Changing eating habits

APJH · 01-17-2013, 02:26 PM

Quote:

Originally Posted by Marie33

Hi APJH
I was recently dx with idiopathic SFN too.

. Was wondern if you have diabetes or if you saw a nutritionist just for the neuropathy. Still can not find a cause. I was dx with mild prediabetes, but my endo doc said the pred is not causing my neuropathy. I have been using splenda as a sweetener subsitute , since im supposed to watch sugar now. Not sure what to do now since your nutritionist said not to use artifical sweetner.

How long have you had your sfn and what do you take for your pain. some days the pain is just unbearable..any comments or suggestions would be appreciated.Thanks!

Hi Marie. No, I am not diabetic or pre-diabetic. I just went to a nutritionist because I'm trying to investigate any possibility when it comes a cause for this neuropathy. I find it hard to believe a condition like this could be truly "idiopathic"--how could a painful condition just start out of nowhere?

As far as sugar substitutes go, there are some that are natural (unlike Splenda, which is artificial). I think Stevia and Truvia are both derived from natural sources. There's also one called Sweet Leaf that my nutritionist recommended.

I've had SFN for a couple of years (burning, numbness, tingling in both feet, plus some pain in my heels). I was only diagnosed 9 months ago when the pain started to increase. I tried a few different painkillers but I didn't like the side effects (plus, they only helped slightly). Now I go for acupuncture once a week, which takes the edge off the pain enough that it's tolerable.

Best,
APJH

Steven N · 01-18-2013, 07:12 PM

Quote:

Originally Posted by Marie33

Hi APJH
I was recently dx with idiopathic SFN too.

. Was wondern if you have diabetes or if you saw a nutritionist just for the neuropathy. Still can not find a cause. I was dx with mild prediabetes, but my endo doc said the pred is not causing my neuropathy. I have been using splenda as a sweetener subsitute , since im supposed to watch sugar now. Not sure what to do now since your nutritionist said not to use artifical sweetner.

How long have you had your sfn and what do you take for your pain. some days the pain is just unbearable..any comments or suggestions would be appreciated.Thanks!

Unfortunately, your doctor discounts what you put in your body as having anything to do with the results. Prediabetes is often the precursor or cause of PN. It is often caused by gluten sensitivity, which is worse than sugar for your condition. At the risk of sounding too redundant, Glenntaj is correct.
I recommend spending $15 on Dr. Davis' book at Amazon: Wheat Belly.

Stacy2012 · 01-18-2013, 08:49 PM

No, I have not been tested for gluten problems.

But...it was about eating too many carbs because I can eat that exact same meal (have many times) and not have any problems, UNLESS I eat too much rice.

I don't usually eat all the rice, I scoop just a little to go with my chicken and give the rest to hubby but that time I was REALLY hungry and ate it all. Bad girl.

mrsD · 01-19-2013, 06:14 AM

We get carry out with Chinese. I have to get a very bland
entree... usually shrimp with snow peas.

I have a little of the rice and put the rest out for the birds.
They love it! I keep it in the frig overnight --so it dries out a bit, and put it out with the bird food. It is very popular with the birds!

Steven N · 01-19-2013, 07:13 AM

Quote:

Originally Posted by Stacy2012

No, I have not been tested for gluten problems.

But...it was about eating too many carbs because I can eat that exact same meal (have many times) and not have any problems, UNLESS I eat too much rice.

I don't usually eat all the rice, I scoop just a little to go with my chicken and give the rest to hubby but that time I was REALLY hungry and ate it all. Bad girl.

Stacy, I'm sure you are observant enough to know that too much rice caused a problem. But there are other things that may have contributed to giving you that effect; things like whether you added more soy sauce with more rice. Rice is a carbohydrate, certainly, but not usually a highly inflammatory one. There may be other things that accompany it that caused your reaction.

hopeful · 01-19-2013, 08:47 PM

Quote:

Originally Posted by APJH

Hi Kim! In trying to manage my own idiopathic SFN, I recently saw a nutritionist. I thought she'd tell me to try eliminating wheat or sugar or dairy. But the FIRST thing she said I must do is eliminate all chemicals and toxins. That means anything artificial in our food (hydrogenated oils, high fructose corn syrup, soy lecithin, artificial sweeteners like aspartame, etc.).

So I have not eliminated any food groups yet, but I've been eating a cleaner diet, free of chemicals or artificial additives. It wasn't that difficult--I had to throw out some salad dressings, grape jelly, BBQ sauce and snacks (I'm a salty snack-eater--now I stick with good ol' popcorn). I read labels more carefully, but haven't had to make any huge changes.

I do feel slightly better eating fewer chemicals, though my pain has not improved yet. Next, we'll focus on eliminating certain foods or food groups to see if it helps with the neuropathy at all.

All the best to you!
APJH

Hi APJH,
Please keep me updated on your progress. I have been following my plan for a week now. I still have not found I have any less pain but I am going to keep with it and see how it goes. I have also started to keep a log of my food and pain levels. I believe I really need to start paying attention to how I feel and when.
All the best to you!
Kim

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