I'm really glad you have meds that are helping. Keep up the good fight!

Hi featherbullet,

Bless you ,I know how you feel -exactly. Lifes just been stolen away from us!. Just something that has helped me a little so thought id message you is having a fast acting med to top up and for surges in pain (breakthrough or spikes). As well as oxycontin , i have oxynorm (its fast acting sister). I assume your oxy is slow release - i find that doesnt cover the pain sufficiently.
I also take lyrica.I also cant function if i take too much - its horrid stuff. Have you tried topiramate?

A cream im trying is suppose to ease nerve/itching pain etc... Its Capsaicin cream. Ill let you know how it goes( prescription only).

Oil of magnesuim - i spray on joints - cant really say if its helping but anything is worth a shot.

Also im now on methadone for pain . It has helped a little.

Stay strong. As we read on site things can stabilise and even get slightly more tolerable

God bless x

Hi there, I feel your pain, trust me. I am also dealing with burning pain (nerves) and I have found that the least xr-mri-ct scans you have, the better. When I went off the painkillers it was hell for few days (oversensing) hell on earth.
However once the postwithdrawal symptoms receded, I started to feel much better (emotionally, mentally) the pain is back to being very bad however, I have found that a combo of
Voltaren with 100% lavender lotion immediatly eases the nerve pain and the burning sensations.
The problem with voltaren is that it can be mean on your stomack even if is topically used.
As a result, avoid drinking coffe, alcohol and any other irritants while on this treatment..
YOU will be able to sleep and to feel better (less is more, no more meds, they make you sicker) of course talk to your doctor to wind off painkillers, is not impossible is more the fear of people, use over the counter tylenol back pain while on withdrawals and maelox and you will be fine.
it is better to feel the pain but be sober and foggyless during the day, then feeling the pain and feeling like dead walking. I hope this helps!

More bad news : 1) got denied disability for the second time
2) After I ran out of oxycodone I began going into withdrawals. Sweating, diarreah, increased pain, headache,fatigue.. it seems that the patch alone is not enough .
My pain doc is away so I am once again secluded and depressed.
I don't want to go to my GP and look like a drug seeker/hypochondriac since I was there a week ago for thumping in my ear, and the week before for chest pain.
Need some hope

Doc should have given you enough oxycodone to get through the withdrawals. You can't just stop cold turkey. I was addicted to Percocet after a surgery and it took me 6 weeks to get off of it, at the end I was only taking 1/4 of a pill, but it was the only way my body would let me. I was shaking (like full body back and forth) and absolutely freezing just a few hours into it.

This discussion mentions phenergan (allergy med) to just knock you out during this time. It goes over people's experiences with withdrawal and how long it took:
http://www.drugs-forum.com/forum/showthread.php?t=32574

Does your doc have an answering service? I'd call his office and find out. He can call your GP so he can write you the prescrip?? Or just don't care about how you feel around your GP and call anyway. This is not a good feeling and it sucks that they didn't prep you for coming off of it.

And what the hell about your disability? I'm so sorry.

I know the pain of being rejected for disability. I went three go rounds before it was granted. Also weened off morphine, so I certainly know about percocet and the withdrawls with that. Your doc. should have given you something to ease your way off the drug. I received kolonopin. Have hope that the sensations will not last, and that there are other medications that have less bad side effects.
Hope you have legal reps. for your claim. don't give up feather, it will happen. Most people I know have indeed been rejected a few times. I know how devestated you fell however. This system of ours, makes us suffer too much. You will be in my thoughts and prayers. ginnie

Hey guys. Nice to see you
So to clarify, I was on oxycodone, but it stopped working..so he switched me to the patch, and said to just taper off the rest of my oxys. It wasn't planned out well. Now I'm relying on an old script of morphine for the breakthrough and withdrawals. Clearly I meed more than the 25 mcg fentanyl patch. It all sucks so bad. My mind is not clear , and there are so many ups and downs.Honnestly, I suffered with severe depression before I had pain, and now ..it is a daily battle with very bad thoughts. I also have anxiety and a personality disorder which make me very unstable to begin with.
My pain doc is away for the week, and my GP does not prescribe opiates. Also, my pain doc does not believe in breakthrough meds. He thinks people should meditate.argh!!!

Thanks for the link. I am part of that forum . I am not going off everything, just the switch from oxy to fentanyl. Some doctors are now saying that opiates cause more pain and are trying to get everyone off them. But now I am hooked, and there is no alternative besides lyrica. * screams and cries*
I hear the disability ( here it is called ODSP), is not easy to obtain. I have been warned that it may take up to 2 years and a few tries.
Honestly, by that time if I am still so disabled, gosh...I don't even know what to say there.
I should have applied 2.5 yrs ago when this started. I didn't get a proper diagnosis until last month though. Its all a big catch 22. Too sick to work, but have to to live. Can only do so much to help myself with limited funds. I'm 29 and living off hand outs to make rent. I couldn't finish school because I couldn't pay.
I am just stuck in a nightmare that never ends. I am not usually the type to pray, but I need a miracle. I am just not getting anywhere but deeper into despair.

Thanks for the support. I'm grateful to vent and have people that understand completely ( except maybe the mental illness)

just thought you might need a couple of hugs and to let you know I am praying for you and hope you get some relief, I know what you mean about lyrica ppl wit depression should not be on it from what they say take care

I think I would change doctors. sounds like they left you hi and dry with nothing to help you through this. I go see a physiatrist, who deal with pain first, then try other things to help too. Please be careful with adding morphine without a doctor. That drug is the worst when weaning off the medication. I was on it 12 years or so, and when through hell getting off it. Try your best not to take it OK? If you would have to cold turkey off it, you would be in a world of trouble. So far I don't think that much of your physicians for not guiding you better. Wish there was something I could do for you. ginnie

Hi I am sorry I am late to this thread and am sorry about your pain. When I came to this board 6 years ago I was 28 as well. I was in bed 24/7 crying through pain. I was going through all the dx testing and possible treatments in and out of state. I was dx with PN but RSD as well. Unfortunatly my pain has spread and the treatment I have had and meds have not helped. I took a break from treatments because some made me worse but now am going to start up again. I also before this condition had anxiety and depression issues. Over the years of dealing with this the way I cope has changed. I had psych care because at one point of this condition I had so much happening to my body and so much unknown that I became so fearful and anxious I was not coping at all. Also of course how the pain impacts everything from not being able to work,lack of friends,sleep etc. I had a pain doc once say to me on the good days do the most you can and on the bad days do the best you can. That is what I am trying to do. I know it is easier said then done.
Ok enough about me on to you. I did not see you mention but where is your mom or dad? For myself if possible I try to go to the doctors apt with my mom. I think they take you more seriously with another person. Also for the support. Do you have anyone that could do that with you? Have you looked online for support groups whether it be for pain or even depression?
I am sorry if I missed this but before you started feeling the pain or in your life in general did anything happen like did you fall,injury,any type of abuse such as drugs or drinking? Anything that looking back you may have brushed off?
I wish I could offer more but I hope you feel better and try to take one day at a time.