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Old 02-03-2013, 03:01 PM #1
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When I was finally prescribed levothyroxine, my feet started to wake up. They had gone from pain, to numb over many years standing all day at my job. Once they started to tingle, then slowly over a year, it was over. No more numbness, except for the very tips of the 2 middle toes still today.

My hands improved alot too. I complained about it all to the Endo, who was totally UNMOVED ...I hated him. He was rude too. After he did the radiouptake testing, and stabilized my doses, I went back to my internist. She follows me now.
If I over use my hand or both of them, I wear the splits at night for a week or so. I just got my TSH levels back at 1.9... still stable after all these years! Free T4 was a bit out of upper range, but only by a point or 2. Free T3 was normal.

Things are so much better since those old days. And during my pregnancy it was very very bad. I lost 80% functions in my hands starting in the 5th month on.
Low thyroid leads to deposits of mucin in tissues, and in the hands and feet with the ligaments so tight, this can compress nerves. I don't know about other presentations of PN and pain elsewhere, however, because when I searched mucinosis I found very little. It is possible doctors don't know about it much either.

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Originally Posted by hopeful View Post
Hi Mrs. D. I am wondering how the doctors knew for sure that it was your hypothyroidism that caused your neuropathy.

I wonder why my doctors didn't tell me my hypothyroidism could be the cause of my SFN. I've had hypothyroidism for about 20 years and have taken synthyroid all of that time. I didn't know that alone could be a cause for neuropathy. I was dx'd with hashimotos 2 years ago. Am I right that hashimotos is the same as hypothyroidism?

Could this actually be the cause of my SFN?

Thanks, Hopeful
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Sallysblooms (02-03-2013)
Old 02-03-2013, 07:47 PM #2
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Thanks Mrs. D. I'm so glad yours improved. I had already been on Synthroid for 15 years before my neuropathy started. My levels have been good with only a slight adjustment over the last few years. I guess that is not my answer then.
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mrsD (02-05-2013)
Old 02-05-2013, 10:34 AM #3
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Quote:
Originally Posted by hopeful View Post
Thanks Mrs. D. I'm so glad yours improved. I had already been on Synthroid for 15 years before my neuropathy started. My levels have been good with only a slight adjustment over the last few years. I guess that is not my answer then.
Thanks, hopeful
Hashis is ONE form of hypothyroid, which has a common comorbidity with celiac disease.
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hopeful (02-05-2013)
Old 02-05-2013, 04:05 PM #4
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The best place to learn about various thyroid issues is:

www.stopthethyroidmaddness.com


It was so helpful for me and my doctor. I actually had my doctor go to this site so he would understand why I believe and felt the way I do about thyroid and medications that I wanted.
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