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Old 02-05-2013, 10:34 AM #11
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Thanks Mrs. D. I'm so glad yours improved. I had already been on Synthroid for 15 years before my neuropathy started. My levels have been good with only a slight adjustment over the last few years. I guess that is not my answer then.
Thanks, hopeful
Hashis is ONE form of hypothyroid, which has a common comorbidity with celiac disease.
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Old 02-05-2013, 04:05 PM #12
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The best place to learn about various thyroid issues is:

www.stopthethyroidmaddness.com


It was so helpful for me and my doctor. I actually had my doctor go to this site so he would understand why I believe and felt the way I do about thyroid and medications that I wanted.
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Old 02-06-2013, 09:10 AM #13
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There is another B12 evaluation test called MMA. This will be high if B12 is not working for you.

Yes, acid blocking drugs will reduce B12 absorption. They also affect Folic acid, magnesium, calcium, iron, and zinc (that we know of currently). Therefore these acid blocking drugs are implicated now in osteopenia (younger patients) and osteoporosis (older patients).
This article gives further information, and lists more minerals than I have seen so far:
http://www.nutritionreview.org/library/gastric.acid.php

If you don't use methylcobalamin, and are one of those who have genetic errors, in methylation chemistry, you may test high because of the supplements, but the B12 cyano form, will not be active in the MMA cycle. So the MMA would test high (building up) in this case. This is a common mutation, 10-30% of people have it. A doctor came on here a couple of years ago and suggested the 30% is likely. I used to post 10% only until his suggestion.

There are also tests for INTRAcellular nutrient levels. These are done by special labs... like Spectracell. Testing only the serum, which is more common by traditional doctors, is thought to be quite imperfect, since it does not show what is happening in the cells themselves.

http://www.spectracell.com/
Most integrative doctors and naturopaths, use this type of testing.

Mrs.D, I hope you are getting better every day.

I read your link about "Heartburn: Not Always Caused by Acid". This is not the first time I read about an article that says the same thing. I mentioned this matter to my gastro in one of my visits but she nonchalantly said that low acidity does not have symptoms. Its frustrating because she is supposed to have a good reputation in her specialty. Is there a particular test that will determine whether one has low or high acidity? Although, my abdominal distress is no longer as bad as it used to but there is still the feeling of discomfort - only its tolerable. I have a visit this afternoon and I want to bring this up again. I dont want to be taking the Nexium if not necessary.

Thank you.
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Old 02-06-2013, 09:48 AM #14
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Stomach acid test:

http://www.nlm.nih.gov/medlineplus/e...cle/003883.htm

Doesn't sound like fun.

Have you ever just stopped taking the Nexium to see if your symptoms get worse? That seems like the easiest way to determine if acid is your problem and whether the Nexium is really necessary.
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Old 02-06-2013, 09:51 AM #15
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This link give 3 tests you can try for this.

The first one is a scientific one requiring doctors and equipment.

The second 2 you can do at home yourself.

http://scdlifestyle.com/2012/03/3-te...-stomach-acid/

You will have to go off any acid blocking drug for about 4 days...when
testing, to get a more accurate result.
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Old 02-06-2013, 10:54 AM #16
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This link give 3 tests you can try for this.

The first one is a scientific one requiring doctors and equipment.

The second 2 you can do at home yourself.

http://scdlifestyle.com/2012/03/3-te...-stomach-acid/

You will have to go off any acid blocking drug for about 4 days...when
testing, to get a more accurate result.
Thank you Mrs.D!

I read this article before and I was about to test the second one - baking soda test. I actually bought a pack of baking soda, but on the same day, I was diagnosed with MAC. So, I had to prioritize taking hte antibiotics. I take the antibiotics first thing in the morning on an empty stomach. This is the recommendation of the doctor from NIH I talked to (on the phone). It seems that there is a "stronger kick" if taken on an empty stomach. I am concerned if I try the baking soda test before taking anything in the morning -- if it will interfere with my antibiotics.
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Old 02-06-2013, 11:01 AM #17
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You could take the test any time of day, before a meal.
At least 4 hours (or more) after eating a previous meal. It doesn't have to be first thing in the morning.
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Old 02-06-2013, 11:03 AM #18
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Stomach acid test:

http://www.nlm.nih.gov/medlineplus/e...cle/003883.htm

Doesn't sound like fun.

Have you ever just stopped taking the Nexium to see if your symptoms get worse? That seems like the easiest way to determine if acid is your problem and whether the Nexium is really necessary.
Hi en bloc! How are you? We have not "encountered" for a while. I hope your days are good.

The test really doesnt sound fine. I am not sure if I am ready to undergo such a test with all my troubles these days. I remember my husband had a test with a name "gastrin" in it. He could not just remember the name of the test but it was a blood test. If there was any insertion made, I am sure we will remember it.

Skipping the Nexium to test if hyperacidity is my problem is a sound idea. I will think about it.... Thank you.
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Old 02-06-2013, 11:15 AM #19
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Back in the day (a good 20+ years), they would use a 24 hour PH probe to test for GERD. Acid seems to cause more of a problem IF it gets outside the stomach...like into the esophagus. The PH probe (inserted via the nose) is placed in the lower part of the esophagus to measure acid levels 'refluxing' out of the stomach over 24 hours. I don't know if they do this anymore. It seems it's more of an 'assumption' that GERD is the problem as soon as patients mention typical symptoms and PPI's are prescribed without much of any testing. Now that they know more about long term effect of PPI's I'd hope they confirm people really have GERD and hyperacidity before handing out PPI's like candy.

I have had better times, but good to 'see' you.
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Old 02-06-2013, 11:21 AM #20
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Mrs D,

Is there a 'rebound' or withdrawal syndrome when getting off PPI's? Something tells me I've read that it takes a few days or so for acid levels and tolerance to balance out...but I could be wrong as it might have been about some other drug class.
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