I have a diagnosis as Idiopathic PN.
I have had the following symptoms for the past 7 years:
Balance issues / falls
Leg weakness
Decreased temperature sensation
Moderate hand coordination issues
Fatigue
Tremor
Restless Leg Syndrome

But during those years, symptoms had been progressing slowly. That had changed since early 2012, when things have been rapidly declining, and a developing GU/GI range of symptoms that my PCP believes is autonomic in nature.

Now I feel that my situation is going downhill quicker than I thought would happen. My question is this: Have you had a slow progressive / stable PN, that suddenly became worse over the course of a year?

I look forward to your thoughts.

Thank you

Bob

Hi Bob,

Welcome (your post makes you sound rather new).

Many here have experienced improvement through the use of supplements and other therapies. Oral B12 is one of them. But I am not the expert. Others will post here, I am sure, with their excellent recommendations.

Good luck. You are not alone.

Idiopathic neuropathy just means that they do not know what the cause is. Have you ever had DNA blood testing to see if they might be able to come up with a diagnosis instead of idiopathic? Is there a family history of any of your symptoms? Hope you find an answer.

tons of tests, all negative. I am adopted so no family history available. Only tests which were postive was EMG/NCS

Any tests done for CMT? There are over 50 types of it. And plenty of other neuropathies out there.

Hmmmm... your list does not give details of sensory problems.

Most idiopathic patients start with sensory issues.

You have balance, and muscle weakness mostly?

That is another thing entirely. I'd see another doctor and get
another opinion. Also look at your drug list for all conditions.
There might be a culprit there.

I'd find a neuromuscular specialist.

Thanks, I have sensory issues, mostly reduced vibration, sensing cold, and the friendly accompaniment of what feels like, flies, ants and tarantulas crawling up my calves