I asked my orthopedic guy (doc, he's so nice, seems like a friend) why I was so low - he said it could be hereditary, just like hereditary high cholesteral and such. Sounds like you've done a lot to try to help yourself - I have no suggestions, wish I did. You'll find something!! :hug: Seek and ye shall find!! I just heard vitamin deficiencies can cause pn, so I figure I better take vitamin d. The orthopedic guy also found an extra joint just sitting in the middle of one of my hip bones, he said that was a - congenial... ok not the word,.... but close, like an benign inherited birth defect.... It made me feel creepy to see it on the exray though.

You and Faith Keeper talked me into it. I took 5000 yesterday. My foot didn't burn when I layed down last night, my new back problem didn't wake me up in the middle of the night, my new back problem was gone this morning. I didn't have all over itching / pricking yesterday. I could have just had a lucky day, or maybe it helped. Thank you.

You and Mrs. D. talked me into it. I took 5000 yesterday. My foot didn't burn when I layed down last night, my new back problem didn't wake me up in the middle of the night, my new back problem was gone this morning. I didn't have all over itching / pricking yesterday. I could have just had a lucky day, or maybe it helped. Thank you.

Also to be fair, I should mention, I'm tapering off Geodon (bp drug)..It already gave me an irregular EKg about six months ago, so it was cut back, so I suspected it when I heard it can also cause cramping (I was having cramping in multiple areas right calf and was starting in the left)... that is being cut down slowly - the cramping has backed off but the foot burning at night began. It seemed like I traded cramping for foot burning. But that 'getting off geodon' experiment is not over yet... but this is why I was so impressed when my foot did not burn last night... in addition, I usually get a half dollar size burn in my right calf at bedtime too, that did not appear.

I took my Protein shake in the morning (Vanilla Keto Shake - half banana and real low sugar scoop of yogurt), the b complex and Q10 the orthopedic guy told me to take, the b6 100mg the neurologist said to take and then the D3 5000... The rest of the day I tried to eat like South Beach Diet says too, just got the book - so all that together... I hope I get as lucky again today, I will be a happy camper.

The RX version of D (oral 50,000IU).....is D2 (ergocalciferol), and not very efficient in raising levels. New studies show it doesn't work, and is not active in the body, to any helpful extent.

OTC D3 will be much more effective. Fortunately, this is quite inexpensive, and easy to find in many stores.

I am corrected my post, it's
CoQ10 200mg Berkley and Jenson from Bj's
and
D3 5000 IU the chewable kind, but Im going to get just the pill kind to cut out the sugar.
Full Strength MINIs Super B Energy Complex
And it's Nature's Plus KETO Slim High Protein Shake
It's chock full of vitamins and the keto makes you feel full for a while - Im also bp and this has helped my head feel better, I've been on and off it for years - whenever there's an ailment, I'm back on it again and I at least feel more positive. I had endless yeast infections when pre menopause came along, I got back on it and they stopped. Cant promise it will cure pn though.

Are those the best?? I have NO IDEA!!! :D

From reading all around here last weekend most other people here sound more knowledgeable than me and unforutnately the orthopedic doc didn't tell me which BRAND he uses (probably the most expensive kind ;) )

I am feeling very HOPEFUL for the first time in a long while - I am glad I popped in here. It's nice to have a break from feeling doomed.

What does OTC stand for Mrs. D? I'm hoping it just means over the counter. Please excuse if dumb question, I'm not used to having illnesses except bp; I'm fluent in that one.

OTC is over-the-counter, yes, you are correct in that.

Both of the most helpful initial supplements for common PN
symptoms, happen to be OTC in the US and also very inexpensive. We are so fortunate in that regard. Given that more people have PN than MS and PD combined, and it is now becoming more common in younger people too!

Hence use your doctor to do the testing that you need. But do NOT assume your doctor will interpret the results properly or treat you properly. It will probably be another decade for that to to come around properly! Get and keep your test results for yourself and never accept "normal" comments.

PD =...?
Peripherral Neuropathy (spell) from Diabetes? :confused:

Thank you for your time and answering my posts Mrs. D. Just as soon as I can get a doctor to test me for something, I'll put up my 'results' :Talkative:

PD= Parkinson's disease.

PN= Peripheral neuropathy

MS= Multiple sclerosis

Considering the prevalence of PN... it is vastly ignored by the
medical community.

I've had gallbladder problems before, but they went away... I thought it was neuropia and the doc (neurologist) didn't say anything like that when I told him about but - BUT I am getting my records tomorrow and getting a second opinion and will keep everything in mind you have told me, Thank you! Karen