Reply
 
Thread Tools Display Modes
Old 03-02-2013, 02:16 PM #1
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,440
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,440
15 yr Member
Default

http://www.hnpp.org/varieties.htm

Scroll down to "Progression of HNPP". As you can see it can be slow for some and rapid for others. Not saying he has this but it might be worth having DNA testing for it. Actually, the whole site on HNPP is very interesting.

Not saying at all that he has this but it would be worth checking out. And to have a neurologist who knows about this.
__________________
Kitt

--------------------------------------------------------------------------------------------------------

"It is what it is."
Kitt is offline   Reply With QuoteReply With Quote
Old 03-02-2013, 04:15 PM #2
Irelia1680's Avatar
Irelia1680 Irelia1680 is offline
New Member
 
Join Date: Mar 2013
Location: Bay Area, CA
Posts: 3
10 yr Member
Irelia1680 Irelia1680 is offline
New Member
Irelia1680's Avatar
 
Join Date: Mar 2013
Location: Bay Area, CA
Posts: 3
10 yr Member
Default

Quote:
Originally Posted by Kitt View Post
Scroll down to "Progression of HNPP". As you can see it can be slow for some and rapid for others. Not saying he has this but it might be worth having DNA testing for it. Actually, the whole site on HNPP is very interesting.

Not saying at all that he has this but it would be worth checking out. And to have a neurologist who knows about this.
Nor was I saying that he does not have it. While it does say that it can be rapid and some of it sounds right, none of this has been "activity based" at all as far as I can tell. It just seems strange that it would hit with this, to a large degree, body wide wombo combo all at the same time.

He is feeling somewhat better today, and he said the tingling in his abdomen is better.

The genetic test would definitely be worth having done if we can make the HMO do it. More information is never bad. And he could potentially have a mild case of HNPP with something else interacting heavily.
Irelia1680 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitt (03-02-2013)
Old 03-02-2013, 07:24 PM #3
pabb pabb is offline
Member
 
Join Date: Sep 2006
Posts: 779
15 yr Member
pabb pabb is offline
Member
 
Join Date: Sep 2006
Posts: 779
15 yr Member
Default

the bacteria mrsd mentioned normally takes 2/5 days for symptoms, but may take as long as ten.
pabb is offline   Reply With QuoteReply With Quote
Old 03-02-2013, 09:40 PM #4
Sallysblooms's Avatar
Sallysblooms Sallysblooms is offline
Member
 
Join Date: Jun 2010
Posts: 668
10 yr Member
Sallysblooms Sallysblooms is offline
Member
Sallysblooms's Avatar
 
Join Date: Jun 2010
Posts: 668
10 yr Member
Default

Irelia, lots of information in the thread. I am glad you are researching for your father. I hope you can get to a really good doctor that is more helpful. I know your research will help for sure.
__________________

.
Sallysblooms is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Diagnosing PCS giselle459 Traumatic Brain Injury and Post Concussion Syndrome 2 06-06-2012 07:28 PM
Diagnosing: MRI's Freesia38 Multiple Sclerosis 2 07-22-2009 11:32 PM
Diagnosing CD. Megan Gluten Sensitivity / Celiac Disease 10 10-22-2007 01:42 AM
Co Morbid Diagnosing Mrs. Bear Bipolar Disorder 3 11-23-2006 05:01 PM


All times are GMT -5. The time now is 07:22 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.