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Old 01-21-2013, 11:34 AM #1
Susanne C. Susanne C. is offline
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Susanne C. Susanne C. is offline
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Quote:
Originally Posted by featherbullet View Post
Hi, severe idiopathic neuropathy over here from neck to my toes ( moves around but always somewhere)
I've been on oxycodone for about 9 months now which helps 90% of the time. I am also on Lyrica.
My doctor says that oxycodone is addictive (duh) and is tapering me off of it.
Has this happened to anyone? How do I convince him that this has saved my life!?
He wants me on cymbalta instead.
I am already thinking about the great length I might go to just to acquire this medication.
Are doctors really doing what's in the patients best interest? Or merely covering their butts.
Thanks for listening.
This place is very helpful for me.
If you are young, there is a proper reluctance to prescribe medications that you will effectively be on for the rest of your life. There is also a greater chance for abuse among younger patients. Do you have test results that indicate the severity of your neuropathy? My experience has been that while you can indeed be in severe pain without clear test results on a skin biopsy or EMG, doctors are more reluctant to prescribe heavy pain killers. I know that I am fortunate to have tests which indicate the progression and severity of my neuropathy, which is hereditary.

Is the Lyrica helping? I have constant, debilitating pain in my legs and feet. It would wake me up at night. I am currently on 15mg of time release morphine (ms contin) twice a day, and 7.5 mg. oxycodone as needed. I take two a day. This is a fairly moderate amount but I no longer wake up in pain and the morphine makes the oxycodone much more effective. Our doctor was very careful to explain to my husband and I that I would probably be on this medicine or something like it for the rest of my life, but that is different at 51 than it would be at 25.

You may need a different doctor or a pain management specialist, but the fact that your neuropathy seems to move around may be what is causing your doctor concern. That is pretty unusual and there isn't really a protocol for him to follow.

The more that you insist that you need the oxycodone, the more red flags he is going to see. You must be careful how you talk to doctors about pain medicine. If it really helps you in your daily functioning, calmly stress what you are able to accomplish with it vs. without it. It is all about restoring function, not just relieving pain. You must not expect to have all of your pain eliminated, that is not the goal of pain management. You may be able to get him to agree to restore your oxycodone if you try his other ideas and they do not work, but you must appear to respect his opinion as to your treatment in order for him to respect yours. Good luck.

Edited to add, in response to your last question, most doctors want to help, but they all want to "cover their butt" even if that means untreated pain.

Last edited by Susanne C.; 01-21-2013 at 02:08 PM.
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Old 01-22-2013, 03:54 PM #2
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I took it for a burn, 10 days later (after they discharged me from the hospital, and I was on the pills only) I decided not to take one, see how I did. I was in full blow withdrawal, major body shaking, feeling freezing. Took another pill and I was totally fine. Doc didn't believe it because I never got up past 1 pill at a time, but I'm sensitive. It took me 6 weeks to get off of it, down to 1/4 a pill at a time. To have to be addicted to that, physically and not mentally, was really hard. I didn't want to take it, but my body made me. I'm really scared about the need for opiates or narcotics in the future. Vicodin either doesn't work or makes my stomach upset. I've tried Ultram and it made me puke and my body hated it.

I will fight being put on pain meds as long as I can, but I do smoke pot every single day (I'm in CA, it's prescribed). I can do that and be a functional human being (cook dinner, clean, be a parent), and not go into withdrawals if I don't get it. I think that's a big thing, me being able to work and function without pain meds. I know a lot of you out there are a lot worse than I am, and in a year I might eat my words. I keep seeing posts by docs that say "my clients are on XYZ and Methadone", ugh, I can't imagine taking something that strong. I feel for you that have to deal with it.

You doc needs to find something to replace the Oxycodone! Or you'll self medicate, right?
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Old 01-22-2013, 07:09 PM #3
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Where abouts are you? Here in the UK my pain consultant prescribes Lignacaine (lidocaine) Infusion and I am able to lead a normal life by getting this every 6 weeks. I don't think it is used in the US.
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