Unbelieavable but true :D...

So I started taking 5000 (you know the initials) of Vit D3 on Monday.

I've kept a journal with DETAILED notes...

Usually when I ride my bike (I was a 35/40 min./per day rider - neurologist told me I can only do 10 min. now :mfr_wha:.. I sneak that to 20 / 25 min.) the area in my calf (it's towards the outside and happens to be right on that big nerve that the doctor shocks over and over when he's doing that test that tells that you have an 'abnormality) well.. that area usually 'complains' when I'm riding my bike and when I get back to the house it's gonna' ache for a while.... or even work up an actual cramp, etc...

Guess what, by yesterday, which was Wednesday - when I went out on the bike ride- I could no longer feel a thing (the epi-center' of the worst cramp) - on that calf, at all, during the bike ride! :Speechless: After bike ride, it's barely a whisper today , I can't believe how it has dissappeared.

I hope this is not a fluke or a lucky streak :smileypray:

I spent easy 150 dollars on accupuncture when It first started up, with none of the level of results achieved in couple days with Vitamin D

Also, last night, now I'm sure this was just dumb luck - when i went to bed, no burn, no tingle, either foot, no muscle cramp - no nothing. It was like I never had anything. I sure had fun pretending I was cured for a while. Wow. :D

Thank you 'specially to Mrs. D :You-Rock:
For the Vitamin D INFO.!!!

Now all I have to do is get a handle on my long running spells of all over itch-prickle and I'll be a happy camper.

Also should mention while Im documenting here... the cramps that were starting in my rear end muscles, the cramps that were starting to threaten in the OTHER calf... I can barely even tell they are there now, they have simmered down so much.

D
 

I just got back my latest blood work and my D is still low. I take 2 2000s a day but often forget the second. My doctor told me I needed to take calcium with it. I guess I knew that but I have to up it now.

My Vit D,25 hydroxy is 56 range 31-100

My Vit B12 is 366 range 180-914

Looks like your B12 is low. 400pg/ml is the new accepted lowest norm. Try and get that up to about 1000.

Your D looks good. Far better than most people on ALL the NT boards! Some people test out in the single digits!
Maybe because you are outdoors so much! Hobby and work?

Thanks, I wasn't sure even though they said it was good. Strangly my testosterone level has peeked to 977 Range 285 to 650 for my age. So I have to back off on that. My neuropathy has taken a turn for the worse. More severe numbness and tingling. I can still hike and I seem to feel better keeping the blood moving, but it is a bit scary again.

Happy Story :circlelove: : Short as possible, as favor to friend, began cleaning her house bi monthly (she pays super well)...

Two weeks ago, after i got finished the top floor, I went to the downstairs and realized the dang right leg (calf where it cramps and such) already had an 'out of gas' feeling. Was wondering if I was going to make it through the whole house. Well, I did.

Today, was there again, well into the lower level and suddenly I realize - Hey - I'm not tired. That out of gas feeling in my right calf is non existant... in fact, I haven't felt that in days. More so - there is not even so much as a hint of a cramp right now. It only feels normal like it used to. I find myself fighting back tears of joy for like twenty minutes as this realization dawns on me :holysheep:... I even recalled telling my bf two weeks ago... I might have to start doing that house in two days... one day the top, the next day the bottom.... when I remembered that - I had to finally just go and get a tissue. :)

Now I gotta go tell all the ppl that have been praying for me ...

Thanks for this post
 

I'm glad I stumbled on your post. My PN symptoms started last may and I accumulate new symptoms every few months. I had low vitamin D last May when they checked it, but they gave me a perscription and after a month or so it came back "normal". After reading this post I know that it's more than likely not where it should be. I'm going to go get my D and B12 tested this week.

Lw vit D
 

I also had a very low vitamin d level.I took prescription vit. d fo a few months . I took 50,000 iu twice a week . now I take otc 5000 iu 4 times a week.

The Rx version given by doctors is D2, ergocalciferol. Now we know it is not really effective, since new studies demonstrate that. But it has been on the market for over 40 yrs, and doctors think it is useful therefore. :rolleyes: Rather like the staying power of magnesium oxide which is also poorly absorbed. :rolleyes:

It is best to use D3 cholecalciferol, OTC. 1000 IU per every 10 points you need to raise.

Here is our Vit D thread with the newest information on it:
http://neurotalk.psychcentral.com/thread92116.html

@ Karen....

Karen, don't take it upon yourself to stop abruptly your Tegretol.
This drug should be tapered off slowly, as seizures might result if it is stopped to quickly. You've been on it for a long time, and your body is used to it. So do be careful, and if your doctor is clueless about this, educate him/her and demand a taper if the decision to change your medication is made.

I can't change anything without the doctor :). Right now they're trying to switch the Geodon for something else to see if that has an effect on the cramping. (Agreed by both Neurologist and Bipolar doc) I haven't even got that done yet. Thank you again for your reply although I am fuzzy on the reason why - I had trouble understanding the link you referred me to.