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Old 04-10-2013, 08:44 PM #9
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erjlg3 erjlg3 is offline
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erjlg3 erjlg3 is offline
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Join Date: Apr 2013
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Quote:
Originally Posted by mrsD View Post
Welcome to NeuroTalk:

Were you taking vitamins when this test was done?
If so and you didn't discontinue them, for about 7 days this could
be a false elevation.

Can you give us more information about yourself?

Some autoimmune neuropathies begin to affect the autonomic nerves that supply the stomach and heart. But not all of them.
And not all neuropathies are due to low B12 either.
You could have a DNA methylation mutation that results in failure to methylate (activate) B12...so it cannot work properly.
There is another test called the MMA...which will demonstrate if your B12 actually works. Or you could have run into a lab error.

Many things are possible, therefore.

So please give us a history of what you were doing when this started, including all medications and vaccines you took or are taking.
Hi. I was not on Vit B12 and was not on them when this test was taken. B12 makes me nauseated.
I started getting numb, pain and tingling on my left side back in 2005 and have continued to go to the doctors since then trying to get help and figure this thing out. They thought a stroke. I have symptoms of Memory loss and Gait Disturbance but have all of these other issues that we can not find a reason for. Pain in fingers, knuckles, wrists, ankles, knee's, behind knee's, hips, upper back pain stiff, neck very slow to turn...stiff and grinding, jaw pain, feet burn on bottom and pain on top and bottom, toe joint pain, headache, left temple pain, eye twitching, twitching, dry eyes, fibro foggy thoughts, bad memory loss, sleep problems, cold sensitive, heat sensitive, light and noise sensitive, joint pain, my skin even hurts, muscle pain, thrush, incontinience, hoarse throat which causes hoarse voice, scratchy throat, feet and hands feel like gloves on with tingling & pain and knumb....hurts very much, fatigue, My hole body feels inflamed from head to toe, anxiety, limbs numb tingling.

Medications

Metoprolol 25 mg twice a day
Lorazepam 1 mg 3x's a day or as needed
1/2 benedryl bedtime
Plaquenil 200 mg twice a day
Ibuprofen 600-800 mg a day
CoQ10
Fish oil
Folic acid 800
biotin
2 81mg ec aspirin a day
Stool softeners a day
Fiber
Nasal spray as needed
Oxycodone as needed
magnesium
calcium
potassium.
I am Iga and Igg deficient but not too bad. Throughout have thought possibly lupus but just same symptoms. Ana is elevated always. Antihistones elevated. IBS. Always feel like I have severe inflammation. I have almost every single symptom of fibromyalgia and am told that I have it. Some doctors say that is not a diagnosis until this last one who say's it is a diagnosis. I have had depression since my very 1st memory when I was 5. I have taken so many medications for depression and pain that either do not work or cause severe reactions. Even some vitamins cause problems in my brain.
I have recently started myself back on lexapro due to my anxiety and depression. The doctor wanted me to start effexor and we were to discuss it next app. that I do not have scheduled yet. I didn't feel I could wait until an appointment to start effexor and I still had some lexapro. I have a ton of stress and all of this seems to be much worse with the stress. Night time is so much worse with pain. Different weather totally effects my inflammation. A 4 month stay in Florida for my husbands treatments was a total surprise that I had no pain or inflammation and felt like I had never felt in my life......which was wonderful to live without pain in that time. If I could go back............I would stay.......but I can not. Sorry so long. Hope this helps.
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