[hopeful]

Hi All,
I don't come on alot so I should start for those who don't know by saying I have SFN, idiopathic. I am wondering if anyone has tried eliminating meat from their diet and did it help. I am going to try it. I am going to continue to eat fish. I have added many more fruits and veggies.
I wanted to put down what I eat each day so if anyone has any ideas if I need to add anything I would appreciate it.
I have organic oatmeal with some fruit for breakfast.
a shake for lunch with 4 oz of kefir, a couple pieces each of whatever fruit I have. Usually strawberries, pears, blueberries, banannas. I put in spinach and a tbsp of Vitamineral greens (Which really gives me energy for a few hours).

For dinner it is veggie, fish and sweet potatoe mostly.
I just started this about five days ago so I will find different things to add.
Weird thing is I am gaining weight all of sudden (even before I started this) and still am not losing. Strange

I also take Meds, Cymbalata, Snythyroid and Tramadol, R-Lipoic Acid, multi-vitamin and probiotic. They have recently started me on trileptal but I stopped it. I can't take these meds I swear they make me worse. Actually, though I feel like I am letting my doctor done. He keeps trying different ones and I keep weaning myself off. I can't take things that make me feel sick. I also get Ivig once a month.

Mrs. D and others can you think of anything else I need to be taking. I have added in some beans and nuts. I still can't give up my dark chocolate either.

Any help will be appreciated!
Kim

[mrsD]

Sounds good to me what you are trying.

Fish will provide some Omega-3s too which our nerves need to repair.

I personally don't have problems with meat. But I do get really tired of chicken.

Keep us in the loop with your progress. Eating simple, whole foods like you are doing is best, always.

Don't forget some type of beans, Edamame are good and so are black (easy to digest). They provide magnesium and so does that dark chocolate you have!

[Sallysblooms]

Not eating meat was what I think started my problems with CFS. After a few years, I was left with NO b12 after a test. I was so ill with vertigo and so many problems. I would never do it again. If you do this for a long time, the reserves will be used up. Thankfully, you do have reserves to help for a few years.

You have to be SO careful and test b12. Get a quality protein powder to make sure you get the amino acids, iron, zinc, protein since the bioavailabity is reduced. Muscle mass is reduced. Taurine, carnitine, etc can be found in eggs and dairy but not usually enough. I THOUGHT it would be.

Glutathoine is so important also. NAC is good to raise that and whey protein helps it.

Carnitine is also important. You can supplement that also. So many problems come if these are not supplemented. I wish I could do it all again, but now I make sure I include a wide variety of foods and meats. Good you are eating fish for sure. That helps.

Just be careful.

[Stacy2012]

For me, I would not get rid of meat, it doesn't cause me any problems. It is the carbs that I got rid of because the carbs make my pn worse.

Have you tried eliminating carbs first?

Have you tried taking Benfotiamine? It's a life saver for me.

[Sallysblooms]

Yes, many of the carbs are of no value. I eat foods that have a lot of different ways to nourish and heal. I eat good carbs.

[Marie33]

Originally Posted by Sallysblooms

Yes, many of the carbs are of no value. I eat foods that have a lot of different ways to nourish and heal. I eat good carbs.

Hi I also have SFN Idiopathic.ugh! no cause for me yet, anyway.
Its good to read you and many others write "heal" . Do you truly believe we can heal? Sorry im just overwhelmed and depressed. I can not for the life of me understand where this "horrible painful illness" came from. I was always healthy and active until one day 2 yrs ago I started having pins and needles in my legs and burning feet at night, its been down hill from there, its all over now.
Im taking many supplemets , even tryed metanx for 2 mos still have many pain symtoms. Tryn lyrica now, can not get past 50mgs once a day, side effects are harsh. I'm feel so hopeless. Any suggestions would be greatly appreciated . Thanks..

[hopeful]

Originally Posted by Stacy2012

For me, I would not get rid of meat, it doesn't cause me any problems. It is the carbs that I got rid of because the carbs make my pn worse.

Have you tried eliminating carbs first?

Have you tried taking Benfotiamine? It's a life saver for me.

Hi Stacey, What type of carbs have you illiminated? I really don't eat very many. Mrs. D recommended trying gluten free and I started that about 6 months ago. That did not help my PN but boy does my stomach feel so much better. I had problems with it for as long as I can remember. Actually what is Benfotiamine?

[hopeful]

Originally Posted by mrsD

Sounds good to me what you are trying.

Fish will provide some Omega-3s too which our nerves need to repair.

I personally don't have problems with meat. But I do get really tired of chicken.

Keep us in the loop with your progress. Eating simple, whole foods like you are doing is best, always.

Don't forget some type of beans, Edamame are good and so are black (easy to digest). They provide magnesium and so does that dark chocolate you have!

Hi Mrs D, Makes me feel better that you agree with what I am doing. Before you had recommended grape seed I brought it an never took it. Is it possible to open the capsules and put it in my afternoon drink? Does it change the potency? Also, I can remember why you recommended it? Thanks

[mrsD]

Originally Posted by hopeful

Hi Mrs D, Makes me feel better that you agree with what I am doing. Before you had recommended grape seed I brought it an never took it. Is it possible to open the capsules and put it in my afternoon drink? Does it change the potency? Also, I can remember why you recommended it? Thanks

Grapeseed extract is an antioxidant free radical scavenger and
is good for inflammation and allergies.

Some of the people over the years at RSD use/used it with some success.

Why open the capsules? It might not taste too good...

[mrsD]

Apple and pears have the highest fructose of all fruits.

http://en.wikipedia.org/wiki/Fructose_malabsorption