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Old 03-27-2013, 10:12 AM #1
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mrsD mrsD is offline
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I can totally commiserate with you, hopeful.

I had to WORK with those arrogant people... and take their
guff all the time, with me being much "lesser" in their eyes!

Neuros can be this way. It seems from all the posts I read here, that just reinforces what I learned myself... neuros can be very very cold.

Getting all psyched up and going there is draining...it has to be a very huge letdown, when treated this way.

There really can be no answers sometimes in medicine. And it is difficult to accept that.

There is a poster on MS, who has diagnosis that was hard in coming.
This is his profile:
http://neurotalk.psychcentral.com/member.php?u=552

He has written a book for people with chronic conditions, that is available on Amazon.
http://www.aboutcraigmattice.com/
He has been a great inspiration to many online.
He slowly lost the use of his legs, and it took him a LONG time to find a doctor who understood what was happening to him.
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hopeful (03-27-2013)
Old 03-27-2013, 10:25 AM #2
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Thank you en bloc and Mrs. D. You have given me something to think about. En bloc I have a IVIG RX coming up. I think I will get that one and keep notes on how I feel and how much relief I received. I did not think about the possibility of NIH not accepting with the IVIG Rx.

Mrs. D. I'm going to go to the site you gave me later today and read about him. I am also going to get his book.

Thanks again! hopeful
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