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Old 05-10-2013, 08:25 PM #61
ginnie ginnie is offline
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ginnie ginnie is offline
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Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
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Default Hi Feather

You still have that flame inside. That is the spark of life, cling to it. I have felt as you do, depressed, worthless, dealing with alot of loss. I struggle too. There are alot of us here dealing with pain and mental problems. Well with pain, the mental problems just happen. I was DX as bi-polar at 61 years old. Had no idea up until this year. All I know as I lost it a couple of times.

Reading like you do is great. Anything you can do to pull yourself out of the depression helps. Even sitting in the sunshine. I can't say it is easy, but I do have the help I need with a good medical team. I so hope that you can find the people who will listen to you. That is the key to getting out of the rut. If there is any way you can continue to search for medical care, that is what I would tell you. No joke I interviewed 4 pain specialists, until I found that one, who took what I said seriously and responded. There was kindness too. Things got better after I found the right care.

Friends, yep lost those too. You know who are really your friends, when you are in real trouble. Those that ditch you, well, do you need them anyway?????
Those that stick, they are a true gift. I have just a few, who I consider real confidents. No judgement, just compassion. Two, and I feel blessed.
I lost a friend of 15 years earlier this year, as I couldn't stop yelling. One of the times I lost it. I had some stuff to yell about, and sometimes it just has to come out. It was my fault, but my temper just got the better of me. The anger, I still have trouble with too, just like you do.

I stay with Neuro Talk , as the compassion and friendships that develope help to get you through those ruff spots, where all is bleak, and it feels hopeless. Leesa who is here, was the first to help me out. Even went on the chat line to help calm me down. She is awsome.

I am here to talk to anytime feather. We all need someone. I also thought if you post near where you live, someone may know a physician in your area who has what you need. Somebody on Neuro Talk, may know some avenue you have not explored yet. Just keep talking and posting.

You have the divine spark still kicking around inside you. You just have to be stronger than the problems that you face. Get mad about it, you have a right to feel bad and mad. Channel it into something good if you can.

I also have one dear friend of 35 years. He happens to be a psychologist that I dated briefly about 35 years ago! Parents without partners group. I know he would talk to you if you needed someone in that regard. He is the one that got me through the ruff spots.

If you had to list, the things that you need in order of importance, what would they be? If you can tackle just one thing at a time, it lessens the burden.
I sure will do all I can to help you, talk to you, and try to figure out where you might seek help.

In most communities, there are womens centers. They find the help you may need. Maybe have references you have not thought of before.

You are not alone Feather. You can PM me anytime and I will respond to you.
I am an avid reader, insanely so..... I also listen to Bob Dylan alot. We can talk about some good books. Age has nothing to do with friendhship. I want to be in your corner and give you some hope. Religion has nothing to do with it either. Hope is what keeps people going. Have a good night feather. Know that someone cares about you. Let me know what those things are that you need the most. ginnie
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Old 05-12-2013, 06:58 AM #62
musicofnote musicofnote is offline
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I've been going through similar, "only" on the feet since 1999. On good days I can just function. Bad days are heel on wheels. I've been through 3 blocks of 15 sessions of acupuncture that helped a bit, especially with OTHER problems such as chain migraines and back problems but also helped return some feeling to the complete numbness of my feet. this unfortunately turned into a massive over-sensitivity that I've been fighting against for the last 5-6 years.

After having been told, that there was nothing that could be done way back when, I decided to go again to a new neurologist and she was able to determine that there had been a slight degeneration, which she categorized as the good news, since it should have been a lot worse after 14 years. I'll be having a blood work done again with hopes it'll point to something - my pnp is ideopathic. In the meantime she's prescribed 30mg Cymbalta which has had mixed results. Some reduction of pain, but now I've got problems with nausea, dizziness, inability to sleep well at night and tiredness during the day.

Now two things that has been a great help has been my wife, who has been more sympathetic and supportive than I deserve and ... my dog. When I "work" with her (my dog) the oxytocin flows and I can put aside the pain for a little while. The "work" we do is play, tricks, K9freestyle, tug, retriever kisses. And yes, the pain is worse afterwards, but she comes over for chin rubs and that too helps. Dogs are not for everyone, but if you are a dog, cat, bird, goldfish person, the moments of relief I do get I can only wish on those in a similar position, because despite everything, she helps me want to keep going.
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Old 05-19-2013, 07:28 PM #63
lined_in_silver lined_in_silver is offline
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Ginnie-you're an amazing woman.. what a sweet soul you are. It sounds like you can really relate to me, and that's so valuable when the darkness takes over.

Things I need in order of importance would be 1-love. That's really all anyone needs.
Others that come to mind I guess are better pain control, therapy,and steady income.

Feel free to pm me from here on in.
I hope that my thread inspired someone to reach out and get support on this forum like I have.
What a wonderful resource. I'm taking things one day at a time. I've had some great days lately that show me life can still be enjoyable.
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Old 05-19-2013, 09:50 PM #64
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Icehouse Icehouse is offline
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Quote:
Originally Posted by featherbullet View Post
Things I need in order of importance would be 1-love. That's really all anyone needs.
I cant help but think you need to look after YOU first, then work on the love part...you are a pretty woman, that will come easy once you are OK with yourself first. Work on your health now to build your confidence.

I have been reading this thread from Day1 and you have come along quite nicely (with Ginnies help)

As a Canadian (but living in the US) I can feel your pain when dealing with OHIP and socialized medicine.....

Hang in there Featherbullet.....
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