CoQ10 & small nerve neuropathy

Beachbum65 · 07-10-2013, 04:24 AM

Quote:

Originally Posted by Marie33

Today I finally met a Doctor who was compassionate and caring! Update on me .. 2 years ago I was diagnoised with "Idiopathic" small fiber neuropathy by punch biopsy.My new Neurologist spent more then over an hour with me and was refreshingly honest. Because I am otherwise very healthy ,He will not accept my neuropathy as Idiopathic at this time. He wants to do more tests and said he will consult with a Neuromuscular Doctor at this Medical Ctr and will do some research this weekend. (wow) Ok Fast forward.. He recommends I take CoQ10 said to make sure I get the Ubiquinone form for Mitochondrial trtment. I have searched the internet and found this form CoQ10 very expensive. My question is does any one take CoQ10 for small nerve neuropathy, and what is the difference between Ubiquinone and Ubiquinol? The Doctor said to take 1000 mgs twice a day with a tsp of Olive Oil. I do not know anything about Coq10, but I read many PNers on here take it. This dosage seems like alot. Does anyone take Coq10 and how much do you take and does it help? I will wait for a response before I order it..Thank you in advance!

I take 200 mg. COQ10 once a day. The soft gel type, it does help me but it took months before I noticed any difference. I take so many supplements that it is difficult for me to pin point which ones work the best for me. My neurologist told me that the B12 5000 mcg. And the COQ10 probably was the reason my constant nerve spasms up my legs quit . I am still trying to figure out myself. God bless !

Marie33 · 07-11-2013, 10:32 AM

[QUOTE=Beachbum65;998700]I take 200 mg. COQ10 once a day. The soft gel type, it does help me but it took months before I noticed any difference. I take so many supplements that it is difficult for me to pin point which ones work the best for me. My neurologist told me that the B12 5000 mcg. And the COQ10 probably was the reason my constant nerve spasms up my legs quit . I am still trying to figure out myself. God bless !
Hi beachbum, glad to hear your doing better. Im starting to take 100 mg of coq10 again, hopefully it will help. I was taking 5000mcg of methycomb/b12 but my neurologist told me to stop taking it because my B12 blood count was too high (1895)

but I am taking 2000mcg a day anyway. Did you have your b12 checked and is it high? Not many neurologist believe in taking b12 or other supplements for sfn. I hope someday we all find some relief from this horrible pain. thanks for your respons.

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