been tested for gluten problems.

But...it was about eating too many carbs because I can eat that exact same meal (have many times) and not have any problems, UNLESS I eat too much rice.

I don't usually eat all the rice, I scoop just a little to go with my chicken and give the rest to hubby but that time I was REALLY hungry and ate it all. Bad girl.

We get carry out with Chinese. I have to get a very bland
entree... usually shrimp with snow peas.

I have a little of the rice and put the rest out for the birds.
They love it! I keep it in the frig overnight --so it dries out a bit, and put it out with the bird food. It is very popular with the birds!

Stacy, I'm sure you are observant enough to know that too much rice caused a problem. But there are other things that may have contributed to giving you that effect; things like whether you added more soy sauce with more rice. Rice is a carbohydrate, certainly, but not usually a highly inflammatory one. There may be other things that accompany it that caused your reaction.

Yes, well, Like I said, we eat this chinese almost every single week and I don't have problems, the only thing I did different this time was eat all the rice.